roll call for those who are 5 years cancer free!

cathyK
cathyK Member Posts: 93
in Uterine/Endometrial Cancer #1

I know every one slowly goes away from this sight after they have gone through hell during doc visits chemo etc, I have been reminded that I am also one of these , I am here to encourage all, I had stage 4 grade 3 endometrial cancer, was told by first doctor I would not live 6 months with out operation and with operation I would not live 1 to 2 years, he was rude and arrogant , BUT and this is a big BUT, he DID get all the cancer when operatiing on me and DID give me the most up to date chemo, other than reminding me I woudl be dead in  1 to 2 years and better get my affairs in order, he DID operate, so on to firing him after chemo treatment and on to a new very very positive doctor , I have been cancer free chemo ended 0ct 30 2009 and I am still confused at the actuall dates you calculate, operation was june 2009 so almost 6 years cancer free? I am just glad to see  57 didnt think I would see 52! if your doc is not positive, is rude or arrogant, please please find another doctor, half the healing is in your mind, surround yourself with positive people and pray :) love ya all keep fighting !!! 

Comments

  • Annabella Rose
    Annabella Rose Member Posts: 59
    #2
    Thank you for your post!

    It is so Good to hear such a positive and encouraging post :) Thank you for taking the time to share it. God Bless you with continued Good health!

  • I_believe
    I_believe Member Posts: 8
    #3
    Hi Cathy, thats

    Hi Cathy, thats great!

     

    please share what you did to fight this beast.

     

    thank you

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #4
    I_believe said:

    Hi Cathy, thats

    Hi Cathy, thats great!

     

    please share what you did to fight this beast.

     

    thank you

    Thank you, Cathy, as you inspire me.

    I am so glad to see how well you are doing and I pray that you continue to thrive. So many of us have to come to grips with the real possibility of cancer progression. Thank you for giving us hope. Bless you, Cathy!

    Cathy

     

  • cathyK
    cathyK Member Posts: 93
    #5
    6 years and counting

    it has been 6 years cancer free, THANK YOU JESUS , just adding this in to encourage others going through endometrial cancer , off to enjoy many many more years cancer free years 

  • cathyK
    cathyK Member Posts: 93
    #6
    I_believe said:

    Hi Cathy, thats

    Hi Cathy, thats great!

     

    please share what you did to fight this beast.

     

    thank you

    fight

    well, I had a doctor who got all the cancer out, and gave me chemo only that is all I can say, he was very knoledgeable about new chemos and I had the strogest kind , he kept asking if I can not handle the chemo then he would cut it, it was bad but not devistating so kept it up for the 6 visits , do you have endometrial cancer ?

     

  • Unknown
    Unknown
    #7
    Thank you and good for you

    As I'm sitting home today from work having my post chemo pity party for one, I read your message and again it gives me hope.  I worry that my cancer isn't gone, or that if it is, it will come back, but your story makes me realize that some people do kick cancer.  Hugs Nancy

  • debrajo
    debrajo Member Posts: 1,095 Member
    #8
    so glad!

    I am five year out from chemo for UPSC as of last Oct.  I will never say I'm cured or that I've kicked cancer.  We all know it's lurking, but I will say I'll will give cancer a run for the money!

    So great to see you posting an well!  best, debrajo

  • molimoli
    molimoli Member Posts: 514
    #9
    encouraging positivity is a great service to all

    Hello Cathy k.  Thanks for your ray of hope post.The women here are hugging you for the lift.

    Now you spoke of" strong Chemo", but didn't mention if it was Carbo,cisplatin or taxol or combination,

    Someone seem to have asked ,but you didn't say.

    Are you ok with disclosing? Also if it was that strong how did you do with the side effects?

    I wish you continued blessings of NED.

    Moli with gratitude.

     

  • artist49
    artist49 Member Posts: 87
    #10
    5 year roll call

    5 and a half years since surgery - September 2010.   5 years since end of chemo -

    Feb, 2011.   Still cancer free - originally  diagnosed UPSC stage 4B with extensive

    lymph node involvement. I wish this roll call list   was longer!!

  • debrajo
    debrajo Member Posts: 1,095 Member
    #11
    artist49 said:

    5 year roll call

    5 and a half years since surgery - September 2010.   5 years since end of chemo -

    Feb, 2011.   Still cancer free - originally  diagnosed UPSC stage 4B with extensive

    lymph node involvement. I wish this roll call list   was longer!!

    Artist!

    So very good to see you dropping in to give us an up-date!  And of course, that you are still NED!  I wish the list was longer too, but I know of several that are doing fine, just taking a step back from cancer!  So, here's hoping to see the newbies continue with us when they reach NED!  Best, DebraJo

  • Northwoodsgirl
    Northwoodsgirl Member Posts: 571
    #12
    6 yr survivor

    I am also 6 year NED. Stage 2b endometrial cancer. Last chemo Dec. 31, 2009. I had taxol/carbo ( can't remember) sandwich protocol. Twenty eight external radiation and 3 brachy. I count my blessings daily. My 72 year old Mother was diagnosed 4 yrs before me, same stage and grade. She didn't live more than 4 months after her surgery... mets to her bones and adrenal glands. True that once we get out a way in our recovery and NED one tends not to visit this board as much but we think about the other women who fight cancer everyday. I think about all women who have had cancer everyday!!

  • pinky104
    pinky104 Member Posts: 574 Member
    #13
    Over 5 years out

     I guess I missed this thread last year.  I had surgery in May, 2010 for stage IVb UPSC, chemo thru most of Sept., 2010, and have been NED ever since.  My cancer was in the uterus, both ovaries, the omentum, and the small intestine.  My gallbladder was removed because of gallstones during the cancer surgery, and the appendix was also taken out as a preventative measure.  I was in the hospital for 6 days. I had a transfusion of two units of blood while there. I had 6 rounds of carboplatin and taxol with another blood transfusion halfway through chemo. 

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #14
    10 Years!

    Diagnosed through a routine hysterectomy in Sept 2005 with Stage 3a, Grade 2 Endometrial Adenocarcinomo (found in uterus, cervix and left ovary).  Staging surgery didn't reveal anything further but could not determine primary - doctor indicated that I would never be cured but that I was treatable.  Treated as ovarian.

    Recurrence found in biopsy in 2009 - removed mass in Feb 2010 which ended up negative but a positive lymph node.   No treatment just wait and see

    2014 - problems develope as a result of brachytherapy - hydrouteronephrosis - stent placement (requiring replacement every 3 months)

    2016 - surgery again for ureter reimplantment surgery and biopsy of mass - after extensive surgery to reimplant ureter (at last minute they could not do laproscopically) and a 5 hour surgery, unable to biopsy mass.  Part of mass they saw was only fatty tissue.

    But like Cathy indicated above, through the years after doctor retired, if the current doctor wasnt a good fit for me, I moved on and sought out a different doctor.  Case in point, in 2009 my one doctor said that I had a recurrence, that it couldn't be operated on, and if I had operation, I would probably end up with a permanent colostomy and he wanted me to start chemo right away.   Went to a different facility - doctor said he could remove the mass - which ended up being negative and only found one lymph node with microscopic cells and just took a wait and see approach since then.

     

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    #15
    Kaleena said:

    10 Years!

    Diagnosed through a routine hysterectomy in Sept 2005 with Stage 3a, Grade 2 Endometrial Adenocarcinomo (found in uterus, cervix and left ovary).  Staging surgery didn't reveal anything further but could not determine primary - doctor indicated that I would never be cured but that I was treatable.  Treated as ovarian.

    Recurrence found in biopsy in 2009 - removed mass in Feb 2010 which ended up negative but a positive lymph node.   No treatment just wait and see

    2014 - problems develope as a result of brachytherapy - hydrouteronephrosis - stent placement (requiring replacement every 3 months)

    2016 - surgery again for ureter reimplantment surgery and biopsy of mass - after extensive surgery to reimplant ureter (at last minute they could not do laproscopically) and a 5 hour surgery, unable to biopsy mass.  Part of mass they saw was only fatty tissue.

    But like Cathy indicated above, through the years after doctor retired, if the current doctor wasnt a good fit for me, I moved on and sought out a different doctor.  Case in point, in 2009 my one doctor said that I had a recurrence, that it couldn't be operated on, and if I had operation, I would probably end up with a permanent colostomy and he wanted me to start chemo right away.   Went to a different facility - doctor said he could remove the mass - which ended up being negative and only found one lymph node with microscopic cells and just took a wait and see approach since then.

     

    Long Term Survivors

    Thanks for posting. You are the ones that give all of us starting out the hope needed to deal with the treatments, doubts and every day challenges!

    Congrats on your survivals and thank you again for taking the time to post!

    Love and Hugs,

    Cindi

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #16
    Kaleena said:

    10 Years!

    Diagnosed through a routine hysterectomy in Sept 2005 with Stage 3a, Grade 2 Endometrial Adenocarcinomo (found in uterus, cervix and left ovary).  Staging surgery didn't reveal anything further but could not determine primary - doctor indicated that I would never be cured but that I was treatable.  Treated as ovarian.

    Recurrence found in biopsy in 2009 - removed mass in Feb 2010 which ended up negative but a positive lymph node.   No treatment just wait and see

    2014 - problems develope as a result of brachytherapy - hydrouteronephrosis - stent placement (requiring replacement every 3 months)

    2016 - surgery again for ureter reimplantment surgery and biopsy of mass - after extensive surgery to reimplant ureter (at last minute they could not do laproscopically) and a 5 hour surgery, unable to biopsy mass.  Part of mass they saw was only fatty tissue.

    But like Cathy indicated above, through the years after doctor retired, if the current doctor wasnt a good fit for me, I moved on and sought out a different doctor.  Case in point, in 2009 my one doctor said that I had a recurrence, that it couldn't be operated on, and if I had operation, I would probably end up with a permanent colostomy and he wanted me to start chemo right away.   Went to a different facility - doctor said he could remove the mass - which ended up being negative and only found one lymph node with microscopic cells and just took a wait and see approach since then.

     

    I agree - you give us all

    I agree - you give us all hope that this disease can, if not beaten, at least be managed. I think, as others have said, that the survivors tend to drift away from this board so it gets tilted towards those who have recurrence.  

    Please keep posting!!

    Love,

    Eldri

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