Journey beginning - emotional today.

2»

Comments

  • Kvdyson
    Kvdyson Member Posts: 790 Member
    #22
    Jacjac2 said:

    Chris, type of uterine cancer

    Had uterine stage 2c almost 7 years ago. Have not had any issue. They are calling it recurrent endometrial. The other was red used in test results is Adenocarconoma. Like I stated all new to me. I had a colonoscopy Nov 5, that is where it was discovered. Metastasized to several areas, colon, liver, and upper abdomen. 

    JacJac2

    I don't have much information to provide to you since this is only my first go-around with the monster but I did want to express that I am sending thoughts of healing and strength to you during this difficult time. Please let us know how you are doing.

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    #23
    Soup52 said:

    Journey beginning

    Your case sounds similar to mine. I have one more internal radiation and then will see oncologist on the 11th when I believe he will say I should get the port before radiation. You said you were getting treatment to prevent blood clots. I had the shots after the surgery, but nothing now. Blood clots are a big concern for me as I had a pulmonary embolism 8 1/2 years ago a week after surgery when I donated a kidney to my daughter. I'm not looking forward to the hair loss either. Im not sure if my treatment is considered a cure either. I am clear cell grade 3C.

    i have only posted here once before and probably in the wrong place as no one has acknowledged me.

    Sorry I missed you the 1st time

    You have joined a group of tough ladies.  I am glad you are here but sad that you had to come.  this is a great place for information, information and encouragement.  Hair doesn't mean much to me anymore. I have lost it 4 times now.  I do not like wigs at all, but there are some beautiful ones out there that look like natural hair.  For, me it is such a pick me up to go shopping and come home with a new hat.  My husband says he love me bald, says it makes me look sexy I thank him, but I think he must be blind.  

    Hugs and prayer, Lou Ann

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #24
    Soup52 said:

    Journey beginning

    Your case sounds similar to mine. I have one more internal radiation and then will see oncologist on the 11th when I believe he will say I should get the port before radiation. You said you were getting treatment to prevent blood clots. I had the shots after the surgery, but nothing now. Blood clots are a big concern for me as I had a pulmonary embolism 8 1/2 years ago a week after surgery when I donated a kidney to my daughter. I'm not looking forward to the hair loss either. Im not sure if my treatment is considered a cure either. I am clear cell grade 3C.

    i have only posted here once before and probably in the wrong place as no one has acknowledged me.

    Welcome to the club nobody

    Welcome to the club nobody wants to be a member of!!  I'm sorry we didn't see you before!!!  I'm 63 and have Stage II UPSC and had a total hysterectomy on September 30th.  Port was installed on October 26th with first chemo on October 27th.  My port site never healed and after two rounds of antibiotics, I had it removed on December 22nd.  I'm still going to wound care to try and get the port site healed.  I made it through three chemos before I had to quit because of severe side effects.  My oncologist couldn't find any other tumors so I was having the chemo as a preventative in case stray cancer cells were still floating around in my body.

    I have the opposite of you - my blood doesn't clot like it should so I have to be careful of the medications I take - nothing that will thin my blood any further than it is.  Did you have a total hysterectomy before radiation?

    Love, 

    Eldri

  • molimoli
    molimoli Member Posts: 514
    #25
    Welcome to information city

    With this group of ladies, seasoned or new ones ,I guarantee in no time you  will know more about lady Cancer than your doctor knows.The raw experiences are shared with no sugar coating so learn to take deep breaths and say hmmm ! often. We will be with you in spirit (not the ghosty kind) up the hills and down in the valleys, None of us can wrap our heads around this sneeky alligator but we hope some new smart treatment will help us to leave the water's edge and this alligator behind us.One day at a time my sister, that's how you wrap it,one day at a time.

    Welcome to all the newbies here.

    You are now one of us and we are hugging

    Nuff love ,Moli, whispering hope and hugging .

  • Northwoodsgirl
    Northwoodsgirl Member Posts: 571
    #26
    Emotional today

    I am NED since my last chemo Dec. 2010. I am very sorry to hear of you reoccurance! The emotional roller coaster is so hard to deal with. This discussion board is a sisterhood for us all even when we have survived years after our initial treatments. Something that helped me was listening to Bellaruth Naperstak's CDs of guided imagery. They are available to download on iTunes and also through Amazon. I still listen to them. ((Hug))

    I will keep you in my prayers! Please keep posting! 

  • TartanToes
    TartanToes Member Posts: 5
    #27
    Soup52 said:

    Hair loss

    i know the hair thing isn't my biggest concern. I just want to live! I am concerned about the lymphodema the dr said I would get but I don't believe I have yet. No one told me what to do about it and I know once you have it it won't really go away. Sorry, I'm a little vain and my legs are one of my better body parts, lol.

    I was fortunate

    Hi Soup and everyone!

    I was diagnosed with Stage IIIC endometrial cancer in the fall of 2013. I had a total hysterectomy and 19 pelvic lymph nodes removed. I was fortunate enough that I chose to join a lymphodema study that my oncologist is part of, so I had regular monitoring. I think what also may have helped was that I tried to be as active as my body would let me be while I was undergoing 6 months of treatment. I was able to continue to work during my treatment, although it was part-time. I have an office on the second floor, so I think doing the stairs helped, too. My worry during my treatment was neuropathy. I did a glutamine regime that was recommended by my medical oncologist that helped. I did develop some neuropathy in my toes, but it is very mild. The sisters here have some very good advice. So, I'd say that you're in pretty good hands.

Discussion Boards