UPDATE: NED Monday, Scan day. I am going to vent a little. . .

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  • APny
    APny Member Posts: 1,995 Member
    #22
    sblairc said:

    NED!!!

    30 months and counting. . . . finally got a good night sleep last night. 

    Fantastic! I'm so happy for

    Fantastic! I'm so happy for both of you. Go celebrate :)

    This was supposed to go under the NED announcement. No idea why it ended up here, lol.

     

  • APny
    APny Member Posts: 1,995 Member
    #23
    Dembel said:

    He did!

    Yes, NED as well :-)

    No strange things to be seen on the PET scan and the low kidney value (GFR) probably due to the fact that he took diclofenac for a few days...... Ahr!! He should be much more careful about taking medicines, but I think he got the message now....new follow-up bloodwork in 3 months to evaluate the kidney functioning, but next scan only in December!

    Ready for some champagne!!!

    Now hopefully Uncle Ned will go to the next house to bring some good news.

    Silly disease this cancer, so invisible and yet sooooo present.....

     

    Yay! Break open that

    Yay! Break open that champagne!

  • foxhd
    foxhd Member Posts: 3,181 Member
    #24
    APny said:

    Yay! Break open that

    Yay! Break open that champagne!

    NTI

    Nothing to it. All that worrying when you could have planned a party. Maybe next one. Or the one in ten years. Wonderful news! I wish I could figure out the secret but I always miss something. Go CELEBRATE!!

  • todd121
    todd121 Member Posts: 1,448 Member
    #25
    sblairc said:

    NED!!!

    30 months and counting. . . . finally got a good night sleep last night. 

    Yay

    Great news. See! Follow a routine and have good results. Don't follow a routine and have....good results. :)

    Todd

  • todd121
    todd121 Member Posts: 1,448 Member
    #26
    Dembel said:

    Same....

    Heyhey,

    Reading your post it was almost like reading myself, ok I don't work with autistic adults, but still ;-)

    My partner had total nephrectomy last June. October he was NED with good kidney values (GFR) in the blood from his remaining kidney.

    Now....scan today.........bloodworks were not great, GFR went from 78 to 62 :-(

    SO stress.....and it feels like my cancer, and I'm already imagining how to cope when he will be gone, so many silly thoughts. Now at work, trying to stay busy until he calls me. He preferred to go alone, and no matter how hard it is, I personally think it's better also, I make him so incredibly nervous.....

    But I'm worried sick......

    grtz

    Dem

    GFR of 62?

    That's a pretty good value. It's highly variable, by the way. Your muscle mass, how much water you drank, what you ate, all of this can throw the number off.

    But 62 is good for having one kidney. Mine has been 40-45 ever since my other kidney was removed.

    Todd

    P.S. How often are they checking it? You do want to make sure it stays stable. Are you seeing a nephrologist? A change of +/- 5 should be looked into I think (that's what my nephrologist just told me on Monday). Might want to see a nephrologist.

  • hardo718
    hardo718 Member Posts: 853 Member
    #27
    foxhd said:

    NTI

    Nothing to it. All that worrying when you could have planned a party. Maybe next one. Or the one in ten years. Wonderful news! I wish I could figure out the secret but I always miss something. Go CELEBRATE!!

    Celebrate LIFE

    This is meant for everyone here: those of us affected directly or indirectly.  And yes, me too. Haha  I lose sight of the fact that life really is short no matter how many years we are given & we get caught up in the worry about the thief we call cancer.  In the meantime, some other little thief could sneak in while we concentrate on cancer and snatch our precious life.  We all need to focus on the day given, be thankful for that & try to find the nuggets of pleasure & joy we seek. 

    Stepping off my soapbox now. Haha. I really think this was a reminder to myself, cause I'm selfish like that.

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