My 1st Erbitux went well, but I am not well.
I had my first Erbitux treatment forf 2 hours on Thursday 9/22 late PM. I have only a few minor side effetcs, but they are making
making life miserable to me. On thursday night woke up several times due to a horriblle headache & queasy stomach. Finally around 4 AM,
I took 1000 mg of tylenol & it reduced the horriblle headache by 50%. Overall yesterday I took 4000 mg of tylenol during yesterday.
I had honey with warm water a few times and it took care of the stomack (I hate taking anti nausea meds). Finally I called my super
kind medical onco nurse & expressed concern about taking so much tylenol. She contacted my dr. and he called the pharmacy for
a presciption pain killer free of Ibuprofen, Asprin & narcotics. I did not have the energy to drive 2 miles and pick it up & did not dare
my poor wife or my children to go & pick it up. Last night was wosre, I woud keep on sleeping 1 or 2 hours & then wake up with headache
& body pain. I would go back to sleep.
I am very afraid & docs are concerned what will happen to me when Radiatin starts this Wed. The reason is that I am 5' 9" and weigh only 128.3 lbs.
My normal weight since I was 20 has been between 120 and 130 and no matter how much I eat I don't even gain a pound. The radiation Onco,
told me I may loose 10% which translates to about 128 - 12.8 = 115.2 lbs.
Before I started treatment on 9/22, I was feeling fine and now I am not able to do much of anything but laying around. I will see a nutritionist next
Wed., but not sur what she can do for me. My daaugther is also like me, we can both eat a lot of food and not gain a single pound, but her weight is
in the normal range. Anyone out there who were extra thin mmost of their lives? I appreciate any help. For the first time I am afraid about my treatmet.
docs are great it's me who is way underweight.
Thanks for any guiance.
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