I want my life back!!

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  • Diya
    Diya Member Posts: 93
    edited September 2016 #22
    Dear eldri,

    Dear eldri,

    I was so sad when i read your post. I do hope you get your real life back soon. One advice i can give you is if you can see a naturopath and get gastrointestinal tests done for ibs. Suprisingly natural herbs are quite effective in fixing these issues. My mum suffers from ibs. Gastro specialists did not help. But a naturopath was very helpful in getting some of the issues sorted before chemo started. Good luck and i hope to see a post from you soon about a successful baking experience ☺

     

    Sending you love and hugs... diya 

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    edited September 2016 #23
    I saw my acupressurist today.

    I saw my acupressurist today.  I told her about all the stress I've been under so at the end of our session, she worked with me, teaching me some breathing exercises and visualizations to do when I feel stressed.  Then she took this big feather (I'm not kidding) and kind of shook it over me while I was doing the breathing.  I'll have to ask her next time what she was doing.  I'm going to see her every two weeks for awhile instead of every three weeks.  Every time I go, my neuropathy seems to get better - especially my fingers.  She said to use the relaxation techniques when I start to feel my stomach going into knots.  I'd like to ask her more questions, but it's hard to chat when she's putting pressure on my chin, my upper lip, my eyebrows - I KNOW it sounds weird but it seems to be working.  When I leave there I can walk upright whereas most of the time I'm kind of hunched over and off-balance.

    I love acupressure day!!!

    Love,

    Eldri

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    #24
    I am so glad that you are

    I am so glad that you are finding something that gives you some relief.  Sound interesting.  Lou Ann 

  • rcdeman
    rcdeman Member Posts: 263 Member
    #25
    EZLiving66 said:

    I saw my acupressurist today.

    I saw my acupressurist today.  I told her about all the stress I've been under so at the end of our session, she worked with me, teaching me some breathing exercises and visualizations to do when I feel stressed.  Then she took this big feather (I'm not kidding) and kind of shook it over me while I was doing the breathing.  I'll have to ask her next time what she was doing.  I'm going to see her every two weeks for awhile instead of every three weeks.  Every time I go, my neuropathy seems to get better - especially my fingers.  She said to use the relaxation techniques when I start to feel my stomach going into knots.  I'd like to ask her more questions, but it's hard to chat when she's putting pressure on my chin, my upper lip, my eyebrows - I KNOW it sounds weird but it seems to be working.  When I leave there I can walk upright whereas most of the time I'm kind of hunched over and off-balance.

    I love acupressure day!!!

    Love,

    Eldri

    If it's effective, then it

    If it's effective, then it sounds like it's something worth pursuing! I am already looking for acunpuncturists who can work with my mom if she happens to need the relief.

    Best to you Eldri!
    Rebecca

  • MoeKay
    MoeKay Member Posts: 493 Member
    edited September 2016 #26
    EZLiving66 said:

    Thank you all for your care

    Thank you all for your care and concern!!!  I love you guys!  I tried to talk to my husband this weekend but when I bring up the subject, I can see the fear in his eyes.  He says I should be positive and act like it's not going to come back.  But he also said I need to let him know when the stress is too much for me at work or home and he will try to help me.  That made me feel better.  Our 45th wedding anniversary is on the 25th and we've been together almost 48 years - it's hard to remember life without each other so I can understand his fear.  

    I've had a bad cold and now it's gone into my chest so I wasn't feeling the best this weekend.  We were sitting outside on our deck when I stood up, holding my little Spunky dog, and fell sideways.  Luckily, the electrical meter was there because I kind of held on to it but I twisted my shoulder and pulled something in my right side.  I see my massage therapist/acupressurist tomorrow so I'm sure she can do something.  But, that kind of thing makes me feel so vulnerable!  I've been through PT for balance and it's helped but I still am so "tippy."

    This whole cancer "journey" sure isn't for wimps!!  But for the most part, I have a wonderful life and I've tried to live it with no regrets.  I've always lived with the philosophy "It is what it is."  If you can do something, great, do it.  But if you can't; let it go.  As I sit here in my family room at home with the sun shining, I can see my flowers, our woods, our fields, our pond, some wild turkeys strutting around and my little Maltese, Spunky, sitting next to me, I KNOW I am blessed.

    This is my new reality whether I like it or not and I am determined to make the best of it.

    Love you all!!!

    Eldri

    Your 45th Anniversary

    Hi Eldri,

    It looks like you and your husbnand got married the Saturday after we did; our 45th anniversary is September 18th!  Where did all those years since 1971 go?  Wishing you a very happy, healthy anniversary and many, many more!

    Maureen

  • brissance
    brissance Member Posts: 192
    #27
    What Kind of Feather Was That????

    My dear friend, this is just not fair.  I hurt for and with you. I am so excited that you are getting some relief.  I hope it gets better and better.  

    I noticed you mentioned when you tried to talk to your husband you see fear.  Eldri he loves you so much he doing the pretty typical family member thing, if I don't acknowledge the elephant he isn't there.  I am glad you talked to him so at least you know he is trying to support you.

    I know you will keep up the fight and get back that "new normal" life.  You know and expect it is a difficult road.  Let us be here for your support if you need us.  

    And... what kind of feather was that anyway???  :)

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    edited September 2016 #28
    MoeKay said:

    Your 45th Anniversary

    Hi Eldri,

    It looks like you and your husbnand got married the Saturday after we did; our 45th anniversary is September 18th!  Where did all those years since 1971 go?  Wishing you a very happy, healthy anniversary and many, many more!

    Maureen

    Maureen,  we were going to

    Maureen,  we were going to get married on the 18th, but my mother in law had her heart set on this particular reception hall and it wasn't available for the 18th....we switched the date.   I look at the wedding pictures and wonder the same thing  -  where did those years to? 

    Love,  

    Eldri 

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #29
    It was this big kind of

    It was this big kind of plummey black feather.  I don't know if it worked or not but I know I feel better when I see her.   I bought a used exercise bike on Friday.   It's really nice and has kind of a tractor seat to fit my big caboose.  Everything I went to physical therapy and road their exercise bike my neuropathy was better that night so.... maybe that will help too!!   Sure can't hurt. 

    Love, 

    Eldri 

  • giggs100
    giggs100 Member Posts: 91 Member
    edited September 2016 #30
    Love my exercise bike

    Eldri I love my exercise bike for neuropathy.  I find this helps me more then my treadmill.   I find if I use it for an hour a day it not only helps me with the neuropathy but I have lost some weight with it also.  Hope you can find some relief for your neuropathy too.

    Jerri

     

  • LindyLu
    LindyLu Member Posts: 72
    #31
    So sorry to hear

    So sorry to hear, Eldri, but I applaud you for sharing your bad day with us.  My heart goes out to you and after all you've been through.  Hopefully you get the needed support from your "sisters" here.  You also gave me food for thought...what to expect (or not) from family and friends.  BTW, my hubby and I will be having our 46th anniversary in November.  I totally get that, even though he's very supportive and will "do" anything for me, the emotional part is unnerving to him.  I can cry at any moment, for no apparent reason even to me, and he just doesn't know what to do.  Nice to know I'm not alone in this.  

    Here's to better days ahead for you, and it sounds like you live in a beautiful spot!  Hugs and Sunshine, LindyLu

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