mucoepidermoid carcinoma

Kekgfm7074
Kekgfm7074 Member Posts: 1
in Head and Neck Cancer #1

Hello....

I would like anyone to get in touch with me that has/had the same thing i have....mine is in the base of my tongue...i can't see it but if you stick your finger down my  throat you can feel it...(i didn't do that myself the dr did :-))

Anyways i have a lot of q's please & thank you

Comments

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    edited August 2016 #2
    welcome

    Kekgfm7074,

    Welcome to the H&N forum, sorry that you are here, but I guess they have confirmed your cancer (maybe with a biopsy).

    Mine was stage IVa ssc, bot, 1 lymph node, hpv+ (surgery, rads & Erbitux).  It is different from yours, but many of us follow a similar path to treatments and side effects.

    If  you want just ask away, any questions the answers may roll in.  If you want to converse by private messages, I don’t know how you will do because they are private.

    This is very informal forum and you are encouraged to participate in any way you like.

    Matt

  • Barbaraek
    Barbaraek Member Posts: 626
    edited August 2016 #3
    kekgfm704

    Welcome to the Head & Neck forum. Hopefully someone will catch the title of your post and respond. You can also put "mucoepidermoid" in the search box for the H&N forum and see who has posted about it in the past.

    My husband's cancer was a nasopharyngeal tumor, so not the same thing. But there will be some commonalities that cut across all H&N cancers.

    Don't be shy and feel free to post questions on the board.

    Good luck!

    Barbara

  • Gypsy28
    Gypsy28 Member Posts: 69
    #4
    Hello

    Hello, I was also diagnosed with mucoepidermoid carcinoma. However mine was found in my salivary gland. The tumor was removed in April and i just finished 30 rounds of radiation to the side of my head and neck about 3 weeks ago. My stage is 1 but the grade was intermediate meaning half solid and half cyst-like. I suggest reading up on your type of cancer and staying in touch with the fine folks here. Lots of people here have had base of tongue cancers regardless the type, the treatments are mostly the same. Feel free to message me anytime.   My name is Shirley.

  • TracyLynn72
    TracyLynn72 Member Posts: 839
    #5
    Hey you!

    Hello to my MEC sister!  :)  So glad you joined this group!  They are FANTASTIC!!!  

  • Fritz
    Fritz Member Posts: 106
    #6
    Hello and Welcome!

    Mine was Stage IVA Tonsil Cancer (T2N2aM0) so not the same as yours; however, as said by others above, the treatments are very similar in nature. I had surgery to remove the tumors, neck dissection to remove localized lymph nodes and then radiation and chemo therapy.

    As you have questions or concerns, please post them to the site as there are wonderful people here that are ready to help you through your journey. These kind and caring people help me tremendously during my recent battles with the treatments.

    Good luck!!

    Freddie

  • tommyodavey
    tommyodavey Member Posts: 728 Member
    #7
    MEC

    I sent you a Private Message via this site.  We share the same disease and location of the primary tumor.  Please go read that and we'll talk.

    Tom

  • Mikemetz
    Mikemetz Member Posts: 465 Member
    edited September 2016 #8
    MEC BOT

    I haven't been here much, but your post cought my attention.  I had BOT (left) MEC in 2009.  As Shirley said, the treatments for SCC and MEC are basically the same.  There are some differences in 5-year survival rates, but I don't wan't to quote those in case they have changed in 7+ years.  Please feel free to PM me with any questions you might have.

    Mike

     

  • tommyodavey
    tommyodavey Member Posts: 728 Member
    #9
    Where She'd Go?

    Now I feel bad that I didn't check this site more often for the key words of mucoepidermoid carcinoma.  If she had done a search of those words she would have found my postings.  It is extrememly rare for someone to have a tumor on the base of the tongue with this form of cancer.  My surgeon told me he could not find one case history to gauge a plan of treatment for me, so we just did everything we could.  There have been others here since me who had it on the BOT but the last one the tumor was inside, not outside, where they could surgically remove it.  In that case they need to break the jaw to get to it.  With me, they used TORS to get to it.

    There is a lot of information I could share with her but it seems she hasn't been back since the first post.  Hopefully she'll check back in and see that I sent her a PM asking her to view my profile for information.  It sucks to be in this battle all alone.  She needs to come back for support.

    Thank You all for all your kind words of encouragement with me and my illness.  Today I'm doing just great with minor side effects only.

    Tom

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