Opdivo - Chromophobe

PK_Chicago
PK_Chicago Member Posts: 58
in Kidney Cancer #1

Just an update - after 10 months on Opdivo scans today showed my bone mets were still progressing. My doctor decided to move me to a new therapy Lenvatinib in combination with Everolimu. 

Anyone have experience with these drugs?

PK

Comments

  • Yeric
    Yeric Member Posts: 65
    #2
    not yet

    There are lots of drug names floating around now.  You may be cutting edge.  Keep us informed on how it goes.  I will keep you in my thoughts.

    Bobby

  • I am alive
    I am alive Member Posts: 315
    #3
    Trial at HUP

    someone at another site just got off a Keytruda and Epacadostat (INCB24360) at the hospital of the university of penn ......don't know if chromophobe reacts to it but might be good to add to your list of future possibilities 

  • Sammie23
    Sammie23 Member Posts: 11
    #4
    Evorlimus

    I was on Evorlimus (Afinitor)  for 6 years and now Im on another medication since it stopped.  I had minimal side effect, mouths sores every few months, fatigue, high bp and high cholesterol. All manageable. I was never on anything else just that.  Hope this helps.

  • moon_29
    moon_29 Member Posts: 6
    #5
    There is one patient who has

    There is one patient who has been close to a year on the Lenvatinib-Afinitor combination with great success. Chromophobe also. 

    If you want to find out more go to www.smartpatients.com. Good luck!

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