1 year

myoung790
myoung790 Member Posts: 75
in Kidney Cancer #1

So, had follow up with Urologist yesterday and there is no evidence of cancer.  So, yay!  It's been one year and that is a huge relief as you all know.  

There are multiple cysts on my remaining kidney, one of which is pushing 5cm.  The septation is thin and he wants to keep an eye on it.  He doesn't see any reason why it would turn malignant, but continued scans are certainly in my future regardless.

Anyhow, I'm a 42 year old woman with little kids and there is uncertainty about Kidney function down the road.  For now, he says to enjoy life and live.  We will worry about issues if and when they arise. 

My mom has Polycystic Kidney Disease and we believe her mom had some form of it as well.  It's looking like I may be developing it as well.  

Anyhow, NED is a huge and I'm glad to hear those words, but my case is not going to be so cut and dry moving forward.  Let's hope my kidney continues to perform like a rock star!!

 

Melissa

Comments

  • APny
    APny Member Posts: 1,995 Member
    #2
    So glad to hear you're NED.

    So glad to hear you're NED. That's big! I too have some cysts on both kidneys (mine was a partial) that we're keeping an eye on. Cysts are very common so my onc said not to worry but they still need monitoring, which is a good thing.

  • Allochka
    Allochka Member Posts: 1,072 Member
    #3
    APny said:

    So glad to hear you're NED.

    So glad to hear you're NED. That's big! I too have some cysts on both kidneys (mine was a partial) that we're keeping an eye on. Cysts are very common so my onc said not to worry but they still need monitoring, which is a good thing.

    Congratulations with

    Congratulations with NED!

    Having small children definitely adds to our anxiety. This anxiety is understandable, but it also spoils our lives. Please try to follow your doc's advise and enjoy life and kids. What if this kidney function problem never happens? All this worry for nothing! If it does happen years from now  - you'll worry with it then, otherwise you just double the time spent worrying.

    And nobody said it will happen for sure! Let's hope for the best. You are being monitored, that's the main thing. Nothing will go uncontrolled.

    Once again - hugs for NED! 

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #4
    Allochka said:

    Congratulations with

    Congratulations with NED!

    Having small children definitely adds to our anxiety. This anxiety is understandable, but it also spoils our lives. Please try to follow your doc's advise and enjoy life and kids. What if this kidney function problem never happens? All this worry for nothing! If it does happen years from now  - you'll worry with it then, otherwise you just double the time spent worrying.

    And nobody said it will happen for sure! Let's hope for the best. You are being monitored, that's the main thing. Nothing will go uncontrolled.

    Once again - hugs for NED! 

    YAAY~~Melissa!!
     
    Is your

    YAAY~~Melissa!!

     

    Is your mother's polycystic kidney issue have symptoms? Or is it just something to keep an eye on?

    Hope you continue to enjoy NED! You deserve it.

    Hugs the little ones for me!

    Now R-E-L-A-X!!!!

    Jan

  • foxhd
    foxhd Member Posts: 3,181 Member
    #5
    Keep those years adding up!

    Good for you Mel. Have faith in your good kidney. My sister had only one kidney. My mom had kidney failure. I have cancer. Both were on dialysis when they died. My remaining kidney puts out numbers like a healthy 20 y. o. with 2 kidneys. Creatinine .8, GFR over 60. So we can do real good with one kidney. Keep it healthy. I also have a cyst that never changes. So just keep your eye on it.

  • foroughsh
    foroughsh Member Posts: 779 Member
    #6
    Congratulations, its the nest

    Congratulations, its the nest news someone can share, May your remained kidney works properly for many years to come.

     

  • nancybuck
    nancybuck Member Posts: 117
    #7
    Hooray

    This is awesome news. I am so happy for you. Now it's time celebrate the holidays with your little ones.

     

    Nancy

  • Dave418
    Dave418 Member Posts: 95 Member
    #8
    Nice!!! Happy for you!! NED

    Nice!!! Happy for you!! NED is always good news!!

    Dave

  • myoung790
    myoung790 Member Posts: 75
    #9
    Jan4you said:

    YAAY~~Melissa!!
     
    Is your

    YAAY~~Melissa!!

     

    Is your mother's polycystic kidney issue have symptoms? Or is it just something to keep an eye on?

    Hope you continue to enjoy NED! You deserve it.

    Hugs the little ones for me!

    Now R-E-L-A-X!!!!

    Jan

    My mom has had to have a 11cm

    My mom has had to have a 11cm cyst drained before, but overall her kidney function is fine.  She has high blood pressure which is related to the PKD, but other than that, no other major issues.  She has been relatively healthy.

    Her mother had hydronephrosis and we believe also had some other kidney issues.  

  • myoung790
    myoung790 Member Posts: 75
    #10
    Thank you all for the kind

    Thank you all for the kind words.  I am definitely happy with this and will continue live in the present.  Smile

  • mrou50
    mrou50 Member Posts: 389 Member
    #11
    Good news

    Congratulations on the great news, keep fighting the good fight.

    Mark

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