on the fence about chemo post colectomy

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Comments

  • John23
    John23 Member Posts: 2,122 Member

    Oh, yes

    I remember you saying that about the rectal stump. Damn chemo-brain.

    Is it your urethra that's blocked? I'm not sure I understand why the herbs will block you? Are they capsules, or tea? 

    I'm glad you're an advocate for TCM. I have no doubt whatsoever that it works when used through a trained TCM doctor. I understand your concern about getting an obstruction, but if the risk isn't super high, I'd continue taking them. You definitely don't want anything growing while you're waiting.

    What are TCM's views on juicing? It's not fun with an ileostomy; it's a nightmare with a stricture, too, but might help keep growth away and definitely won't cause an obstruction.

    Hugs!

    PP and things

    The urethra's were impacted due to the tumor growth into the bladder. I have had bilateral nephrostomy tubes since Nov 2015. That's the least of the problems (haha). I have opted to keep the neph tubes regardless, since any operation to get the urine out of the body is very complex due to my short bowel.

    The present obstruction is in my ileum (small intestine), and I can not afford to lose even an inch of it. The situation has become complicated, since if I require an operation to clear the obstruction, it may interfere with any operation to remove that major tumor. They may clear the obstruction and leave tumor for me to die with. To do all the surgery (if required) at the same time will likely kill me anyway.

    One's body can only take so much Krista.... And TCM docs can't perform miracles any more than a surgeon can.

    We take a day at a time.

    I wish I could help all those that may suffer from toxic and harsh "remedies", knowing well that we may all reach this point in life in spite of the vain attempt to stay alive. There are other safe options, less harmful and that will get you just as far (if not further).

    By the way Krista, read my "blog" here. TCM need not be expensive. The herbs I initially used averaged $5 per pound, each pound lasting a month or more.

    There are other ways!!

    Be well,

    John

     

  • kristasplace
    kristasplace Member Posts: 957 Member
    edited September 2016 #23
    JanJan63 said:

    I think that's human nature

    I think that's human nature Sue. We have so much going on in our lives all the time that it's easy to do. I'm sitting here right now with a cramp in my lower left abdomen which usually signals that I'm going to have a partial blockage. The last one wasn't all that long ago. Looking back I realize that at first after I had the last one I was so careful about chewing well but have forgotten and haven't worried much lately.

    We live and we often are busy or don't hae the time to buy the right food or just one little snack seems like no big deal. And then it turns into more often and seemingly nothing happens and then it does and it's easy to look back and know we made a mistake.

    Jan 

    Yes, like an impulse, or auto

    Yes, like an impulse, or auto-pilot. We just want to eat what we want to, and not have to worry about it.

    I've always been chunky, but I gained 74 pounds in six months during chemo. I was on an ileostomy and was able to eat whatever I wanted without the agony of abdominal cramps.

    The reverse happened after the take-down. I couldn't eat hardly ANYTHING that didn't cause horrendous pain as it went through the pipeline. I became suspicious and afraid of anything I put in my mouth. I lost 106 pounds in just over a year. 

    No matter what I eat, I still have either discomfort, or debilitating cramps because of the stricture. It's challenging to put restrictions on when I know it doesn't matter what I eat, the pain will still come. The only thing that really keeps me in check is how easily I gain weight. It's not so easy to lose it anymore. 

  • kristasplace
    kristasplace Member Posts: 957 Member
    edited September 2016 #24
    John23 said:

    PP and things

    The urethra's were impacted due to the tumor growth into the bladder. I have had bilateral nephrostomy tubes since Nov 2015. That's the least of the problems (haha). I have opted to keep the neph tubes regardless, since any operation to get the urine out of the body is very complex due to my short bowel.

    The present obstruction is in my ileum (small intestine), and I can not afford to lose even an inch of it. The situation has become complicated, since if I require an operation to clear the obstruction, it may interfere with any operation to remove that major tumor. They may clear the obstruction and leave tumor for me to die with. To do all the surgery (if required) at the same time will likely kill me anyway.

    One's body can only take so much Krista.... And TCM docs can't perform miracles any more than a surgeon can.

    We take a day at a time.

    I wish I could help all those that may suffer from toxic and harsh "remedies", knowing well that we may all reach this point in life in spite of the vain attempt to stay alive. There are other safe options, less harmful and that will get you just as far (if not further).

    By the way Krista, read my "blog" here. TCM need not be expensive. The herbs I initially used averaged $5 per pound, each pound lasting a month or more.

    There are other ways!!

    Be well,

    John

     

    John, the link to your blog

    John, the link to your blog didn't come up. I'd like to read it. Is $5 for all the herbs you need, and do you get them online?

    Things have gotten very complicated for you, and you're right, the body can only take so much. That makes me think of Craig (Sundance). Just unbelievable the amounts of chemo that boy had. It goes to show that some bodies are capable of taking beatings for years and years, if you happen to be Superman. I think you qualify for that standing from what the surgeries have done to you.

    Have a peaceful night!

    Krista

     

  • John23
    John23 Member Posts: 2,122 Member

    John, the link to your blog

    John, the link to your blog didn't come up. I'd like to read it. Is $5 for all the herbs you need, and do you get them online?

    Things have gotten very complicated for you, and you're right, the body can only take so much. That makes me think of Craig (Sundance). Just unbelievable the amounts of chemo that boy had. It goes to show that some bodies are capable of taking beatings for years and years, if you happen to be Superman. I think you qualify for that standing from what the surgeries have done to you.

    Have a peaceful night!

    Krista

     

    UGH...

    When they "fixed" the board, they made a mess of other things. I don't know what the #$%^& happened to the "blog", but it will take some editing to straighten it out.

    The "blog" is at the basic profile page (click my name), and the blog link is at the top list of links.

    Or, just for the herbs/TCM section, you can go here:

    =======================

    For Complete Info: Click Here

    User:  tcm

    Password:  tcm

    =======================

    The user/pass is to limit spam, etc...

    Best wishes,

    John.

     

  • kristasplace
    kristasplace Member Posts: 957 Member
    edited September 2016 #26
    John23 said:

    UGH...

    When they "fixed" the board, they made a mess of other things. I don't know what the #$%^& happened to the "blog", but it will take some editing to straighten it out.

    The "blog" is at the basic profile page (click my name), and the blog link is at the top list of links.

    Or, just for the herbs/TCM section, you can go here:

    =======================

    For Complete Info: Click Here

    User:  tcm

    Password:  tcm

    =======================

    The user/pass is to limit spam, etc...

    Best wishes,

    John.

     

    Cool Blog!

    I skimmed through it and read a few entries, including the one with the argument with Joe. Very good! Is he still on the board?

    I also read your "Herbs I'm Taking" entry, and I think I'll go back to my TCM doc if I ever need to. She based her fees on my income, but the herbs were still too expensive. Maybe I'll just find another doc who'll let me order the herbs myself.

    I didn't see chaga on the list at all. Is it under a different name?

    Krista