rare cervical cancer type

beachlover
beachlover Member Posts: 1
edited March 2014 in Gynecological Cancers (other than ovarian and uterine) #1
Hi all, I am new here, just looking at this website today. I am just looking to see if anyone else has the same type of cancer that I do. I have small cell cervical, very rare fast growing. I have been through four cycles of chemo and should be having surgery in about three weeks when my counts recover. I am actually an oncology nurse as well. Talk about irony... well, just saying hello! Good luck to all of you in your battle.

Comments

  • xtinaw
    xtinaw Member Posts: 22
    #2
    Hi! I'm a 4 1/2 year cervical cancer survivor. I had adenocarcenoma (fast-growing) which had also spread to the lymph system. I'm doing well now. I have a personal web page on this site: Christina's Cervical Cancer Corner. Let me know if I can help to answer any of your questions. rwilson002@comcast.net
    Christina
  • GrandmaM
    GrandmaM Member Posts: 1
    #3
    Hi beachlover, I too had small cell cervical cancer. I had a hysterectomy, radiation & chemo together. I see my physician every six months now - going on 4 years since my diagnosis. I feel very fortunate that my cancer was found when it was. Still battling the ongoing fears - like waiting for the six-month pap test - but doing pretty good otherwise. Hope you are as well. Good luck.
  • cgaines
    cgaines Member Posts: 2
    #4
    xtinaw said:

    Hi! I'm a 4 1/2 year cervical cancer survivor. I had adenocarcenoma (fast-growing) which had also spread to the lymph system. I'm doing well now. I have a personal web page on this site: Christina's Cervical Cancer Corner. Let me know if I can help to answer any of your questions. rwilson002@comcast.net
    Christina

    hi, i am new here. i just finished my last treatment last tuesday. diagnosed with cervical cancer stage 2b. i am looking for other women who have gone through the same thing, so i can talk with them. I am 35 yrs. old.
  • bayberry
    bayberry Member Posts: 8
    #5
    cgaines said:

    hi, i am new here. i just finished my last treatment last tuesday. diagnosed with cervical cancer stage 2b. i am looking for other women who have gone through the same thing, so i can talk with them. I am 35 yrs. old.

    cervical cancer
    Hi, I have cervical cancer & was treated with internal & external radiation & chemo in September 07. It was stage 4b. So far it hasn't come back. I have problems with my bowels & have to use hormone cream forever to stop bleeding. I am slowly finding out how to deal with it all. I am almost 62 years old. My last birthday was spent away from home while in treatment. I would like to keep in touch. Keep hope in your heart that a cure is found & available soon.
  • sendi
    sendi Member Posts: 1
    #6
    cgaines said:

    hi, i am new here. i just finished my last treatment last tuesday. diagnosed with cervical cancer stage 2b. i am looking for other women who have gone through the same thing, so i can talk with them. I am 35 yrs. old.

    Rare cervical cancer type
    Hi! I was had total hysterectomy at the end of 2005, for cervical cancer. About month later I had radiation for couple months. I was 26 when I had surgery and radiation. Before surgery I used to go to the doctor, and hospital a lot, because of problems I was having. I had pap smears every time, and they always told me that everything was normal. My cancer had advanced, and my lymp nodes were infected by the time they discovered it. I went thru hell, and I am still going thru it. I have radiation damage to my stomach, and I have so many problems with obstructions, and other things. Today, I am still fighting this stupid cancer! It came back, and I had some Chemo for it. I almost never recieved full treatment of Chemo, because of my bone marrow. It always was half dose, or just one medicine and still not full dosage. It is very hard!!! I am so emotional, scared, sad, angry! I don't even know if it's worth fighting it, but I am!!! I feel so alone, without anybody to understand what I am going thru. If anybody needs someone to talk to, I am here! I know, I do! I whish everybody the best in fighting this disease, and all other diseases out there. Lets be strong, and win this fight against cancer!!!
  • debbie_from_cincinnati
    debbie_from_cincinnati Member Posts: 14
    #7
    sendi said:

    Rare cervical cancer type
    Hi! I was had total hysterectomy at the end of 2005, for cervical cancer. About month later I had radiation for couple months. I was 26 when I had surgery and radiation. Before surgery I used to go to the doctor, and hospital a lot, because of problems I was having. I had pap smears every time, and they always told me that everything was normal. My cancer had advanced, and my lymp nodes were infected by the time they discovered it. I went thru hell, and I am still going thru it. I have radiation damage to my stomach, and I have so many problems with obstructions, and other things. Today, I am still fighting this stupid cancer! It came back, and I had some Chemo for it. I almost never recieved full treatment of Chemo, because of my bone marrow. It always was half dose, or just one medicine and still not full dosage. It is very hard!!! I am so emotional, scared, sad, angry! I don't even know if it's worth fighting it, but I am!!! I feel so alone, without anybody to understand what I am going thru. If anybody needs someone to talk to, I am here! I know, I do! I whish everybody the best in fighting this disease, and all other diseases out there. Lets be strong, and win this fight against cancer!!!

    Rare cancer type - I'm here for you.
    It is as if you were typing my story. Ours are so very similar. I had a radical hysterectomy and the damn stuff came back. I've been in treatment for a year and it's still there. I have aplastic anemia which was acquired after my hysterectomy. I had a terrible reaction to the morphine so now my blood levels are so compromised they have to treat me so carefully. I see no end in sight and am in desparate need of support. My husband is in denial. He just want to ignore it all. The old don't ask don't tell policy. I can't be sad, angry or sick if he is around. He just cringes. Support groups weren't my thing. I can't stand up and do the "wo is me" thing. I am not into self pity. I just need to scream more on the outside and stop the screaming on the inside. I'm here for you.
  • big T
    big T Member Posts: 12
    #8
    bayberry said:

    cervical cancer
    Hi, I have cervical cancer & was treated with internal & external radiation & chemo in September 07. It was stage 4b. So far it hasn't come back. I have problems with my bowels & have to use hormone cream forever to stop bleeding. I am slowly finding out how to deal with it all. I am almost 62 years old. My last birthday was spent away from home while in treatment. I would like to keep in touch. Keep hope in your heart that a cure is found & available soon.

    Cervical Cancer
    Hello,

    I have just been diagnosed with squamous cell carcinoma of the cervix stage III A. I am sitting here waiting for the radiologist/oncologist to call this upcoming week to tell me what kind of radiation treatment he has planned for me and for how many weeks. Though I never missed a yearly check up, I'm still upset that I could go from nothing wrong to full blown cancer in one year. That just shows, I guess, just how fast growing my cancer is. I will also have to have chemo. once a week, which means one day a week, I will have both. I don't know for how many weeks of the chemo. yet either. Yes, I'm really scared. My husband tells me I'm taking this better than he is, but I don't feel very brave. I will soon be 53 years old. Since you have gone through these types of treatments before, can you help me with what to expect of the teatments and short term and long term side effects? Was your personal experience better or worse than what the lists of terrible things to expect are? And, as you can probably tell, I'm new to this computer support source too. Please forgive me if I sound pushy. Congratualtions on being cancer free! And good luck that your long term side effects with diminish over time.
  • Dreamseeker
    Dreamseeker Member Posts: 2
    #9
    GrandmaM said:

    Hi beachlover, I too had small cell cervical cancer. I had a hysterectomy, radiation & chemo together. I see my physician every six months now - going on 4 years since my diagnosis. I feel very fortunate that my cancer was found when it was. Still battling the ongoing fears - like waiting for the six-month pap test - but doing pretty good otherwise. Hope you are as well. Good luck.

    Small cell cervical cancer
    Hi GrandmaM There is another site to keep tabs with us with small cell. Here is the site below. I am so happy to hear that there are more survivors out there that hels us who are just in the begining of this horrible cancer.

    http://www.inspire.com/groups/national-cervical-cancer-coalition/discussion/small-cell-neuroendocrine-carcinoma/

    Hope to see you there. You would be an inspiration!
    Dreamseeker
  • bunnie1
    bunnie1 Member Posts: 21
    #10
    bayberry said:

    cervical cancer
    Hi, I have cervical cancer & was treated with internal & external radiation & chemo in September 07. It was stage 4b. So far it hasn't come back. I have problems with my bowels & have to use hormone cream forever to stop bleeding. I am slowly finding out how to deal with it all. I am almost 62 years old. My last birthday was spent away from home while in treatment. I would like to keep in touch. Keep hope in your heart that a cure is found & available soon.

    cervical cancer
    Hello bayberry are you there? I also had radiation and chemo. My last treatment was in Oct.08 and last followup was in Dec. good news doctor could not detect any cancer. I have problems with my bowels, too. Doctor said its side effects from radiation, but when will they stop?? I get very bloated and have problems with gas.I get the urge to urinate to, all the time. Do you experience these problems?? Why are you still bleeding?? is this suppose to be happening?? how often do you see your doctor? please take care..
  • ladynikko
    ladynikko Member Posts: 3
    #11
    Hi
    I am just seeing your post 6 years later--I am a surivior of small cell of the cervix. I was wondering how you are doing
  • ladynikko
    ladynikko Member Posts: 3
    #12
    Hi
    I am just seeing your post 6 years later--I am a surivior of small cell of the cervix. I was wondering how you are doing
  • ericjgibson
    ericjgibson Member Posts: 1
    #13
    big T said:

    Cervical Cancer
    Hello,

    I have just been diagnosed with squamous cell carcinoma of the cervix stage III A. I am sitting here waiting for the radiologist/oncologist to call this upcoming week to tell me what kind of radiation treatment he has planned for me and for how many weeks. Though I never missed a yearly check up, I'm still upset that I could go from nothing wrong to full blown cancer in one year. That just shows, I guess, just how fast growing my cancer is. I will also have to have chemo. once a week, which means one day a week, I will have both. I don't know for how many weeks of the chemo. yet either. Yes, I'm really scared. My husband tells me I'm taking this better than he is, but I don't feel very brave. I will soon be 53 years old. Since you have gone through these types of treatments before, can you help me with what to expect of the teatments and short term and long term side effects? Was your personal experience better or worse than what the lists of terrible things to expect are? And, as you can probably tell, I'm new to this computer support source too. Please forgive me if I sound pushy. Congratualtions on being cancer free! And good luck that your long term side effects with diminish over time.

    Hey Big T!

    Hey Big T!

    I just had a friend diagnosed with stage four squamous cell carcinoma, and they are indicating that it started cervically.  Just thought i would check in with you and see how you are doing!  Any advise?

  • irishfoley
    irishfoley Member Posts: 6
    edited August 2016 #14
    Sex after Surgery, Internal & External Radiation

    Hi to all who may be out there.  I'm 10 years cancer free after Stage 4 Rhabdomyosarcoma in my cervical muscle.  Yes, I am happy I am still living however, the effects of the radiation did there job and then some and even though my husband and I tried to cooperate as much as possible, my vagina is closed down. I have many days of the week where my intestines don't want to cooperate and that keeps me isolated. I've asked 2 surgeons about reconstruction of my vagina and both have not agreed to do the surgery as they think the risks to me outway the benefits.  Has anyone had this surgery and if so, how did it go? I'm getting really depressed about what the future DOESN'T hold for me in terms of my sexuality. Any comments or help would be appreciated.

     

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