Mixoid Chondrosarcoma (or neuronal)

affonsj
affonsj Member Posts: 1
edited March 2014 in Sarcoma #1
Hello. I live in NY. My partner was diagnosed with a high grade sarcoma in his right thigh which was removed 'en mass'. The tumor was about 4cm long within a capsule. He had no symptoms and this tumor was detected because of an MRI due to an auto accident. The tumor was removed by a neurosurgeon. The medical oncologist would have preferred chemo first to shrink the tumor, followed by a wide-excisional surgery, then chemo and radiation low dose). However he is comfortable with the neurosurgeons competency. No metasatsis on complete body scan. The chemo is six months (ifosfamide, mesna, cisplatin and Adriamycin) Its rough right now. On this third cycle. Anyone undergone this regimen?

Comments

  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #2
    Hello,

    You may want to do a search of the website to see if others have had a similar experience. To do this, enter search words into the search bar at the top of this page. If you find someone you wish to contact, you can do so through the internal CSN email system.

    For more information on the internal CSN email system and other functions of the CSN, click on the "Help" link at the top of this page.

    Take care and be well,

    Dana
    CSN Dana
  • GuyGarner
    GuyGarner Member Posts: 1
    #3
    very similar found in lower leg and they amputated lower leg but I am going through 8 cycles of same drugs
  • Rick_in_Bend_OR
    Rick_in_Bend_OR Member Posts: 3
    #4
    extraskeletal myxoid chondrosarcoma

    Hi Alfonsj,

    I realize that your post was from a while back and that a lot has likely changed for you.  I hope this has been in a positive direction.

    Votrient (pazopanib) is being used for sarcoma therapy more commonly now than older chemotherapy regimens (ifosfamide, mesna, cisplatin and Adriamycin).  There are also other variants of pazopanib available via participation in studies.  These meds are classified as TKI's (tyrosine kinase inhibitors) and they work by inhibiting angiogenesis which is new blood vessel formation.  Actively growing tissue, good or bad, both needs to develop new blood vessels to survive.

    I am currently taking it and tolerating full dosage.  This is for recurrance of my sarcoma.  My initial therapy was radiation (IMRT) followed by local excision.  Votrient is not definitive therapy.  Still needs to be followed by RT and surgical excision.

    Again, I do hope things have gone well for you.Rick

  • savedad
    savedad Member Posts: 4
    #5
    extraskeletal myxoid chond

    Rick in Bend...is the votrient still working for you...my dad starts it this week. Do you take naseau med and if so what kind?

     

  • MyxoidNYC
    MyxoidNYC Member Posts: 2
    edited October 2021 #6
    New Diagnosis

    Hey Rick. 

    Sorry to hear about your illness. 

    recenntly diagnosed..  so many questions regarding the medications /treatment and options. 

    Wondering where you were seen / treated for the surgery - and if you had good experience?

    Thanks, 

     

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