Peripheral T cell Lymphoma shown in Skin first

mb2007
mb2007 Member Posts: 2
in Lymphoma (Hodgkin and Non-Hodgkin) #1

hello everyone

I'm the granddaughter of a newly dignosed NHL patient. 

My grandfather is still in the process of finding out which type of T cell lymphoma he has.

He has had a biopsy done which states simply "Cuteanous Lymphoma". Nothing more and nothing less. He has had a CT scan which showed an enlarged lymph node in his armpit.

He has had mutliple blood test all coming back normal.

this all started with two burn like scars that appeared in his shoulder. They are so small one could mess then , but the biopsy confirmed lymphoma.

 

no we are just waiting because the biopsy was not clear enough. He is scheduled for a bone marrow biopsy on Thursday.

Has anyone experienced Pheriphel T Cell Lymphoma this way ??

i have huge doubt about it just being plan Cuteanous Lymphoma . I have a bad feeling it's a lot worse.

 

please share your stories ! 

Comments

  • po18guy
    po18guy Member Posts: 1,508 Member
    #2
    What he probably has is known

    What he probably has is known as Cutaneous T-Cell Lymphoma (CTCL). Fortunately, it is a slow-growing variety and there are several methods used to combat it. The good news is that chemotherapy is not normally used, as not enough of it reaches the skin. Topical medications, UV-A light, and some novel IV drugs are used to combat it. Now, the picture changes if it has gone into his lymphatic system by way of the lymph nodes, but those nodes might just be enlarged due to all of the lymphocyte activity in the area - all of this involves his immune system, with the cancer actually being a mutated T-lymphocyte, which is a type of white blood cell.  

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #3
    po18guy said:

    What he probably has is known

    What he probably has is known as Cutaneous T-Cell Lymphoma (CTCL). Fortunately, it is a slow-growing variety and there are several methods used to combat it. The good news is that chemotherapy is not normally used, as not enough of it reaches the skin. Topical medications, UV-A light, and some novel IV drugs are used to combat it. Now, the picture changes if it has gone into his lymphatic system by way of the lymph nodes, but those nodes might just be enlarged due to all of the lymphocyte activity in the area - all of this involves his immune system, with the cancer actually being a mutated T-lymphocyte, which is a type of white blood cell.  

    Bleo

    I have read that Bleomycin is used topically against this in some cases. I do not know a lot about it against this strain of the disease, but you may want to ask about it.'

    I hope he receives a curative treatment,'

    max

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