Vipoma

VIPoma
VIPoma Member Posts: 1
edited March 2014 in Rare and Other Cancers #1
Does anyone have any information on VIPoma. I was diagnosed in 1996 after about six years of misdiagnosis. I had a liver transplant in June of 2001. I would really like to correspond with anyone who has this disease or know someone who does. Thank You very much

Comments

  • jenthefrogg
    jenthefrogg Member Posts: 2
    #2
    I am here and willing to talk. I have been misdiagnosed for a long time as well.
    jenthefrogg@yahoo.com
  • Unknown
    Unknown
    #3
    jenthefrogg said:

    I am here and willing to talk. I have been misdiagnosed for a long time as well.
    jenthefrogg@yahoo.com

    Similar to VIPoma called Gastrinoma

    I am just diagnosted with Gastrinoma MEN-1 and I have been misdiagnosed for 4 years waiting for addmission to hospital for treatment. Would like to speak with you ASAP and I hope you are still there.

  • Gulzar
    Gulzar Member Posts: 10
    #4
    unknown said:

    Similar to VIPoma called Gastrinoma

    I am just diagnosted with Gastrinoma MEN-1 and I have been misdiagnosed for 4 years waiting for addmission to hospital for treatment. Would like to speak with you ASAP and I hope you are still there.

    Gastrnoma

    It is slow growing tumour you can live a decade with treatment. I have Gastrinoma misdiagnosed for 10 years.

    https://www.smartpatients.com/conversations

     

  • Gulzar
    Gulzar Member Posts: 10
    edited May 2016 #5
    unknown said:

    Similar to VIPoma called Gastrinoma

    I am just diagnosted with Gastrinoma MEN-1 and I have been misdiagnosed for 4 years waiting for addmission to hospital for treatment. Would like to speak with you ASAP and I hope you are still there.

    PPI use

    Have you beenon PPI pills such as Protonix or Pantoprazole for GERD or acide.

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