Side effects from radiation

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  • yikesihavecancer
    yikesihavecancer Member Posts: 5
    #22
    Radiation dermatitis

    i am at my wits end with dealing with ongoing radiation dermatitis.seen Gyn.now dermotologist and it is still here and miserable.having me mupiricin ointment,them Cicaplast balm and still it persists.anybody use anything that actually works.heard about New Zealand m. Honey..and colloidal dressings and hydrogel but haven't tried these yet..it has been over a yr since treatment and it is so sore and unrelenting,it makes it miserable to walk and forget about sitting,and now it is beginning on the right side too...help if you can...it has been ongoing since February  and I am in such misery

  • yikesihavecancer
    yikesihavecancer Member Posts: 5
    #23
    ilana123 said:

    Pelvic radtion

    Thanks for making me laugh. This is my first time on this site. Hi, My name is Ilana. I had a rare cancer called low grade endometrial stromal sarcoma. Full adominal hysterecomy and 7 weeks of radition. Oh ya 1 week in the hosiptal for 104.3 tmp and sever dehydration. Yep thats all, I think . It will be 2 years nov. since my last gift of radiontion. I have found that I am in pain right above the pubic bone, where the last blast of radition occured. Dr. stated scare tissue. Anyone out there has these symptoms? P.S right across the board about bowl movements. My friends and family just do not get it. I think I need new peeps and a new family? 

    I get it

    in over a yr remission from stage 3 c. Cancer and nobody understands the miserable side effects that follow from radiation treatments and chemo....I am now dealling with severe radiation dermatitis  6th month of it..doctors have no answers and act like I am exaggerating it

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,506 Member
    #24
    yikesihavecancer said:

    I get it

    in over a yr remission from stage 3 c. Cancer and nobody understands the miserable side effects that follow from radiation treatments and chemo....I am now dealling with severe radiation dermatitis  6th month of it..doctors have no answers and act like I am exaggerating it

    I'm sorry, yikes.  It is

    I'm sorry, yikes.  It is aggravating to have them not even acknowledge you have this side effect.  We're not a bunch of idiots - we know our treatment can have lasting effects so just tell us if you can't do anything!  I hope you can find something to help you.

  • Beaner54
    Beaner54 Member Posts: 4
    #25
    I have been NED since 2011. 

    I have been NED since 2011.  Last year I started to have leaky bowels.  The doctor prescribed Lomotil which I have little if no results with. He says there is not much he can do for this issue.  Over the past 5 months, I am wearing protection day and night.  I wake up soaked each morning.  YES, I am glad to be alive but this situation impacts my quality of life.  Anyone else dealing with this? and if so, has any medication helped.

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