New member

I'm very sorry you have to join us but this is a wonderful, supportive place with a vast amount of information and help. So I'm glad you reached out. There are many on here with stage IV kidney cancer so you are definitely not alone. It's great that you have a good support system; that is so important. Wish you the very best results on next CT scan!

Hi Luis,

I just joined after finding out I have big tumors on each kidney last week. I think im still in shock over this news to tell the truth! I realy dont know anything about this situation, but I hope that the people here can help. 

How much does the treatment you mentioned cost? No health insurance here for me, looks like we are going to sell off our ranch and all my accumilated big toys, get back to the basics and set my wife up with some sort of a buisness she can manage alone. (worst to worst)

Regards

Tim

foroughsh said:

Wellcome to the board no one

Wellcome to the board no one wants to join!

I was diagnosed 18 months ago, stage 2 and 36 years old! I was shocked and couldn't believe I had in for almost 12 years meaning I had a cancerous tumor in my 2nd decade! It made me feel hopeless, no matter how Healthy life I had or being athlet and spends hous and hours on excercises the result that was the result. I can't reach out either , didn't tell my mama as I thought it would break her depart, didn't tell my family as I thought they would be sad, didn't tell my coworkers because I hated them to feel pity for me. Didn't even cry when my hubby was home just because I didn't want to hurt him  more or meantime wanted to prove him and myself I ciuld handle it

After a month I found this board, remmember myself crying for an hour when I was reading post and feedbacks,. It posted my first post and got positive, kind , energeric feedbcks from those who were going through the same thing.

I read success stories and found hope, we have some members who were diagnosed as stage four but now are NED for three years and some with stable mets.

It took me four,five months to finally open up with my hubby, he moved on as soon I got out of hospital as he deeply believes I am cure so he was shocked when I asked him, sit and listen to my emotions, That night I huged him and cried a lot, told him all my fears, from being a yound dead one to a girl never having the chance to have a baby, I am proud of my self to be finally able to open up, since then I feel more comfortable and we got closer. He read a book about how to cope with cancer and learned a lot from that book, now and then we talk and I tell him all my thoughts and fears , he tells me jokes and tell me stories about our eldery and makes me forget. I never told my mom or tge family or coworkers for the reason I wrote earlier.

After seven months I found out it's too hard to back on track without a therapist's help. It helped me a lot too. I came back to gym, enjoyed reading about different touristic destintions and researched a lot about the history, culture,architecture,.... Of our next destinatiion so it took my free time in a positive way, I booked a dance class, joined a book reading group, teach my mom how to work with computers, joined some charity groups, made delicious healthy foods,... All these thing keep my mind busy so I dn't have time to waste on negative,hopeless thoughts.hope it can give you a clue.

Forough

 

 

 

 

 

 

I can only relate in the sense that I too had kidney cancer, but luckily only a stage 1.  Others here will be able to identify with your specifics, so I wanted to reassure you, you came to the right place.  I also have a great support system at home, but I recently have found that since they've never experienced what I have, it's helpful to be on this forum and associate with those that have.

I'll keep you in my prayers and hope that your next scan will prove your efforts beneficial in beating the beast.

Best wishes, keep us updated on your progress.

Donna~

Pandabear1011 said:

Hi Luis...

Welcome...Although I can't relate to being Stage 4 (I am Stage 1 ). I will send positive vibes your way that the HDIL2 works wonders and you become a complete responder.

Luis, I'm stage 4. Almost 5 years. Not always easy. But...

We are LIVING with cancer. Not dying from it. Just stay tough. It's a life changing event, but we all are doing it.

mrou50 said:

Luis

Sorry to meet you this way your situation is much like mine, this is a great site for support and to share with people who know what you are going through thre is no judgements here either.  Feel free to share with us as we will with you.  This is a frustrating journey sometimes but as Stuart Scott said, no matter what happens cancer never wins.  Keep up the fight and stay in contact.

 

Mark

I was going to attempt to write to you about the emotional part of living with cancer since I lack the knowledge many of our members here have to offer you anything more  .  But after reading what Forough wrote, I feel she expressed so well how many of us feel and how we go about dealing with it and living our life. I felt totally identified with her thoughts and feelings so I subscribe to her writings!

Sorry to have to welcome you to this board but having said this, I can't put into words how good it has been for me to be a part of this family. 

Stay positive, let us know how you are doing. I hope your next check-up shows improvement with the treatments.

Luis, sorry you had to join us here.  As others have said, many people LIVE with cancer.  Like you and a lot of other people, I have a hard time sharing my feeelings, but after my diagnosis in 2014, I got better at it.  I was only stage I, and is hope I have beat cancer for good, but the whole episode was a wake up call for me about a lot of things in life, like loving more, hating less, laughing more and being angry less.  Stuff that used to bother me does not bother me any more.  It's great that you have a good support system.  You will like it here--I find this place very comforting.

Hi, Luis;

I've got three years in at Stage 4 and I'm doing pretty well.  Give the doctors a chance to see what they can do for you.  There's room for some optimism.

Best of wishes,

Dutch