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Cubanito said:

Fox did you also do IL2

Fox did you also do IL2 treatment? If so how did it go for you?  I have gone one round 2 cycles. First cycle I received 10 of the 14 doses. Second Cycle only 4 and I checked myself out. I felt like the room was closing in on me and with missing doses I let it get the best of me and checked ouy, So out of a possible 28 doses I received 14. I guess the not knowing if its working was the worse part for me that and being strapped in with all the monitors etc... I am hoping I get good news in 2 months and will be able to do another round of IL2. From all the reading I have done it seems like it's the only treatment that has shown to actually cure some patients, granted the percentages aint all that great but hey cant blame a guy for dreaming he will be one of the lucky ones LOL. 

My above comment was for my IL-2 experience. I also did not tolerate alot of doses either. Last round of IL-2 was only 4 doses over 2 days. It took 3 months to recover from that. I understood how hard it might be and I stood up to the challenge. You will too. Just keep belief that your body will tolerate  anything they do to you. I'm 5 years with always something going on. But I am doing well. It is more of a chronic disease at this point. There are excellent advances in kidney cancer care. If you have read any of my posts, you'll know that I am really excited to be starting new treatments myself. We don't have to be cured although that would be nice.

Cubanito said:

Thanks Dutch. I actually have

Thanks Dutch. I actually have a very good Doctor that I like a lot. Gzood to hear you have 3 years and counting , that is exaclty the kind of stuff I like to read! 

Kidney removed, IL2 August - Nov 2013. Tumours halved. hideous side effects Il 2 stopped by Dr.

Sutent: cancer reduced but side effects unbearable accordng to Dr.

Inlyta: as with sutent, lack of appetite and strong fatigue led to collapse and hospitalization Mediation stopped

Now on a trial with Avastin. No side effects

Not dead and dont have much intention of doing so

being so close to death gives me a different perspective on the sunrise

Everyday is antique and unique

Cubanito said:

NED

Thanks for the welcome! i Have seen quite a few post with people stating they are NED. My question is what is NED? 

Best regards,

Luis 

NED= No Evidence of Disease.  He's everyone's best friend that everyone wants to see more often.