Diagnosis

david54
david54 Member Posts: 164 Member
in Caregivers #1

My wife has a clear diagnosis-leiomyosarcoma. Rare form of smooth muscle cancer. PET scan reveals widespread metastasis. We are headed to Stanford Wednesday.

Comments

  • geotina
    geotina Member Posts: 2,111 Member
    #2
    David:

    I lost my husband, (like you lost your first wife), to colon cancer in 2012, 3 1/2 years after his diagnosis.  I am sorry for what you are now facing.  Hopefully the doctors at Stanford can be of some help to your wife.   Having young children in the home and caring for your wife and her immediate needs as she faces her cancer battle is unimaginable to me.  

    I wish you the best as you move forward with decisions that must be made.

    Tina

  • cheatinlil
    cheatinlil Member Posts: 197
    #3
    Keep us updated on your

    Keep us updated on your appointment tomorrow.  We are all here for you.  Sorry you are here.  :(

  • david54
    david54 Member Posts: 164 Member
    #4
    cheatinlil said:

    Keep us updated on your

    Keep us updated on your appointment tomorrow.  We are all here for you.  Sorry you are here.  :(

    Update

    Thank you for your concern-it does mean a lot to me.

    We were told that her cancer is inoperable, uncurable, we already are aware of that.

    My wife will be treated with a traditional chemotherapy, Doxorubicin and they want her in a clinical trial.

    So we go back to Stanford Monday so she can recieve her implantable port, and start her chemotherapy.

    One thing I have not disclosed (as far as I know) is that I was also an oncology nurse for over 10 years. I know the drugs, the side effects, the drill so to speak. That can work for me, and against me. The way it works for me is I knew the "Language" the oncologist was speaking. It works against me when I ruminate of what can happen.

    Thanks again for your responses, I appreciate it very much.

    David

  • HOPE610
    HOPE610 Member Posts: 28
    #5
    david54 said:

    Update

    Thank you for your concern-it does mean a lot to me.

    We were told that her cancer is inoperable, uncurable, we already are aware of that.

    My wife will be treated with a traditional chemotherapy, Doxorubicin and they want her in a clinical trial.

    So we go back to Stanford Monday so she can recieve her implantable port, and start her chemotherapy.

    One thing I have not disclosed (as far as I know) is that I was also an oncology nurse for over 10 years. I know the drugs, the side effects, the drill so to speak. That can work for me, and against me. The way it works for me is I knew the "Language" the oncologist was speaking. It works against me when I ruminate of what can happen.

    Thanks again for your responses, I appreciate it very much.

    David

    Many thoughts and prayers for

    Many thoughts and prayers for you and your wife.  I have been a caregiver for 5 1/2 years.  I am thankful for everyday.  His oncologist calls him a miracle.  I wish that I could offer something brilliant and insightful, but all I can really tell you is that you are not alone. 

    Take care.

Discussion Boards