Post Op 1st visit

Teach76
Teach76 Member Posts: 354 Member
in Breast Cancer #1

Hello, friends

      I am looking for company this Thursday afternoon.  I have my post op visit with the surgeon, and my husband has to be out of town.  I probably will take my oldest daughter (23), but I am thinking of just going alone.  I was hoping for pCR, but the surgeon already called to tell me the neoadjuvant chemo did not get it all, but she took wide margins.  I would expect that this appointment will give me some more detail and the plan for radiation to come.

     I will be asking for a copy of the pathology report ( is this appropriate? ), and I plan to ask how the tumor changed pre/post chemo.  I had a feeling there was still something there even though the MRI showed nothing.  Both surgeons felt it was just fatty necrosis.  I was concerned that I finished chemo early November and with the complications of swelling (needed to be cleared by cardio in Dec) then the shingles (4 days before scheduled surgery in a Feb), that I was 17 weeks post chemo for surgery.  Should I ask for any further testing to see if it spread at this point, or would that be something down the line after radiation?

     I don't yet know about lymph nodes, but if she only took 2 I assume they were negative.

 

Thanks for the company - prayers for all!

Kathy

Comments

  • sonicboom
    sonicboom Member Posts: 8
    #2
    I feel for you

    I  know that going to appointments alone is lonely. I went to all of mine alone. But just know that you have a lot of people that care about you.

    Definitely get copies of your tests and pathology reports. It pays to have them to look at for reference. You will find that it is easy to forget the details.

     

  • lintx
    lintx Member Posts: 697
    #3
    sonicboom said:

    I feel for you

    I  know that going to appointments alone is lonely. I went to all of mine alone. But just know that you have a lot of people that care about you.

    Definitely get copies of your tests and pathology reports. It pays to have them to look at for reference. You will find that it is easy to forget the details.

     

    Hi Kathy

    Sounds like I'd better run the pink bus through the car wash for Thursday!  Of course we'll all go with you.  Not sure when, but you should have  a pet scan at some point.We are all on different treatment plans, so hard to guess. Ask your DR for clarity. See you on Thursday!  Linda

  • Momof4blessed
    Momof4blessed Member Posts: 5
    #4
    Copies of everything

    Since being diagnosed on Feb 25th, I have requested and received copies of EVERYTHING!!!  MRI, PET Scans, all the reports.  I have them in a folder called "My wild, crazy, emotional 2016 journey"

  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    #5
    Momof4blessed said:

    Copies of everything

    Since being diagnosed on Feb 25th, I have requested and received copies of EVERYTHING!!!  MRI, PET Scans, all the reports.  I have them in a folder called "My wild, crazy, emotional 2016 journey"

    Always get your pathology reports!

    Yes, yes, yes -- always get copies of any and all pathology reports, and ask your surgeon to go over them with you, so she can clarify any terms that might not make sense.

    Good luck with your visit, Kathy!

    Traci

  • Teach76
    Teach76 Member Posts: 354 Member
    #6
    The results are in . . .

     Surgeon was very pleased with the outcome and pathology report.  Residual disease - 2 spots each less than 1mm.  Lymph nodes negative (YEAH!!!!).  Final tally. ER+ 98%,  PR + but only 3%, HERS2 negative.  Grade 3, stage 2 ( taken pre-chemo ) .

        Now I will move on to radiation in a few weeks.  I know I will be back here learning more about this next phase of treatment.  Thank you, all, for your sharing and words of encouragement!

     Kathy

  • Pixie Dust
    Pixie Dust Member Posts: 424 Member
    #7
    Teach76 said:

    The results are in . . .

     Surgeon was very pleased with the outcome and pathology report.  Residual disease - 2 spots each less than 1mm.  Lymph nodes negative (YEAH!!!!).  Final tally. ER+ 98%,  PR + but only 3%, HERS2 negative.  Grade 3, stage 2 ( taken pre-chemo ) .

        Now I will move on to radiation in a few weeks.  I know I will be back here learning more about this next phase of treatment.  Thank you, all, for your sharing and words of encouragement!

     Kathy

    Good to hear

    Teach, finally good to hear good news with you. May the rest of your treatment also go well with you. Prayers and Hugs,   Pixie

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