Post Op Blues

Tonita
Tonita Member Posts: 197 Member

I have to say, I'm very depressed.  Hungry all the time, tongue feels like a gnarled piece of flesh.  Feels like I have a plastic ear.   Can only get so much down and patience is running very, very  thin.  The visit to remove the drain wasn't much help.  How long to get the results from the lymph nodes?  Are they gonna make me wait until the 23rd when my post op exam is?

I hear "should" a lot.  The feeling in your ear and side of the head "should" come back.  Tongue "should" return to somewhat normal. 

Well, at least I have a place to come and vent.

 

Comments

  • swopoe
    swopoe Member Posts: 492
    I am sorry, Tonita. First, if

    I am sorry, Tonita. First, if you want results sooner, call your doctor and ask. It can't hurt. Waiting for results is the worst. As for the depression and being down, that is very normal. My husband and I went through those feelings too. Yes, you can always come here to talk. We also spoke to a social worker when my husband started chemo, and she was a big help. Can your doctor refer you to someone like that? Our cancer center had people, Like the social worker, that we could talk to any day or any time. Also, we were set up with a dietician who helped my husband with ideas for what to eat and how to eat after surgery and during further treatment. She was a godsend. Ask around at your doctor's office and see what resources they can link you up with.

    Recovery can be slow. It was good for my husband to occupy himself with other things after surgery. We binge watched a lot of Netflix together, did some organizing around the house, he played a lot on the wii, etc. Anything to get his mind off of stuff. Doing nothing made it worse. Do you have any hobbies to keep you otherwise occupied?

    I am hoping for the best for you. Come here to talk at any time.

    Nadine

  • slk2015
    slk2015 Member Posts: 54
    Post Op blues

    Try not to listen to the "shoulds".  Everyone is different.  I had two glossectomies (second to take more of the tongue) and selective neck dissection on the right side. last March.  I would read how people could eat certain foods and try it and fail completely.  So I just tried things and if they didn't work, I tried something else.  Be prepared to throw out food when it fails to appeal.  My hubby got used to my wanting something to eat, making it and then having me take two bites and hand it back saying I couldn't eat it.  I still do that sometimes.  (I have to eat as I am also diabetic.  Ice cream and Ensure work, though they are boring after a while.)

    My oncologist just said "sometimes" feeling comes back, sometimes not, etc.  My neck still gets very stiff when it gets cold, even though it has been a year and I did the exercises.  No one is the same--and yes, that sounds trite, but after a while you realize it's true and go with it.  Whatever is happening to you is probably not the same as others.  There are just too many factors in people to predict outcomes with any accuracy.  

    I finally got most of my complications worked out by April of last year.  By then, it was warming up and I started to work on my garden.  It was a bit cold for planting, but I planted the indoor starting stuff and fixed fencing, etc.  Mid-May I got a new puppy (YES!!!) and my ducks hatched over a dozen babies.  These were things that made me feel better, even if things still hurt and my mouth and tongue were still very uncooperative at times.  If you can find something you like to do, it really helps.  I know when people feel lousy, that's hard, but even if you can only do one thing a day, that's one.

  • wmc
    wmc Member Posts: 1,804
    What you are going through is normal...for you.

    Everyone heals different and at a different rate. No one had the exact surgery you had, or will respond the same. Talking about it is the best because you get it out. You may get some differeny things to try and some may work, and some dont. Yes I do understand the ears. When I was still in the hospital the man in the bed next to mine was, how do you say, a pain. I had my TV on and very low, but he could hear it [8:00pm] and complained to the nurse. She was kind and brought me sone headphones to have. That was very nice, and i'm sure I was billed for them. Now I was cut from ear to ear and had a dissection on both sides and can't feel my ears, at all. That was the strangest feeling, or lack on feeling with earphones on. I did get bact the feeling back on my right side. The left will always be numb for me, and it stoppe right in the cenyer on my chin and neck.
    As for eating, you just have to try many things to see what will work now. It will get better down the road but for now, soft, smooth, and anything you can think of. I had to take all liquids with a straw an I had to relearn how to get a spoon to work. Every thing just fell out when I used a spoon. I did finily get it. I liked Cream of chicken soup. I had it four and five times a day.  Many say to go to a buffet when you can and you can just try everything and see what works.

    Now as for being sad, you have every right to have those feelings. Heck, look what you went through. You notice I don't say depressed. That is because you are sad and that is a normal responce for now. Depression is when you need help to get over something. Yours is normal. I lost my larynx and sure it got to me. Every day I live with no vocal cored, but I can still talk. You might say I was known as a talker at work. It was said that when the surgeon you could hear a voice say, Well that outt to shut him up.  Then in 17 days I was able to takl and the voice said, hell that didn't even work. Having humor helps as does acceptance. I wanted to whistle again, but was told it can't be done with a laryngectomy, but I can. It took two months working all day every day, but I can whistle. Not as good as before, but I was not suposed to be alive ethor.  Just give it time. Will you ever get back to 100% as you were, no. You can get back to 98% of the "New You" and you will see the world different, and hopefully better, I did.

    Bill

  • Duggie88
    Duggie88 Member Posts: 760 Member
    Tonita

    I remember scratching my cheek and it felt like I was rubbing my ear I use to think F..it it's just part of healing. As others have said we heal differently at at our own body's pace. Hang in there it does get better just not as quickly as we want. 

    This is a great place to come and vent. You can even yell and scream, hell my ears are already ringing from the radiation and a Robin Trower concert back in the 70's.

    Heal on

          Jeff

  • Grandmax4
    Grandmax4 Member Posts: 723
    I guess that's why they call it the blues

      For the first time in my life, and believe me, I've led an adventurous, crazy life..I needed to go on  anxiety meds after my  treatment, and am still on them to this day. Don't be afraid to ask for them~~going through what you have, would make anyone blue. 

       I found out my nodes were clear on my first visit back to my surgeon., so about 2 weeks. It was such a high to know chemo and radiation was not needed, I forgot all about the torture I put myself through, waiting to hear.

       The plastic ear, my right ear is still plastic, it makes it easy to put my earrings in, that ear has 2 holes for earrings ( I chickened out on the left ear )..anyway, it's really no big deal, I can hear with no ringing, which is a blessing..and check the mirror to make sure it's still there. In fact, my ear, about halfway down my neck and the back of my neck are all still numb ( 4 years, 4 months out ).

       Your tongue, I can't help you with that, mine was cancer on my epiglottis~~which caused my  ex family doctor to comment " how do you expect to live without an epiglottis?" and people wonder why I'm on anxiety meds?

       Anywho, it sounds like you're perfectly abi-normal and are welcome to vent anytime

       Take care, stay strong..you got this 

  • the_wife
    the_wife Member Posts: 184
    Grandmax4 said:

    I guess that's why they call it the blues

      For the first time in my life, and believe me, I've led an adventurous, crazy life..I needed to go on  anxiety meds after my  treatment, and am still on them to this day. Don't be afraid to ask for them~~going through what you have, would make anyone blue. 

       I found out my nodes were clear on my first visit back to my surgeon., so about 2 weeks. It was such a high to know chemo and radiation was not needed, I forgot all about the torture I put myself through, waiting to hear.

       The plastic ear, my right ear is still plastic, it makes it easy to put my earrings in, that ear has 2 holes for earrings ( I chickened out on the left ear )..anyway, it's really no big deal, I can hear with no ringing, which is a blessing..and check the mirror to make sure it's still there. In fact, my ear, about halfway down my neck and the back of my neck are all still numb ( 4 years, 4 months out ).

       Your tongue, I can't help you with that, mine was cancer on my epiglottis~~which caused my  ex family doctor to comment " how do you expect to live without an epiglottis?" and people wonder why I'm on anxiety meds?

       Anywho, it sounds like you're perfectly abi-normal and are welcome to vent anytime

       Take care, stay strong..you got this 

    Vent away!

    Hope you feel better soon Tonita!

    I have that song stuck in my head now, Grandma! That's okay, it has always been one of my favorite Elton John songs. 

    Remember - things can only get better!