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Us0417
Us0417 Member Posts: 9
in Ovarian Cancer #1

I am new to this forum. It was recommended to me that I find friends or people that are going through the same thing I am or have gone through the same thing.  I have stage 3 ovarian cancer and stage endometrial cancer. So not only did I get one type of cancer but I managed to get two. Is this normal ?  It is frustrating because I feel like I was given a death sentence and now I am fighting for my life. Is this normal? Chemo has taken my hair and now I get looks everywhere I go because I refuse to wear a wig.  How does everyone deal with this?  I am open for suggestions. 

Comments

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,506 Member
    #2
    Us0417, the boards go through

    Us0417, the boards go through periods of busy and quiet times.  I have noticed the Ovarian board has been quiet lately and I hope that it is because all the lovely ladies here are off living a wonderful life.  I just don't know.  

    I would also invite you to go to the Uterine chat board, another of the below the belt cancer, as it has been busy and they ladies might also be able to chime in.  

    While you are hit with multiple things at once, you are not alone.  I had both types of uterine cancer, the Type I ("typical garden variety"?) and Type II (uterine papillary serous carsinoma).   Here I am almost 4 years later and I still can't make sense this all.  

    Hugs

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    #3
    NoTimeForCancer said:

    Us0417, the boards go through

    Us0417, the boards go through periods of busy and quiet times.  I have noticed the Ovarian board has been quiet lately and I hope that it is because all the lovely ladies here are off living a wonderful life.  I just don't know.  

    I would also invite you to go to the Uterine chat board, another of the below the belt cancer, as it has been busy and they ladies might also be able to chime in.  

    While you are hit with multiple things at once, you are not alone.  I had both types of uterine cancer, the Type I ("typical garden variety"?) and Type II (uterine papillary serous carsinoma).   Here I am almost 4 years later and I still can't make sense this all.  

    Hugs

    Us0417,

    I, too, invite you over to the uterine board.  

  • Unknown
    Unknown
    #4
    ConnieSW said:

    Us0417,

    I, too, invite you over to the uterine board.  

    Us0417-Hi

    Me three with the UPSC, but treated like ovarian cancer.  I don't know, but I think being diagnosed with two similar types of cancer in this case, will be much different than one.  My cancer is stage 3c, grade 3 serous, which means I am getting taxol/carbo chemo for 6 cycles.  I think actually ovarian cancer is treated with the same stuff, only sometimes you might have more cycles?  I also read that ovarian cancer treatment is being opened up to new drugs that UPSC isn't allowed to use (yet).  Don't feel that it's a death sentence, anymore than any other aggressive cancer.  And yes, I lost my hair, but I find that people are more engaging to me, I don't typically wear anything on my head either, but a smile on my face.  They smile, I don't see the stares if there are any, and people seem genuinly friendly.  Please feel free to post away, if no responses here, then on the uterine board.  Hugs Nancy

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #5
    I agree with these ladies -

    I agree with these ladies - the Uterine board has been more active so come and visit us.  I also have UPSC which is treated like ovarian cancer except "when it isn't." 

    I am sorry you have to be here but the ladies here are wonderful. I don't know what I would have done without them.

    Love,

    Eldri

  • pandagypsy
    pandagypsy Member Posts: 113 Member
    #6
    WELCOME!

    Yes...........terrible diagnosis.......terrible to deal with.......but a death sentence?  Definitely NO! I felt the same way in 2009 being diagnosed with OC stage 4....I did have a reoccurrance in 2014, which was caught very early due to the diligence of keeping up with my followup appointments/scans. Everything is not "happy happy joy joy", as I still have periods of the "death sentence" thoughts......I'm due for a scan, so SCANITIS is setting in.  But I think of all the wonderful ladies on this site that are always there. I hope that you can find some peace & hope in the posts from all of us, the fighters & survivors.  My best to you.

  • kikz
    kikz Member Posts: 1,345 Member
    #7
    Welcome

    I too was diagnosed Stage III which I believe is most common.  I thought I would be dead in a few months.  My surgeon told me it's not a death sentence and I am still here six years later.  I have had two recurrences and have gone through chemo five different times.  We are still working on my second recurrence; I haven't been able to get to remission.  I last had chemo on December 2nd and am hoping for a long break depending on my numbers.  As far as the hair or lack of hair, if anyone had ever told me I'd go out in public bald, I wouldn't have believed them.  But honestly it's the least of my worries.  My bald head makes me feel like a warrior because I am indeed fighting for my life.  I have never gotten "looks" from people and I'm sorry you have.  I usually get smiles, a question or even a hug.  Rude people don't matter, ignore them.  If they have such a lack of compassion, I pity them.  Be proud and strong.  We are here for you.  We understand.

    Karen

  • Us0417
    Us0417 Member Posts: 9
    #8
    kikz said:

    Welcome

    I too was diagnosed Stage III which I believe is most common.  I thought I would be dead in a few months.  My surgeon told me it's not a death sentence and I am still here six years later.  I have had two recurrences and have gone through chemo five different times.  We are still working on my second recurrence; I haven't been able to get to remission.  I last had chemo on December 2nd and am hoping for a long break depending on my numbers.  As far as the hair or lack of hair, if anyone had ever told me I'd go out in public bald, I wouldn't have believed them.  But honestly it's the least of my worries.  My bald head makes me feel like a warrior because I am indeed fighting for my life.  I have never gotten "looks" from people and I'm sorry you have.  I usually get smiles, a question or even a hug.  Rude people don't matter, ignore them.  If they have such a lack of compassion, I pity them.  Be proud and strong.  We are here for you.  We understand.

    Karen

    Thank you

    Karen ,

    Thank you for the warrior thought. It means alot. It was funny I went to the supermarket last night and this little girl about 5-6 yrs old came up to me and tugged on my jacket. I looked down and said whats up. She said that I looked like her grandma did a few months ago and she missed her but wanted to know if I could give her a hug.  I looked at the dad (I guess that's who he was) and he shook his head yes. I gave this little girl such a hug. It felt so good. Dad came up to me and said thank you as it was his mom who recently passed away from cancer. That his daughter thought I looked just like her. I told him it wasn't a problem and that it actually made me smile. I came home and cried but they were happy tears to know that someone so small could have such an old soul.  So I think having the bald head has now taken on a new meaning for me. 

  • pam10
    pam10 Member Posts: 11
    #9
    kikz said:

    Welcome

    I too was diagnosed Stage III which I believe is most common.  I thought I would be dead in a few months.  My surgeon told me it's not a death sentence and I am still here six years later.  I have had two recurrences and have gone through chemo five different times.  We are still working on my second recurrence; I haven't been able to get to remission.  I last had chemo on December 2nd and am hoping for a long break depending on my numbers.  As far as the hair or lack of hair, if anyone had ever told me I'd go out in public bald, I wouldn't have believed them.  But honestly it's the least of my worries.  My bald head makes me feel like a warrior because I am indeed fighting for my life.  I have never gotten "looks" from people and I'm sorry you have.  I usually get smiles, a question or even a hug.  Rude people don't matter, ignore them.  If they have such a lack of compassion, I pity them.  Be proud and strong.  We are here for you.  We understand.

    Karen

    Hello

    Hello Karen, I was just reading your posts and I would like to ask you a few questions. My mom has just had her 1st recurrence of ovarian cancer. I was wondering what treatment you got the second time around? She got carbo taxol the first time. She has clear cell. Any help would be appreciated. Thanks so much!

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