cycle 5 done but not completed

Hey Cindy, All of the decision we have to make outside of the "norm" are not easy and it takes a lot of soul searching to reach one that is best for us.

Sorry you had to deal with that; but so very glad your nurses and  PA paid attention and made sure you stayed safe.

I hope your impacts from #5 are as mild as possible!

Love and Hugs,

Cindi

I was recently on a Carbo desensitizing program because I had a reaction twice to the Carbo.  Thy ran it over a 7 1/2 hr time frame.  it was mixed in 3 different patches each with and increased amount of Carbo in it.  Each bag had to be increased with faster drip 4 times (every 15 minutes0. The last bag was run at a normal rate for the last half, but still lasted for 3-4 hrs.  I did fine for 4 rounds and then on the last one I had a reaction 15 minutes into the full dose.  Since this was my 3rd reaction we decided tom leave this stuff alone and try something new the next time.    I flush, my heart rate and blood pressure rises and I get light headed.  I had hoped that the desencitizing program would work longer, but it did work for 4 rounds.  So that is an option that may work for you.   My chemo nurse said she was going to get someone that really cared and she came back with my doctor in tow in  few minutes.  he came back to check on me before I left and sent his PA and nurse to check on me too.  Hugs and prayers , Lou Ann

What a drag!  It does sound that your doctors are doing everything they can to give you the full dose with as little risk as possible, and that they are paying attention to you.  Treatment decisions are so difficult to make.  I hope you can make a decision you are at peace with sooner rather than later.

Chris

cindy0519 said:

Thanks everyone!

i am going to bit of Carbo desensitzing with Round #6. I wil take the steroid at home the day and night before (2 tablets once in the morning and once at night) they will also be doing the infusion over four hours rather than 30 minutes and I will be very well monitored in the hospital.  

I am not going to make any decision about doing a seventh cycle to get the remaining Carboplatin in unti after I see how cycle 6 goes   If i make it through reaction free i will then decide what to do about the missed Carboplatin       

Your support and comments help so much...thank you!!

 

 

For what it's worth, I always took steroids 12 hours before and woke up to take another dose during the night 6 hours before chemo and never had a problem.  Hope getting dosed before works for you, too!

I took a steroid pill the day before chemo and an iv infusion the day of, followed by a pill for three days afterward.

Love,

Eldri

Before treatment I only used the numbing medicine on the port site, nothing else. During treatment I was given the Dexamethizone, among lots of other meds, of course. Boy is that weird stuff. I felt very spacy and floaty, not really sleepy and could feel it within seconds of being started. (BTW, I also get some before CT scans as I am allergic to IV contrast solution.)

In any case, I never had any strange reaction to the carbo/taxol during infusion, for which I am thankful. They did tell me initially that I might have to stay overnight in the hospital if I did have a reaction, so I think you will be in good hands.