papillary kidney cancer.

iben
iben Member Posts: 7
edited August 2016 in Kidney Cancer #1

hi......i am new in the group...... im am not so good writing,exuse me,im am from denmark,but i will try.

it looks like everybody know eachothers here and writing to eachother....i hope some will write to me..

i was diagnosed last year at one month before i was 41 with kidney cancer,type papillary renal cell ,type 1.stage 1,fuhrmanngrade 2.

the tumor was at my left kidney 4 cm and growing out on the kidney the side down.

i got i removed by surgery,the removed not even half my kidney.so i have now 47 procent kidney funktion.

they told me the prognose was good about 90 procent survavel rate after 5 years.

its a year since now.i got a ct scan 6 months ago and it was fine.next one the 22.february 2017.and then every 2 year ct scan up until 8 years from first surgery,

theres not many procent gets type 1 papyllary,only 5 procent,but i did...do i fell lucky,not ecactly,but im am glad to be alive still,and i no theres no granties,but i try stay positive.

i hope for some felloeship in here, and also i send a gaurdian angel Innocentto all of you who is fighting ore cancer free at the moment.

lately i got pain i the back,like flank,suddently it just came,i dodt understand why, and i get this blood test fore infektion..nothing,and urin test-normal,but i showed the doctor where the pain was. she said its the kidneys...now i going to take some other blood test..

its wird i dont know what to think,just i hope its newer coming back....

Comments

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #2
    Doing the right thing

    Well done! If your worried get in touch with a doc. No point in worrying on your own. Dont worry, none of us know each other outside this website.  All we have is the shared experience of having kidney cancer.

    You are more than welcome, and you are far from the only person here for whom English is not their first language.

    Good luck with your tests, I hope and believe they will find nothing, 

    In the meantime; Wilkommen, Bien Venue, Welcome!

  • hardo718
    hardo718 Member Posts: 853 Member
    #3
    Welcome Ben

    From time to time I also get back / flank pain.  Typically for me, it's either over exertion, or bowel irregularity.  Good luck and keep us posted.  Don't hesitate to call your doctor with any concerns.

    Donna~

  • Allochka
    Allochka Member Posts: 1,072 Member
    #4
    Welcome! English is not my

    Welcome! English is not my native language too, so let's make mistakes together :-)

    you prognosis is excellent, I also heard that papillary is less aggressive than clear cell carcinoma.

    Flank pain can be a million other things, absolutely not related to cancer. As Stomper suggested, talk to your doc. perhaps you can get an ultrasound nstead of CT  to put your mind at ease? It is more readily avbl than CT, cheaper and good equipment and doctor can see almost as much as CT scan. 

  • Kangaroorex
    Kangaroorex Member Posts: 47 Member
    edited August 2016 #5
    Welcome

    It sounds like you have a good prognosis ahead of you.  Flank pain can show up from a lot of things, even from scar tissue in your body from the healing of the surgical site.  Keep yourself monitored but (your doctor should have a monitoring schedule for you) but don't let it eat at your life and nerves.  You have a great life to look forward to and an early detection usually leads to great results!

    i get flank pain when i sleep to much on one side because my back muscles were weaked during surgical recovery and they allow my back to pinch a side nerve so it really can be anything.

  • iben
    iben Member Posts: 7
    #6
    Footstomper said:

    Doing the right thing

    Well done! If your worried get in touch with a doc. No point in worrying on your own. Dont worry, none of us know each other outside this website.  All we have is the shared experience of having kidney cancer.

    You are more than welcome, and you are far from the only person here for whom English is not their first language.

    Good luck with your tests, I hope and believe they will find nothing, 

    In the meantime; Wilkommen, Bien Venue, Welcome!

    hello

    Thank you fore welcome me in the group.last year after surgery i had many sideeffects.pain bag,flanks quiet some time.first 3 months i slowed Down in everything.and My immunsystem had inflammation.all over.i start eating different,Living different,Reading all lot to prevent cancer coming back.i stopped smoking from one day to aborter after smoking in 27 years...this was so east.i was in chok...and Then it all gets better i started Worning and workout...meditated..and fore a long 

  • iben
    iben Member Posts: 7
    #7
    iben said:

    hello

    Thank you fore welcome me in the group.last year after surgery i had many sideeffects.pain bag,flanks quiet some time.first 3 months i slowed Down in everything.and My immunsystem had inflammation.all over.i start eating different,Living different,Reading all lot to prevent cancer coming back.i stopped smoking from one day to aborter after smoking in 27 years...this was so east.i was in chok...and Then it all gets better i started Worning and workout...meditated..and fore a long 

    Time i Were just fine...and

    Time i Were just fine...and Then i wake up with this pain Like i My bones,and Like in the leg ore something,underneight the hip and also Where the kidney is in borg sides.strange this pain.and i Will Tell My docktor i want a CT scan,and that i Can NOT wait to the 22 februars 2017.i dont know anything about My type,,,only showet groning than type 2 papillary,but it's Said nothing about what is slow...i Think NOT to over sorry...and NOT to be to uncarefully...

  • iben
    iben Member Posts: 7
    #8
    Allochka said:

    Welcome! English is not my

    Welcome! English is not my native language too, so let's make mistakes together :-)

    you prognosis is excellent, I also heard that papillary is less aggressive than clear cell carcinoma.

    Flank pain can be a million other things, absolutely not related to cancer. As Stomper suggested, talk to your doc. perhaps you can get an ultrasound nstead of CT  to put your mind at ease? It is more readily avbl than CT, cheaper and good equipment and doctor can see almost as much as CT scan. 

    Thank you for welcome me in

    Thank you for welcome me in the group.i Think the ultrasound AS an alternative is an good solution..that was the Way the found My kidney was NOT normal in the First place...My next CT scan is the 22 february 2017....

     

  • iben
    iben Member Posts: 7
    #9
    iben said:

    Thank you for welcome me in

    Thank you for welcome me in the group.i Think the ultrasound AS an alternative is an good solution..that was the Way the found My kidney was NOT normal in the First place...My next CT scan is the 22 february 2017....

     

    But about the ultrasound this

    But about the ultrasound this only Discovery kidney cancer ore Can it's also find Like metastasis?the type i have is rarely metastaced.

  • iben
    iben Member Posts: 7
    #10
    hardo718 said:

    Welcome Ben

    From time to time I also get back / flank pain.  Typically for me, it's either over exertion, or bowel irregularity.  Good luck and keep us posted.  Don't hesitate to call your doctor with any concerns.

    Donna~

    Thank you for welcome me.i

    Thank you for welcome me.i just get worried about the pain.i have the "cancer"in My thoughts because it's only one year since i been operated....maybe i get a reaktion about normal pain....i have to be farefuld with My symptoms im affraid i do NOT find out in time if anything dont feel normal to me...

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