So sick and so scared

My names is Sherilyn and I am a 47 year old mother of two beautiful teenage girls. I do not smoke, I enjoy my couple of glasses of wine some evenings while winding down.  I play squash regularly, I run on average of 20 km a week.  I lift weights and keep my mind and body active.  My journey has just started and I am so scared.  I had gone to my family GP here in Ottawa, ON Canada a few months back as I was experiencing fatigue, night sweats, back pain, anxiety and heavier than normal menstrual bleeding.  He chalked it up to menopause and said I would be fine and prescribed me an anti-depressant to "help me cope".  I carried on with things enduring my symptoms as I felt slightly better (less anxiety).  About two and a half months ago I went back to him as I was so tired and my back pain was increasing.  He sent me for some blood work and my results came back low iron and my TSH was off.  He adjusted my Synthroid (thyroid med) and told me to take 900mg of Fumarate Ferreux (iron pills).  I followed is directions for a week or so but my fatigue was so bad and my headaches were getting worse.  I returned to him for a follow up blood test to check my iron and thyroid levels and he advised the levels still needed to climb before I would see an improvement.  I also advised him it hurt when I urinated and he (without testing my urine) prescribed me an antibiotic for a UTI. After a couple of weeks I started to experience increased neck pain, headaches, back pain, abdominal bloating and pelvic pain.  I called for an appointment and was fortunate that he was out of the office and a female GP was on call.  She gave me a pap, ordered a pelvic and abdominal ultrasound and tested my urine for a UTI which came back negative even though I was still experiencing painful urination symptoms.

I had my ultrasounds done but before the results were in I had to return to follow up with my GP on how my most recent blood tests.  I advised him that my pain was increasing especially in my neck and back. I gave him a list of complaints because I seem to be experiencing issues with my memory and the vision in my left eye is very blurred and foggy.  He pushed the paper away that I handed him away and said "what do you want me to do with this"?.  He asked me what was really wrong with me and what was going on in my life. I told him that I am feeling very sick, worse than I have ever felt.  He again asked me "what is really the problem"  again I told him I felt horrible and went over my symptoms.  I asked him to look at my neck as it was so sore and asked him if perhaps I had an ear infection.  He huffed at me and pulled out his stethoscope pushed it into my ear and in less than 5 seconds told me I was fine.  I told him that I did not appreciate him being condescending toward me and again he told me "well just tell me what you want me to do".  I was quite upset and told him that "I am not the doctor.  I come to him, present my symptoms and that it was his job to suggest what can be done, not the other way around"  I was so upset that I left his office telling him I did not appreciate him being condescending".  

That evening around 7:00 he called me at home telling me the results from my ultrasound came back and they found multiple polyps on my uterus and he was referring me to an OBGYN (specialist) along with suggesting some massage sessions for my sore neck, back along with more bloodwork to rule out "obscure" things that could be making me so fatigued.  He said he was sorry that I felt he was being rude and although “I am new, I think I am thorough and professional”.  He advised me that “although he likes me, I may feel better with another GP”.  He also asked me if I was experiencing night sweats and I told him “of course I am”. I have told him this on different occasions. I told him I sleep with my blanket off as some nights they are bad.  Five days after our phone conversation I had not heard back from anyone on this specialist appointment.  So I called the GP's office again and they advised me that the referral was sent over and gave me the name of the OBGYN.  Because I am barely able to function, I asked my husband to call about the specialist appointment.  He called but there was no record of a referral being sent over. He spend time calling back and forth between them and they finally found me in the system with an incorrectly spelled name with no records of my pap or ultrasound results.  The receptionist at the OBGYN's office advised because there was no urgency my appointment was scheduled for June 16th....4 months later!  My husband is an retired RCMP officer and has a slightly shorter than normal fuse.  Thank goodness for that as he managed to get my records sent over to the OBGYN's office and had me in for an appointment that afternoon.  They have confirmed multiple polyps and an enlarged uterus.  Biopsies were taken as was a scraping of the uterus wall and sent for testing.  

Last Friday night my back and neck pain were so bad that I went to ER.  A multitude of blood tests (all came back fine) and x-rays, CT scans were done with only recognition of Uterine polyps substantial swelling of my neck lymph nodes.  They were able to rule out lymphoma and leukemia.  The ER doctor advised they were not able to do a lot of tests there in the ER that should be done still by my GP and specialist. He told me he was sending the results and recommendations to my GP for follow up.  I waited 3 days for a call and again he did not.  I called him and left a message regarding the ER doctors follow up request and guess what…3 days later and still no call from him.   So here I sit waiting, still no answers.  I am so scared.