No news, good news, right?

Jodisgoing180
Jodisgoing180 Member Posts: 97
edited September 2016 in Ovarian Cancer #1

I'm 15-16 weeks post-front line. My oncologist ordered a pet scan, because my CA-125 was 91 at my first post-cancer appointment (it was going down from treatment).  Anyway, I had my pet scan on Friday.  I was told that the radiologist would read the scan on Friday, and my doctor would have the report Monday.  I called today, and got the nurses answering machine and left a message.  I have not received a phone call.  When I was first diagnosed in February, my oncologist called with biopsy results on a Tuesday night as soon as he got the results.  Should I assume that my scan was clear, because I have not heard?  The anxiety has been really hard on me the last few days.  It's monstronous.  Thoughts?

Edited to add:

It appears to be bad news.  I am meeting with my oncologist on Friday to discuss options.  I had dose dense chemo for 18 weeks, does anyone know if I will have the same regimen again?

Thanks

Comments

  • LorettaMarshall
    LorettaMarshall Member Posts: 662 Member
    #2
    Jodi~N the world of cancer, silence is not always "golden"!

     

    Hi Jodi -

    One would think that the oncologist would try another chemo regimen since the one you were on did not produce the desired results.  I read your first entry on the 13th, but really couldn't tell you what the answer might be.  As probably others thought as well,  when you have cancer you can't ASSUME anything.  We hope that the doctors can come up with an alternative chemo regimen that will be much more effective.  As we all know, chemo doesn't always respond in the same way for all the people who are subjected to it.  I'm sure all of us who read your letter, as I see "73" have as of this Saturday morning, have said a prayer for you and your team of doctors.  We're all in this together and when one hurts, we all hurt, knowing that it could be us next to hear "bad news". 

    Love Loretta

    Peritoneal Carcinomatosis/Ovarian Cancer Stage IV

    P.S.  By now, you've had that Friday "option discussion".  Keep us posted as to what your old meds were vs. the new ones. 

     

  • Jodisgoing180
    Jodisgoing180 Member Posts: 97
    edited September 2016 #3
    Friday meeting happened. I am

    Friday meeting happened. I am recurrence :(. Good news is my doctor is very optimistic, we are going for a clinical trial at MD Anderson. He is sending me, and I am one of 10 people he sends annually. We are at an affiliate hospital. He said 1 in 5 of reaching remission. Good chance of reaching stable disease. Am very hopeful. I set up a go fund me site to help with travel expenses. 

    i caught the recurrence early!

  • LorettaMarshall
    LorettaMarshall Member Posts: 662 Member
    edited September 2016 #4
  • Jodisgoing180
    Jodisgoing180 Member Posts: 97
    edited September 2016 #5

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