AUS 800

hap4174
hap4174 Member Posts: 5
in Prostate Cancer #1

I am in my 13th year dealling with incontinence after prostate surgery. The last 2 years has been much worse (6-8 pads per day). I have considered the AMS 800

since the onset of incontence and recently had the procedure 5 days ago and am very concerned with the outcome. first I noticed a weak stream and trouble empting my bladder. then the swelling began big time and much pain. I was so looking forward to relief but so far it hasn't happened.

Has anyone had any similiar problems or is to be expected?

 

Comments

  • VascodaGama
    VascodaGama Member Posts: 3,707 Member
    #2
    Try contacting the participants via email

    Welcome to the board. I have no experience with the artificial sphincher but there are several past threads about the matter which participants you may try contacting via cns mail. They will be informed by this board via their private mail.
    A recent thread that may be of your interest is this;

    https://csn.cancer.org/node/299789

    Best,

    VG

  • Skid Row Tom
    Skid Row Tom Member Posts: 125
    edited June 2016 #3
    An AMS "Veteran"

    I just read your post.  I've had two AMS surgeries, the first coming in 2006.  How are things going?

  • Josephg
    Josephg Member Posts: 461 Member
    edited June 2016 #4
    Am AMS Veteran Also

    Somehow, I missed this original posting.  Sorry about that.

    I am also an AMS veteran, and I am also available to provide commentary on my experiences.

  • mbp0645
    mbp0645 Member Posts: 1
    #5
    Josephg said:

    Am AMS Veteran Also

    Somehow, I missed this original posting.  Sorry about that.

    I am also an AMS veteran, and I am also available to provide commentary on my experiences.

    AUS

    I see that you have this procedure done  twice.  My husband is scheduled for this surgery on the 12th.  Can you give us some insight on what to expect recovery wise?

    Thanks

  • Josephg
    Josephg Member Posts: 461 Member
    #6
    My Experience

    The other gentleman who responded to your post had the surgery twice.  So far, I am on my original artificial sphincter.  You can reference the links below to view my detailed accounting of my experiences, in chronological order.

    http://csn.cancer.org/comment/1324584#comment-1324584
    http://csn.cancer.org/comment/1326323#comment-1326323
    http://csn.cancer.org/comment/1339326#comment-1339326
    http://csn.cancer.org/comment/1339561#comment-1339561
    http://csn.cancer.org/comment/1344785#comment-1344785
    http://csn.cancer.org/comment/1413239#comment-1413239

    After you have finisihed your review of these postings, if you have additional questions, please post them here, and I'll do my best to answer them.  Other folks will most likely chime in on this discussion, as well.

  • Skid Row Tom
    Skid Row Tom Member Posts: 125
    #7
    mbp0645 said:

    AUS

    I see that you have this procedure done  twice.  My husband is scheduled for this surgery on the 12th.  Can you give us some insight on what to expect recovery wise?

    Thanks

    Brief description of AUS surgery.

    First of all, I tried everything possible to avoid this surgery and told my doctor that I didn't  want a foreign object embedded in my body.  He assured me, the AUS was the gold standard.  I found myself becoming depressed and avoiding social situations.  I had to do it.  I'm  going to be brutally honest.  The surgery and recovery are not pleasant, but it's worth it.  Your penis and scrotum will be sore, swollen, and most-likely will turn the color of a plum (purple). A hand-held shower head is beneficial for keeping the groin area clean. Because of the medications, you will be constipated. The first couple of poops are problematic. You can't  strain because you'll  rip your stitches.  But if you don't  strain, you can't  poop. I load up on fruit and use a bit of laxative to soften the load.  After 3 or 4 days, things get better.  For a week or so, it's  difficult to walk normally, but you can shuffle.  Also, somebody may have to help you put on shoes and socks  because its difficult to bend over. You will have no bladder control until the doctor activates the AUS, usually in 6 weeks.  Activation requires the doctor to push a little pop rivet (button) located on the AUS pump in your scrotum.  It will feel like a pinch, but it's  tolerable.  That's  a brief summary.  If you email me at drtsawyer@aol.com, I would be happy to give you my number  and we can talk about it.  Believe me, the AUS has changed my life.

  • Skid Row Tom
    Skid Row Tom Member Posts: 125
    edited July 2016 #8
    Josephg said:

    My Experience

    The other gentleman who responded to your post had the surgery twice.  So far, I am on my original artificial sphincter.  You can reference the links below to view my detailed accounting of my experiences, in chronological order.

    http://csn.cancer.org/comment/1324584#comment-1324584
    http://csn.cancer.org/comment/1326323#comment-1326323
    http://csn.cancer.org/comment/1339326#comment-1339326
    http://csn.cancer.org/comment/1339561#comment-1339561
    http://csn.cancer.org/comment/1344785#comment-1344785
    http://csn.cancer.org/comment/1413239#comment-1413239

    After you have finisihed your review of these postings, if you have additional questions, please post them here, and I'll do my best to answer them.  Other folks will most likely chime in on this discussion, as well.

    Good posts, Joseph

    Joseph: I've  read your posts and I'm  sure they've  been very beneficial  to anybody considering an AUS. I'm  happy that Trew helped you through this, because I was able to help him during those difficult soul-searching days and weeks prior to surgery and during his recovery period.  By the way, my second AUS works even better than the first!

    Tom

  • jimco236
    jimco236 Member Posts: 13 Member
    #9
    AMS 800

    To avoid constipation problems start taking your stool softners several days before surgery.

  • efsduce
    efsduce Member Posts: 1
    edited February 2017 #10
    3rd AUS

      After a radical in 2005 i went totaly incontinent for 18 months. my 1st AUS failed within 6 weeks. the 2nd was immediatly put in and i was never satisfied, but i went for my post ops, had xray and cystoscope and was told the implant was functioning as well as it could. I have gone 10(ten) years using 3-5 Tena #3 pads per day until it became  tpossibleto access my chart online. I then discovered that both the xray and cystoscopy showed incomplete closure. I had been lied to. NEW doctor discovered the resevoir, supposed to hold 24 cc of fluid only had 23 cc. I had a new AUS put in 39 days ago. in 3 days it will be activated and i am, of course, hopeful.ironic fact...i am an MD.

  • Brenners78
    Brenners78 Member Posts: 2
    edited October 2017 #11
    AMS 800

    Has enyone experience with pain and blod after exercising? We live in the countryside and are used to be out in the nature. I am thankfull for coments. 

  • Brenners78
    Brenners78 Member Posts: 2
    #12
    AMS 800

    I send my first question today. In Norway we do not have any place to ask about AMS 800,so I wood be very greatful for all ansvers. Regards from Norway

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