New and just beginning

Tichondria said:

Thank you Lou Ann

Just wanted to give you a big thank you. I will have the hubby get some Myralax for me.  And hugs and prayers back at ya. I hope your scan comes back with some great news.. and for the rest of you wonderful women, thank you soooo very much!!! having you ladies here and having someone to talk too off an on really makes my day feel so much better/easier to deal with.

 

 

Edit:

 

On a side note.. i have something that happened I was gonna ask you all about.  Been having very weird issues with my head lately. Not sure if the medicine i'm taking for pain is messing with me or what. But I am not quite sure how to explain my issues. It's like.. a part of my brain is on hyper-drive and going so fast I can't keep up (it will just push out words like go, stop, now.. very easy usually 1 syllable words, while the other half of my brain is going at the same time but it's going incredibly slow.. like it will think totally different words. I was laying down and when this woke me out of a dead sleep I had to look at my hand, I knew it was a hand.. but I couldn't think of the word at that moment. I couldn't speak, all I could do was grunt, I could still move around a little but it was very hard.

This sounds so ridiculous even just typing it up but I have no real way to describe what happened. It was just the oddest sensation, and it took almost an hour before I was back to normal. I could then get up, use the bathroom, talk. It was like I was in my body but had no "real" control over it. And I was worried about telling a doctor because they always assume things with me. I guess I just wanted to tell someone, somewhere that doesn't brand me as the mental ill girl. That is why this forum is so wonderful. The people here don't automatically assume, and you can be scared and or confused and they help you as best they can or just to say, he it's ok.. it will get better. So thank you everyone, thank you for being so kind to me and helping to keep me from being too spastic lol.

I have had some strange episodes too with my brain.  One day on my way home from work - I've worked at that some location for 18 years - I got lost!  I had no idea where I was - nothing looked familiar.  Luckily my husband was in the passenger seat (I knew who he was) and told me where to go.  It's about a 20 minute drive home and everything looked unfamiliar until we got to our driveway.  I recognized our house.  It really scared me and I called my doctor about it.  She said it could be Transient Global Amnesia which could have been triggered by a number of things including the pain meds or PTSD.  I also had night terrors and repetitive dreams which she thought were at first caused my pain meds but when I quit taking them and still had the dreams, she thought it was because of my liver problems.

I'm lucky that my GP takes these things seriously unlike my oncologist's office who looks at me like I have two heads when I told them about some of my side effects.

As far as the constipation, I took the Miralax the day of my first chemo as suggested.  OMG, I thought I was going to die because I had diarhhea so bad.  I have IBS and with chronic diarhhea, the Miralax just aggravated it.  I learned I was one of the few people who didn't get constipated from chemo and opiate pain meds - just the opposite.  

We've all be through hell and back with a lot of strange side effects.  Don't worry - you're safe here!!

Love,

Eldri

Tichondria said:

I will try out your suggestions

I'm going to try miralax and that protein powder you were talking about.. and I don't know why i didn't even think about some ginger ale. I should have the hubby grab some. He made me tomatoe soup today and I told him to eat the rest of the meatloaf because I was eating so little of it and it don't want it to go bad. Plus I think he is done with chicken lol.  He has turned into quite the cook for me. I will try that collagen peptides though, i'll put it into my fruit juices or maybe when I make some smoothies.. Love home made smoothies, best thing ever.. just wish where i lived there was a Jamba Juice here. I LOVE those places!

Hi Miranda, after my surgery I got off oxy as quick as possible because of the constipation.

It got so bad at the start of chemo that I had to call my gyn-onc nurses and they gave me their secret recipe to get things moving quickly: 1 cap full of Milk of Magnesia (MoM), 1 cap full of Miralax and 1 MoM cap full of prune juice. Mix together in a cup and warm in a microwave then drink. It tasted HORRIBLE but it did the trick in about 30 minutes.

After that, I started taking Miralax twice a day. I added in Metamucil a few weeks later. It keeps me regular without having to worry.

For protein, I eat plain, organic greek yogurt (whole or 2%) with a little strawberry preserves mixed in to cut the sourness. The yogurt has 23 grams of protein per cup - which is really hard to beat!

I hope you start to feel better soon!