Facebook group

paul61 said:

Facebook Group

This is the URL for the Facebook group. https://www.facebook.com/groups/Csnesophagealcancer/

 

It is a private group. If you send me a friend request I can add you to the group.

 

Paul D. Adams

Could you add me? You can search me by my email address hot4moritzy@hotmail.com

llohman said:

Hi Paul,
I believe I sent a

Hi Paul,

I believe I sent a friend request to you over the last weekend. Please let me know if you don't see it.

 

Thanks.

LL

I have sent you a private message via CSN Mail with my contact information.

Paul

hot4moritzy said:

were you able to find me with

were you able to find me with that email address? 

I have sent you a private message with my contact information

Paul

paul61 said:

Facebook Group

This is the URL for the Facebook group. https://www.facebook.com/groups/Csnesophagealcancer/

 

It is a private group. If you send me a friend request I can add you to the group.

 

Paul D. Adams

My mother is suffering wiht Esophagus cancer. Pl. add me to this group. Can be benificial to me

Regards,

Mandar Mahajan

India

Email- mandarm77@gmail.com

AllisonM688 said:

facebook group

Can you add me to the facebook group?  My name is Allison Held Mosele.  My husband's surgery was unsuccessful as the tumor was outside the musclular wall and is wrapped around some important organs.  Currently looking for another course of treatment.

 

Allison,

I have sent a message to your Facebook account to send me a "friend" request and I can add you to our EC Facebook Group

Paul

Iatorf said:

FacebookGroup

can you please send me an invite - Joan Drisdale Powell

My husband has stage 2 and begins week 4 of chemo and daily radiation on Monday. We are trying to find out the best surgery options - full removal of his esophagus.

Thank you.

 

Hello, I am not part of the FACEBOOK group, although I know many of them that are on there.  The Ivor Lewis Minimally Invasive Esophagectomy pioneered by Dr. James D. Luketich at the University of Pittsburgh Med. Ctr. is totally laparoscopic.  It has the quickest recovery and the least morbidity.  Glad to hear your husband is Stage 2 and not a later stage.  My husband is now in his 14th year of remission without any recurrence.  We highly recommend going to a major hospital where the MIE is routinely used as their main surgery for Esophageal Cancer.  Paul 61 will be along soon and give you the info you need to join the group.  My husband I simply refuse to "tweet" or do "Facebook".  Otherwise, you would see me there.  Many of them know our story.  And before they moved to form a private facebook group we had great communication, sharing and caring.  I'm sure you will be helped greatly. 

Loretta Marshall, wife of William Marshall, diagnosis Adenocarcinoma at the GE Junction, EC Stage III (T3N1M0), Ivor Lewis Minimally Invasive Esophagectomy by Dr. James D. Luketich @ UPMC on May 17, 2003!

Hey!

i haven't been on this site since the 'drama' happened and the Facebook page was formed. I read that FB page daily.

i just came back onto this site as a friend of a friend was diagnosed, and I checked to see if this site was active again. I am so glad William and Loretta are going strong. That made my day.

if you still are having trouble accessing the FB site, send me a private message and I'll add you.i am Dani TR on FB and I'm holding up the leaning tower of Pisa in my profile pic.

but trust me, you won't get better advice than what Loretta posts here

Hi Loretta,

i just told the old CSN FB gang you say hi.

i cut and pasted the bottom of your above post, especially your famous dancing in the rain quote.

but I had a little chuckle. It's been that long ago since William was diagnosed you are now getting the decades wrong...lol! It was 2002, not 2012!  Isn't it wonderful  that you can have that 'great' mistake of mixing  the decades up!

 Good morning “Dodger”!

 You know my mama told me I should always say “thank you” when someone pays you a compliment.  So let me say “thank you” for remembering my husband and me.  You and I both “remember” the DRAMA back in Sept. of 2012 that resulted in the formation of the FB group.  I’m sure it’s good not to have someone critiquing your every word.  I miss the days when our “old gang” chimed in and ten or more would comment on the same patient and we really felt like one big family, all fighting the same villain, CANCER.  And never did I dream back then that I would switch roles with my husband and he would be the caregiver and I would be the STAGE IV Ovarian Cancer patient 10 years after his initial diagnosis in 2002.

 But never a day goes by that we don’t thank the Lord for 14 years of good health following his Minimally Invasive Esophagectomy.  And I am thankful that I’m still alive after my initial diagnosis of Peritoneal Carcinomatosis in 2012.  I remember “Billy” asking Dr. Conkling, “Should I say I am cured?”  To which Dr. Conkling replied, “I’d prefer you say you’re in remission.”  And so that’s what we say.  I make weekly visits to the oncology clinic.  Our “ministry” of encouragement is still going strong.  We never hesitate to discuss different cancer diagnoses with the other patients there.  They are always encouraged when they talk to a cancer patient who has lived longer than they expect to live.  I remember talking to an older lady who had been battling Ovarian Cancer for 8 years.  That was an encouragement to me.  And that’s what this whole site is supposed to be about--informing, encouraging, and lifting up the down trodden weighted down by the burden of cancer.  And so once more I thank you for remembering our former years together. 

 As you will notice, I am NOW the cancer patient, and as such, have chosen to incorporate my own remarks about my cancer with the knowledge and experience gained from being a caregiver to my husband who was diagnosed with Adenocarcinoma at the Gastroesophageal junction, EC Stage III (T3N1M0) back in 2002.  I cannot begin to name all the friends we have met, helped and prayed for during those years.  We’re still in touch with many of them.  Paul61 and JoelC are still here.  There may be other “old timers”, but Paul is faithful to respond often. 

 And who can forget “Sherri” and all her wonderful advice?  I always called her my “online doc!”  Who doesn’t need support, and that includes prayers?  And so I’m thankful for all those who were helped by us all those years.  And as long as I’m able, I’ll be checking in on the Esophageal, Peritoneal and Ovarian Cancer links to see if our experiences can help guide another lost soul along the way.

 And as William always liked to say, “I’m just one beggar telling another beggar where to find a piece of bread!”  And as long as I have life and energy, that will be my goal.  The lessons learned in life by unpleasant experiences stay with us the longest, do they not?

 And as we always said so often, “Life isn’t about waiting for the storm to pass.  It’s about learning how to dance in the rain.”  And so when you speak to the FB group, say hello from both of us.

 Wishing you and the whole FB group well,

 Loretta Marshall

 Wife of William Marshall, diagnosed in November of 2002, who had pre-op chemo of Carboplatin/5-FU and then the Minimally Invasive Esophagectomy by Dr. James D. Luketich at the University of Pittsburgh Medical Center on May 17, 2003.  (Other than our marriage date – a day we shall never forget because we felt we were on our second honeymoon, when he was pronounced cancer-free!) Thank God!

 _________________________________________________________________________

P.S.  A poem which speaks volumes.  Often things we never want to happen to us happen anyway.  And out of the midst of those sorrows come lessons in life that will help us weather other storms along the way and make us stronger.  Lessons learned in the school of hard knocks stay with us long after the pain has subsided.  Sometimes the pain doesn’t subside, but God gives us the strength to live WITH it!  Sometimes HE takes it away and we live to fight another day. 

 "Along the Road

 by Robert Browning Hamilton

  I walked a mile with Pleasure;
She chattered all the way,
But left me none the wiser
For all she had to say.

I walked a mile with Sorrow ;
And ne'er a word said she.
But oh, the things I learned from her
When Sorrow walked with me!"