my mouth sores

edreddog
edreddog Member Posts: 19 Member
in Head and Neck Cancer #1

My mouth sores or tongue sores as it bwere just won't go away! I'm at over 12 weeks and keep great oral hygene up as well as the salt and baking soda rinse,and even use a mouth sore rinse by ORGEL buy the damned thing is still here on the side of my tongue where the most cancer was. Nurse says cause I'm still cooking well I think I should be done! just checking if anyone else had experienced same as what I have read this crap should be gone by now. Thanks Ed

Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
    #2
    Ed....one of the members here

    posted about a new product....it's prescription, but maybe it would help. I've heard of a number of people who just can't seem to shake off the mouth sores....The site she gave is this:

    www.gelclair.com  Maybe check it out??

    p

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #3
    ed, i just want to say i'm

    ed, i just want to say i'm praying you find relief.  the side effects of tx are sometimes quite worse than the tx itself.  hang in there.

    God bless you,

    dj

  • ted-n-ellie
    ted-n-ellie Member Posts: 3
    #4
    My husband had terrible mouth

    My husband had terrible mouth sores.  I got him some liquid aloe vera.  It is safe to drink.  He would swish it around in his mouth and immediately had relief.  He is now 2 months from his last rad and other complications but he still swishes with the liquid aloe vera.

  • Barbaraek
    Barbaraek Member Posts: 626
    #5
    ted-n-ellie said:

    My husband had terrible mouth

    My husband had terrible mouth sores.  I got him some liquid aloe vera.  It is safe to drink.  He would swish it around in his mouth and immediately had relief.  He is now 2 months from his last rad and other complications but he still swishes with the liquid aloe vera.

    Aloe Vera juice

    My husband has been adding about 2 TBSP aloe vera juice (strawberry-kiwi) flavored to the water bottle he sips throughout the day. He is post treatment but still feels like the mouth tissue is "raw". As it is juice...not gel, he adds it to the water and finds it to be soothing.

    Barbara

  • edreddog
    edreddog Member Posts: 19 Member
    #6
    Barbaraek said:

    Aloe Vera juice

    My husband has been adding about 2 TBSP aloe vera juice (strawberry-kiwi) flavored to the water bottle he sips throughout the day. He is post treatment but still feels like the mouth tissue is "raw". As it is juice...not gel, he adds it to the water and finds it to be soothing.

    Barbara

    Thanks guys

    The GeLClair or time has finally did the trick as of a week now I have no mouth sores but still a little what I call mouth sore ghost pain but am way better,now dry mouth is the biggie have been perscribed Pilocarpine been on it about 2 weeks but no change. Thanks again everyone for your help

     

  • edreddog
    edreddog Member Posts: 19 Member
    #7
    Barbaraek said:

    Aloe Vera juice

    My husband has been adding about 2 TBSP aloe vera juice (strawberry-kiwi) flavored to the water bottle he sips throughout the day. He is post treatment but still feels like the mouth tissue is "raw". As it is juice...not gel, he adds it to the water and finds it to be soothing.

    Barbara

    Thanks guys

    The GeLClair or time has finally did the trick as of a week now I have no mouth sores but still a little what I call mouth sore ghost pain but am way better,now dry mouth is the biggie have been perscribed Pilocarpine been on it about 2 weeks but no change. Thanks again everyone for your help

     

  • wmc
    wmc Member Posts: 1,804
    #8
    Hang in there

    When you talk about treatment and had chemo and or radiation, 12 weeks is not that long. I never had to have chemo and radiation, just surgery. I was back at work in 10 weeks. It took six months to a year to be back as normal as I can be. Recovery is messured in months instead of weeks. Just think back and you will see you have come a long way. You will get there.

    Bill

  • Barbaraek
    Barbaraek Member Posts: 626
    #9
    edreddog said:

    Thanks guys

    The GeLClair or time has finally did the trick as of a week now I have no mouth sores but still a little what I call mouth sore ghost pain but am way better,now dry mouth is the biggie have been perscribed Pilocarpine been on it about 2 weeks but no change. Thanks again everyone for your help

     

    Glad to hear

    it is getting better! Those mouth sores are the worst! My husband is in the same boat with the dry mouth now. He is getting ready to enroll in a clinical trial that uses electrodes to simulate acupuncture to improve dry mouth...hopefully we will see some improvement. I'll keep everyone posted. meanwhile I hope the pilocarpine kicks in and works for you. From what I read it can take a very long time for saliva to return.

     

    barbara

  • ocmark
    ocmark Member Posts: 26
    #10
    Barbaraek said:

    Aloe Vera juice

    My husband has been adding about 2 TBSP aloe vera juice (strawberry-kiwi) flavored to the water bottle he sips throughout the day. He is post treatment but still feels like the mouth tissue is "raw". As it is juice...not gel, he adds it to the water and finds it to be soothing.

    Barbara

    Aloe Vera Juice

    Hi Barbara

    Where do you get aloe vera juice?

  • Barbaraek
    Barbaraek Member Posts: 626
    #11
    ocmark said:

    Aloe Vera Juice

    Hi Barbara

    Where do you get aloe vera juice?

    You can get it on Amazon

    This is the kind we get...

    http://www.amazon.com/Ultimate-Aloe-Strawberry-Kiwi-Juice/dp/B0013BHGES

    My husband mixes it with his water bottle and drinks it throughout the day. You have to be careful to limit the amount you drink per day because it can cause diarrhea - but if your on pain meds that are constipating...it may all balance out. Also we get ours from a nutritionist who gets it wholesale and then offers it to us at a slightly reduced cost than what you can find on amazon.

    Barbara

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