Neuropathy!

ncg007
ncg007 Member Posts: 138 Member
in Uterine/Endometrial Cancer #1

Here I am almost 3 weeks out from my final chemo and wham! Neuropathy hits with a vengeance!  I realize it can come at any time, but thought I was getting by without this symptom.  Numbness from feet up to my throbbing knees plus hands and feeling it move up my arms today, I also feel cold.  I was hoping to go shopping today for upcoming FL trip, won't be able to do the walking now.  Cancer the gift that keeps on giving!  I have my Onc post chemo follow up appt on Friday to discuss on going plan and I will add this to the list. Ok I feel better now, just had to vent.  Hope all of yours day is a good one.

Nancy

Comments

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    #2
    Nancy, so sorry for that!

    Nancy, so sorry for that! Mine hit harder about 2 months post my last chemo. It has been just over 3 months for  me and my feet are still hurting.

    From what I have heard, this can go on for 2 years or more!  But, it has ONLY been 3 weeks for you. Remember, you have a huge build up of chemo for your body to process and GET OVER. Give yourself time. For me, that has been the hardest part... The waiting for it to be truly done. I will say, once I hit that 3 month milestone, I did start feeling much better. More energy and the ability to stand longer.

    I hope you feel better soon.

    Love and Hugs,

    Cindi

  • bluehyacinth
    bluehyacinth Member Posts: 54 Member
    #3
    That is just miserable. Yes,

    That is just miserable. Yes, you are so right the gift that keeps giving. Sheesh I was having a biopsy the other day 3 days before my last chemo. No bleeding and I get home and move around a bit and the next day half the breast is red and mega swollen, odd but whatever I think. I go to my last chemo and my platelets are 80 and my chemo brain finally think oh that is why the breast bruised up like that, not good and chemo postponed a week. But at least I had no neuropathy to go with that, but I did have a ca-125 higher than the last one, but onc not worried as it is not high enough for him to worry (only for me to worry).

    My ongoing plan (I am stage 3CII grade 3 endo with a serous second ovary tumor component extensive vasc and lympfh invasion) is one more PET/CT scan, I had one midway through chemo and 2.5 months after rads), then MRIs every 6 months and this is due to the aggressive serous tumor not the 3C tumor. 

    I hope your neuropathy disappears quickly and stays away. We have to get back to some living without having to be reminded of this cancer crap all the time.

     

     

     

     

     

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #4
    I'm so sorry, Nancy!  My last

    I'm so sorry, Nancy!  My last chemo was 14 weeks ago and my feet are still numb except when they feel like they're on fire or somebody is poking needles into them.  Most of my fingers are just numb - no pain, and I'm thankful for that.  I start physical therapy on the 29th and I sure hope that will help.  I told my PA last week that it feels like my left leg is heavier than my right one.  She said that was part of the neuropathy too.

    I tried the gabapentin but it made my eye muscles spasm so bad I couldn't see.  At least the swelling and numbness in the right side of my face is pretty much gone Smile.

    I hope your neuropathy is short lived and you have a good time on that vacation to Florida.

    Love,

    Eldri

  • cleo
    cleo Member Posts: 144
    #5
    Neuropathy

    I find that taking NeuRemedy and L.Glutamine does help.

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #6
    cleo said:

    Neuropathy

    I find that taking NeuRemedy and L.Glutamine does help.

    I've been taking the

    I've been taking the L-Glutamine for about three weeks and haven't felt any change.  How long did it take to work, Cleo??

    Love,

    Eldri

  • Gardena
    Gardena Member Posts: 102
    #7
    So sorry to hear this....

    Nancy, what a shock that must have been to get hit w neuropathy 3 weeks out. It sounds like you're getting if full throttle,  I'm so sorry.  I hope your follow up dr appt will offer suggestions or physical therapy. I've been using LGultimate from the beginning of my treatment and feel it has helped limit the numbness in my feet and hands, tho I am always cold, just can't warm up. Hadn't thought of attributing that to neuropathy but could be? The one symptom I've been left w is indigestion and nausea.  You're so right, cancer is the gift that keeps giving! Keeping you in my thoughts. 

  • ncg007
    ncg007 Member Posts: 138 Member
    #8
    Gardena said:

    So sorry to hear this....

    Nancy, what a shock that must have been to get hit w neuropathy 3 weeks out. It sounds like you're getting if full throttle,  I'm so sorry.  I hope your follow up dr appt will offer suggestions or physical therapy. I've been using LGultimate from the beginning of my treatment and feel it has helped limit the numbness in my feet and hands, tho I am always cold, just can't warm up. Hadn't thought of attributing that to neuropathy but could be? The one symptom I've been left w is indigestion and nausea.  You're so right, cancer is the gift that keeps giving! Keeping you in my thoughts. 

    neuropathy

    Thanks all..I'll ask the doc about NeuRemedy and LGlutamine.

    Gardena, From what I've researched so far, I'm not clear if the cold feeling is related or something else.  But to me it seems that it would be based on the nerve damage.

    I sympathize with all others suffering from this, it really is painful.

  • Unknown
    Unknown
    #9
    ncg007 said:

    neuropathy

    Thanks all..I'll ask the doc about NeuRemedy and LGlutamine.

    Gardena, From what I've researched so far, I'm not clear if the cold feeling is related or something else.  But to me it seems that it would be based on the nerve damage.

    I sympathize with all others suffering from this, it really is painful.

    Cold is one of my symptoms too
    I have had neuropathy since my first Chemo, cold is also a side effect, both feet and overall cold. I had to skip my fifth taxol because my doctor was concerned about the feet, however I am more steady this week. I'm sorry you are suffering this now, it should have skipped you if you already finished chemo, but nothing is off limits when it comes to chemo side effects. Hopefully, it will be temporary and leave soon. I wish the brilliant medical research people could come up with a cure or treatment to at least deal with this. It seems like cancer and chemo treatments should be more advanced than the 1990's, but I guess it isn't. Hugs and prayers.
  • Soup52
    Soup52 Member Posts: 908 Member
    #10
    Yes, I'm having neuropathy,

    Yes, I'm having neuropathy, too. Eldri, I'm glad you mentioned about your left leg feeling heavier because I've been having the same feeling and was wondering if it was related. I can't. Say I have been cold but maybe that will be coming one of these days, too. I'm always glad to see others posts as I then don't feel like I'm going nuts with these symptoms.

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #11
    Soup52 said:

    Yes, I'm having neuropathy,

    Yes, I'm having neuropathy, too. Eldri, I'm glad you mentioned about your left leg feeling heavier because I've been having the same feeling and was wondering if it was related. I can't. Say I have been cold but maybe that will be coming one of these days, too. I'm always glad to see others posts as I then don't feel like I'm going nuts with these symptoms.

    Isn't that the truth, Soup!!

    Isn't that the truth, Soup!!  Sometimes I would mention a side effect to my oncologist's PA and she would act like I'm the only person in the world who had that.  But, then I'd look online and see a LOT of people have that side effect.  Makes you wonder if they know what they're doing, doesn't it??  Last night was a really bad night for my feet but I didn't do much yesterday except a little shopping so.....maybe I need to walk more if I don't want the burning or "picky" feeling??

    Love,

    Eldri

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #12
    EZLiving66 said:

    Isn't that the truth, Soup!!

    Isn't that the truth, Soup!!  Sometimes I would mention a side effect to my oncologist's PA and she would act like I'm the only person in the world who had that.  But, then I'd look online and see a LOT of people have that side effect.  Makes you wonder if they know what they're doing, doesn't it??  Last night was a really bad night for my feet but I didn't do much yesterday except a little shopping so.....maybe I need to walk more if I don't want the burning or "picky" feeling??

    Love,

    Eldri

    Ask about B6

    On the advice of my oncologist, I took B6 while on Taxotere to avoid neuropathy.  I had very minimal neuropathy (some numbness in fingers) but it was short lived and minimal.  I could still do fine motor skills like sewing.  I have a lot of intermittent foot pain now, 5+ years later, but I don't think it's neuropathy - plan to complain about that some day.  I do have some pricky feelings in my feet often, but if that's neuropathy, I don't think I want to know about it . . . it is minimal. 

    Suzanne

  • cleo
    cleo Member Posts: 144
    #13
    Eldri

    I have had neuropathy since 2007 after surgery e.t.c.   The 'natural' medication just seem to keep it in check......when I have thought that perhaps it's  'all in the mind' that the meds are helping, and don't take them, the numbness and burning is definitely worse.   I try to avoid any doctor prescribed meds for the sake of the body!

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