Abnormal Pap smear on my 2nd post chemo check up

It's been a year since my chemo and radiation treatments ended in or about Feburary or March. I had a good first post treatment check up and Pap smear but last month for my second checkup and pap smear, I just got a letter saying to call his office because the Pap smear was abnormal and further action is required. I'm very upset right now. Does anyone have any encouraging words to help me through the night?

I have to wait till morning to call the office. I didn't get the mail until tonight.

Right along with the Christmas cards this letter from hell!

I can't even think about another internal or Pap smear because the last one hurt So bad! I asked him why It still bursts so bad inside my virgina and he said he didn't know but to him everything looked good inside and out and that should make me happy. But Now I'm wondering if the pain I had since the radiation is from cancer coming back. Why else would my Pap smear be abnormal? Scared!

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Comments

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    It is not unusual to get an

    It is not unusual to get an abnormal PAP smear.  It is not always cancer. There can be other reasons for it to come back that way.  I know you are worried, that is so natural, but don't panic.  Maybe this will give you a reason or why you have been having so much pain.  There could be something that your dr. couldn't see  that is the cause of the pain.  

    Hugs and prayers coming your way. Lou Ann

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    Lou Ann M said:

    It is not unusual to get an

    It is not unusual to get an abnormal PAP smear.  It is not always cancer. There can be other reasons for it to come back that way.  I know you are worried, that is so natural, but don't panic.  Maybe this will give you a reason or why you have been having so much pain.  There could be something that your dr. couldn't see  that is the cause of the pain.  

    Hugs and prayers coming your way. Lou Ann

    A letter? In the mail?

    I know you're worried, but I would think if they were really worried, they would have at least called - not send a flippin' letter!  That's just not even nice.  Give them a piece of your mind whenever you get in touch with them.  Try to take one day at a time and please please let us know as soon as you touch base with them.  As LouAnn says, Pap smears can be abnormal for many reasons.  And besides, I've heard they aren't very reliable in picking up a recurrence.   I know your mind travels to the dark side because mine would too.   It's just been too recent that you endured chemo and radiation - all to fresh in your mind. 

    Best,

    Suzanne

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member

    A letter? In the mail?

    I know you're worried, but I would think if they were really worried, they would have at least called - not send a flippin' letter!  That's just not even nice.  Give them a piece of your mind whenever you get in touch with them.  Try to take one day at a time and please please let us know as soon as you touch base with them.  As LouAnn says, Pap smears can be abnormal for many reasons.  And besides, I've heard they aren't very reliable in picking up a recurrence.   I know your mind travels to the dark side because mine would too.   It's just been too recent that you endured chemo and radiation - all to fresh in your mind. 

    Best,

    Suzanne

    I've had 2

    abnormal paps since treatment.  Doc not concerned.  They explained it to my satisfaction.  Try not to worry.  I agree with Suzanne that they could and should handle it better.  You tell them.

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    ConnieSW said:

    I've had 2

    abnormal paps since treatment.  Doc not concerned.  They explained it to my satisfaction.  Try not to worry.  I agree with Suzanne that they could and should handle it better.  You tell them.

    Annabella

    I don't have experience with that (yet!). Still going through treatments.

    However, I wanted to tell you something that my radiation oncologist is going to do for me. I will be having 5 brachytherapies starting mid-January. And, since I have painful penetration issues, he is going to numb my vaginal entry and walls with lidocaine before he does anything. Not sure if you remember, but I'm the one that uses Orajel for "personal" numbing.  My point is, if you have to get another exam, you can use a Q-Tip and apply Orajel right before your exam. I promise it will help. Or, ask your doctor to do the Lidocaine (or get some yourself.) Lidocaine takes a while to work so you would need to put it on in advance if you do it yourself.  Orajel works in a minute but doesn't last long so needs to be done right before. Can you tell I have done this a few times?!!! 

    I hope you were able to get some sleep. Cancer after-life is a challenge for us. I find myself wondering about every new pain these days and work to dismiss it before it takes over. Hopefully you will get good news and this will be yet another needless scare.

    Love and Hugs,

    Cindi

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    Not unusual

    Dear Annabella:

    It is not unusual that you got an abnormal pap smear especially since you have had radiation.    For one year, I got two back to back abnormal pap smears and they weren't too concerned about it.  This was just last year and many years after my treatment!    Your radiologist/onc will tell you that this happens.

    Other reasons to get abnormal pap smears besides having radiation treatment is if you use any type of vaginal creams 48 hours prior to your pap smear.

    I know how upsetting this can be when something says abnormal 

    Hang in there!

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    Kaleena said:

    Not unusual

    Dear Annabella:

    It is not unusual that you got an abnormal pap smear especially since you have had radiation.    For one year, I got two back to back abnormal pap smears and they weren't too concerned about it.  This was just last year and many years after my treatment!    Your radiologist/onc will tell you that this happens.

    Other reasons to get abnormal pap smears besides having radiation treatment is if you use any type of vaginal creams 48 hours prior to your pap smear.

    I know how upsetting this can be when something says abnormal 

    Hang in there!

    Hopefully

    your abnormal paps turned out to not be a problem.  Forgot to mention that after the 2 abnormals, mine has been ok.

  • Annabella Rose
    Annabella Rose Member Posts: 59
    ConnieSW said:

    Hopefully

    your abnormal paps turned out to not be a problem.  Forgot to mention that after the 2 abnormals, mine has been ok.

    Thank you for the encouraging

    Thank you for the encouraging words. I called this morning to make my ppointment. They Said they can fit me in on Dec.29th. I also asked to speak to the nurse and ask what does this all mean. I never had a abnormal Pap smear. The secretary said the nurse is in with a patient but she will give her my message and call me back today. 

    Surprise, she never called back

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member

    Thank you for the encouraging

    Thank you for the encouraging words. I called this morning to make my ppointment. They Said they can fit me in on Dec.29th. I also asked to speak to the nurse and ask what does this all mean. I never had a abnormal Pap smear. The secretary said the nurse is in with a patient but she will give her my message and call me back today. 

    Surprise, she never called back

    Not acceptable

    The nurse was the one who notified  me and immediately explained on the phone why I shouldn't let this upset me so I didn't worry for even one minute.  How cavalier to drop this on you and expect you to be in limbo for 2 weeks.

  • Lisa 00
    Lisa 00 Member Posts: 134 Member
    not enough cells

    Annabella,

    The last time I saw my gyn/onc he said he was stopping doing the pap smear.  He said that many, many times the smear came back as not enough cells because of the effects of internal radiation.  That it was just more of a hassle for everybody than a good diagnostic tool. 

    He also said that, in all his years as a gyn/onc, only once has he diagnosed a recurrence with a pap.  All other times there was bleeding that he could see that looked suspicious, then the pap confirmed what he saw. 

    I wouldn't worry a bit.  Sorry I didn't see this post sooner!

    Lisa

  • Annabella Rose
    Annabella Rose Member Posts: 59
    Lisa 00 said:

    not enough cells

    Annabella,

    The last time I saw my gyn/onc he said he was stopping doing the pap smear.  He said that many, many times the smear came back as not enough cells because of the effects of internal radiation.  That it was just more of a hassle for everybody than a good diagnostic tool. 

    He also said that, in all his years as a gyn/onc, only once has he diagnosed a recurrence with a pap.  All other times there was bleeding that he could see that looked suspicious, then the pap confirmed what he saw. 

    I wouldn't worry a bit.  Sorry I didn't see this post sooner!

    Lisa

    Thank you Connie and Lisa,

    I am so Thankful for your replys! You all have made this trial so much easer. After reading your posts, I feel I can enjoy the Christmas season not wondering if the cancer is back. For now I have some peace. When I have my doctor visit and go through another Pap smear, I'll deal with the matter further. I think the way my doctor and his staff handle the patients concerns are inconsiderate and with smile on their face.

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member

    Thank you Connie and Lisa,

    I am so Thankful for your replys! You all have made this trial so much easer. After reading your posts, I feel I can enjoy the Christmas season not wondering if the cancer is back. For now I have some peace. When I have my doctor visit and go through another Pap smear, I'll deal with the matter further. I think the way my doctor and his staff handle the patients concerns are inconsiderate and with smile on their face.

    I agree, Annabella.  The way

    I agree, Annabella.  The way your medical team handled this is inexcusable and should be brought to their attention.  One of our local hospitals advertises on tv that they don't make you go through unnecessary waiting so it's not like they don't know what they're doing to people.  They're all chasing the same dollar - OURS!  I am lucky in that my team gets back to me the same day and is sensitive to my feelings. 

    I am so glad your mind was given some peace.

    Love,

    Eldri

  • Annabella Rose
    Annabella Rose Member Posts: 59

    I agree, Annabella.  The way

    I agree, Annabella.  The way your medical team handled this is inexcusable and should be brought to their attention.  One of our local hospitals advertises on tv that they don't make you go through unnecessary waiting so it's not like they don't know what they're doing to people.  They're all chasing the same dollar - OURS!  I am lucky in that my team gets back to me the same day and is sensitive to my feelings. 

    I am so glad your mind was given some peace.

    Love,

    Eldri

    I found out today my second Pap smear came back abnormal

    I called again this morning to find out if my second pap smear came back and said yes, and it's again abnormal. The nurse said the doctor is sending me for a pet scan to see if it shows any signs of cancer, yikes!

    the nurse said not to worry, they just have to make sure. That's what they have told every step of the way in this journey and it usually turns out cancer. I hope it dosen't again. My husband has not been the same since the bout of cancer I finished up this past spring. He is showing signs of depression so bad that it's turning into a type of dementia. I have to keep a close watch on him because he is starting to forget so many normal activitys that it could be dangous. Like forgetting how to use the microwave and burning up a pretzel causing smoke and a horrible smell that woke me up at 1:00 in the morning. He just said he dosen't know why.

  • Kaleena
    Kaleena Member Posts: 2,088 Member

    I found out today my second Pap smear came back abnormal

    I called again this morning to find out if my second pap smear came back and said yes, and it's again abnormal. The nurse said the doctor is sending me for a pet scan to see if it shows any signs of cancer, yikes!

    the nurse said not to worry, they just have to make sure. That's what they have told every step of the way in this journey and it usually turns out cancer. I hope it dosen't again. My husband has not been the same since the bout of cancer I finished up this past spring. He is showing signs of depression so bad that it's turning into a type of dementia. I have to keep a close watch on him because he is starting to forget so many normal activitys that it could be dangous. Like forgetting how to use the microwave and burning up a pretzel causing smoke and a horrible smell that woke me up at 1:00 in the morning. He just said he dosen't know why.

    Annabella.   Since the paper

    Annabella.   Since the paper came back abnormal did they then test it for hpv?    I had two back to back abnormal paPs.   If it is abnormal  send it in for further testing of HPV.    My first one the HPV was negative but the second abnormal pap came back positive for one or more of the high grade HPV.   but the docs didn't seen too concern about it

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    Kaleena said:

    Annabella.   Since the paper

    Annabella.   Since the paper came back abnormal did they then test it for hpv?    I had two back to back abnormal paPs.   If it is abnormal  send it in for further testing of HPV.    My first one the HPV was negative but the second abnormal pap came back positive for one or more of the high grade HPV.   but the docs didn't seen too concern about it

    Don't be too fearful yet

    i, too, had 2 back to back abnormals.  They were tested for HPV and were negative.  Nothing else was done, I guess because my exams continued to be ok.  That was a couple years ago.

    Has your husband seen his physician?  I feel bad that you have so much on your shoulders.  Do you have other family to help?

  • SettledSue
    SettledSue Member Posts: 55 Member

    I found out today my second Pap smear came back abnormal

    I called again this morning to find out if my second pap smear came back and said yes, and it's again abnormal. The nurse said the doctor is sending me for a pet scan to see if it shows any signs of cancer, yikes!

    the nurse said not to worry, they just have to make sure. That's what they have told every step of the way in this journey and it usually turns out cancer. I hope it dosen't again. My husband has not been the same since the bout of cancer I finished up this past spring. He is showing signs of depression so bad that it's turning into a type of dementia. I have to keep a close watch on him because he is starting to forget so many normal activitys that it could be dangous. Like forgetting how to use the microwave and burning up a pretzel causing smoke and a horrible smell that woke me up at 1:00 in the morning. He just said he dosen't know why.

    I wonder why your doctor didn't order a biopsy before a PET scan

    When I had an abnormal pap a year after surgery my doctor did  a biopsy. It did turn out to be cancer but was very small and my doctors were able to treat it first by laser ablation and then with radiation. This was in the summer of 2013 and I have been NED since those treatments.  Good luck to you.  Sue

  • Abbycat2
    Abbycat2 Member Posts: 644 Member

    I wonder why your doctor didn't order a biopsy before a PET scan

    When I had an abnormal pap a year after surgery my doctor did  a biopsy. It did turn out to be cancer but was very small and my doctors were able to treat it first by laser ablation and then with radiation. This was in the summer of 2013 and I have been NED since those treatments.  Good luck to you.  Sue

    Annabelle, I am hoping for the best for you.

    Forgive my ignorance, but how is it possible to have a pap test when a woman no longer has a cervix? I no longer have one and it is my limited understanding that pap tests are used to assess cervical cancer.  I have not had one since I lost most of my female parts.

    Cathy

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,488 Member
    Abbycat2 said:

    Annabelle, I am hoping for the best for you.

    Forgive my ignorance, but how is it possible to have a pap test when a woman no longer has a cervix? I no longer have one and it is my limited understanding that pap tests are used to assess cervical cancer.  I have not had one since I lost most of my female parts.

    Cathy

    Cathy, I am so amused by the

    Cathy, I am so amused by the inconsistencies with all our treatments and follow up.  WTH?!  Right?  I have PaP tests every time.  Do to the brachytherapy it isn't always comfortable, but I know there are others going through worse.  (I think they are looking for atypical cells)

  • Annabella Rose
    Annabella Rose Member Posts: 59

    Cathy, I am so amused by the

    Cathy, I am so amused by the inconsistencies with all our treatments and follow up.  WTH?!  Right?  I have PaP tests every time.  Do to the brachytherapy it isn't always comfortable, but I know there are others going through worse.  (I think they are looking for atypical cells)

    I am confused by all this...

    Now I'm waiting to get the script for the pet scan in the mail and then I have to call and make an appointment. Then waiting again to get to the doctors to get the test results because my doctor dosen't give test results from pet scans over the phone. The waiting is a big cause of the stress we are all going through.

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member

    I am confused by all this...

    Now I'm waiting to get the script for the pet scan in the mail and then I have to call and make an appointment. Then waiting again to get to the doctors to get the test results because my doctor dosen't give test results from pet scans over the phone. The waiting is a big cause of the stress we are all going through.

    So sorry you have to go

    So sorry you have to go through all of this.  Waiting is the hardest part of this sometimes.  For me, once I know exactly what's going on my mind can start planning and I settle down.  I am sorry your husband is having such a hard time,  I do think that being a caregiver is a very hard path to be on.  You are both in my prayers, Lou Ann

  • SettledSue
    SettledSue Member Posts: 55 Member
    Abbycat2 said:

    Annabelle, I am hoping for the best for you.

    Forgive my ignorance, but how is it possible to have a pap test when a woman no longer has a cervix? I no longer have one and it is my limited understanding that pap tests are used to assess cervical cancer.  I have not had one since I lost most of my female parts.

    Cathy

    Pap with no cervix

    Cathy, I guess you could call it a vaginal swab. A sample is collected from the top of the vagina since uterine cancer often recurs there. Susan