Scan results - anyone else with bone mets?

tallorder5793
tallorder5793 Member Posts: 67

Per latest CT scan results, my liver met shrank a little bit. Lung met stable. I now have a met to spine which terrifies me further. I need to keep going on Erbitux/gemzar treatment. They are adding zometa for bone met. Doctor was really excited by my results- which confuses me. Yes liver is responding to treatment. And lung is at least stable. But I have added tumor load of bone met. I meet with local oncologist this Monday. Hopefully this will help me make better sense of things.  JD

Comments

  • Cazz
    Cazz Member Posts: 106
    Bone Met

    I have had a lytic lesion on my T4 veterbrae for about four months now.  My oncologist suggested that I get it radiated away, so I've signed up to get it done in a couple of weeks.  It won't make any difference to my other non-responsive tumors, but it will make me feel better.

  • TraceyUSA
    TraceyUSA Member Posts: 316
    JD

    So sorry to hear about this confusing news.  I hope all goes well for you on Monday.

    Thanks for sharing your journey.

    - Tracey

  • mp327
    mp327 Member Posts: 4,440 Member
    tallorder5793

    I'm so sorry you have to add this to your list of things to treat.  I'm glad your treatment so far has been effective for the lung and liver tumors.  I hope you will got lots of answers on Monday when you see your doctor and that you'll keep us posted.  I wish you all the very best, as always.

    Martha

  • tallorder5793
    tallorder5793 Member Posts: 67
    skin cancer / lump in my leg

    Thanks everyone for responses. I also discovered two hard lumps in my left leg, situated close to site of previous radiation. I had it biopsied yesterday. Doctor also removed a mark on my face, which she said was suspicious for squamous cell skin cancer. I won't know results for a week or so. I start treatment of bone met this Monday. They will be using Zometa to strengthen bones. If met starts to get out of control, radiation is an option. I am currently on Erbitux.

    Never a dull moment!

  • tallorder5793
    tallorder5793 Member Posts: 67
    Cazz said:

    Bone Met

    I have had a lytic lesion on my T4 veterbrae for about four months now.  My oncologist suggested that I get it radiated away, so I've signed up to get it done in a couple of weeks.  It won't make any difference to my other non-responsive tumors, but it will make me feel better.

    just curious

    Have they been giving you anything for bone met since it was discovered? I would be interested to hear of your experiences with upcoming radiation. Wishing you the best! JD

  • mp327
    mp327 Member Posts: 4,440 Member

    skin cancer / lump in my leg

    Thanks everyone for responses. I also discovered two hard lumps in my left leg, situated close to site of previous radiation. I had it biopsied yesterday. Doctor also removed a mark on my face, which she said was suspicious for squamous cell skin cancer. I won't know results for a week or so. I start treatment of bone met this Monday. They will be using Zometa to strengthen bones. If met starts to get out of control, radiation is an option. I am currently on Erbitux.

    Never a dull moment!

    tallorder5793

    I wish you all the best with your biopsy results and upcoming treatment.  Please update us as you can.

    Martha

  • tallorder5793
    tallorder5793 Member Posts: 67
    mp327 said:

    tallorder5793

    I wish you all the best with your biopsy results and upcoming treatment.  Please update us as you can.

    Martha

    Thank you Martha!

    Much appreciated.

  • Cazz
    Cazz Member Posts: 106

    Thank you Martha!

    Much appreciated.

    Bone met

    My oncologists don't seem worried about my spinal lesion, suggested we just watch it unless it starts to really bother me.  Mind you, that's sort of what they are saying about all of my many and varied tumors, that we should throw various chemos at them and hope that some stick somewhere.  No point in taking out one tumor here or there as there are so many and more keep popping up each scan.  So on Tuesday I start on Taxol/Carboplatin, guaranteed to make me deathly ill and lose all my hair, oh joy, with very little hope that it will help at all.  I am doing this more as a placeholder to keep me in Dr Eng's good books until her next trial opens up.  If there is no suitable trial, then I've already decided that this chemo/combo is my last shot.

  • mp327
    mp327 Member Posts: 4,440 Member
    Cazz said:

    Bone met

    My oncologists don't seem worried about my spinal lesion, suggested we just watch it unless it starts to really bother me.  Mind you, that's sort of what they are saying about all of my many and varied tumors, that we should throw various chemos at them and hope that some stick somewhere.  No point in taking out one tumor here or there as there are so many and more keep popping up each scan.  So on Tuesday I start on Taxol/Carboplatin, guaranteed to make me deathly ill and lose all my hair, oh joy, with very little hope that it will help at all.  I am doing this more as a placeholder to keep me in Dr Eng's good books until her next trial opens up.  If there is no suitable trial, then I've already decided that this chemo/combo is my last shot.

    Cazz

    I send up prayers for you and will hold you in my thoughts.  Hugs.

    Martha

  • pializ
    pializ Member Posts: 508 Member
    mp327 said:

    Cazz

    I send up prayers for you and will hold you in my thoughts.  Hugs.

    Martha

    Cazz

    I am sorry that your journey has been so testing. I hope that your lack of faith in your upcoming chemo combo turns out to be unjustified. 

    I will be thinking of you. Cwtches

    Post when you are strong enough.

    From over the pond,

    Liz 

  • eihtak
    eihtak Member Posts: 1,473 Member
    tallorder5793....

    Thinking of you and and keeping faith strong.

    katheryn

  • tallorder5793
    tallorder5793 Member Posts: 67
    Cazz said:

    Bone met

    My oncologists don't seem worried about my spinal lesion, suggested we just watch it unless it starts to really bother me.  Mind you, that's sort of what they are saying about all of my many and varied tumors, that we should throw various chemos at them and hope that some stick somewhere.  No point in taking out one tumor here or there as there are so many and more keep popping up each scan.  So on Tuesday I start on Taxol/Carboplatin, guaranteed to make me deathly ill and lose all my hair, oh joy, with very little hope that it will help at all.  I am doing this more as a placeholder to keep me in Dr Eng's good books until her next trial opens up.  If there is no suitable trial, then I've already decided that this chemo/combo is my last shot.

    Cazz wishing you all the best with current treatment

    Taxol/Carbo is a good combination.