Roll Call For UPSC only

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  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    Newly diagnosed with UPSC

    I'm Eldri Z. from Green Bay, WI.  I was diagnosed October 15, 2015 with Stage 2 UPSC at St. Vincent Regional Cancer Center at the age of 63.  I had a total hysterectomy on September 30th, robotically assisted Da Vinci, and walked out of the hospital the next morning. Prior to surgery my CA125 was 14.  I am having a port installed on October 26th with chemo starting on the 27th - six chemo treatments, three weeks apart.  My chemo nurse said, with the port, it will take 3 to 4 hours.  As far as they could tell, using biopsies, X-ray and CT scans, it hadn't spread.  My gynocologist/oncologist told me without chemo I had a 50/50 chance of making it five years without reoccurrence.  With it, he gave me an 80% chance......Chemotherapyville, here I come!!

  • trinoz
    trinoz Member Posts: 8
    Stupid UPSC

    Hi there ladies. Don't remember the last time I shared...a while I'm guessing. I had my surgery Nov 12. UPSC 3A.  The tumour had almost gone through the uterine wall. Turned out I had a small tumour on my ovary as well and positive washings. Luckily that meant I had access to the ovarian cancer drugs that otherwise i would have had to pay a lot for here in Australia.

    My surgery left me with pretty bad nerve damage to my left leg meaning I've been dependant on pain meds ever since. Not sure what part neuropathy plays in that. The top of my thighs and groin have been numb ever since and I get lots of shooting pains all over the place. Anyhow, I've been NED for the past 3 years however a few months ago during a checkup the speculum thingy came out with blood on it. I was sent to a larger hospital for another investigation. Blood again. I may have a fistula. Evidently it can happen with the brachytherapy so it's been put in the "wait and see" department. I don't notice any discharge. Then, about 2 months ago I noticed some small lumps on my upper thigh. Then a few weeks later I noticed a hard lump in my inguinal lymph node. i have an ultrasound tomorrow. 

    Generally speaking I rarely think about the cancer. Lately however lumps and bumps have made me more vigilant than normal. That said, if indeed this is a recurrence, I take heart from the stories of all you other brave women who have been through recurrences, more surgery and treatment and are still here. 

    Down here in Australia I've never come across anyone else with this cancer although my oncologist says she has had other patients. So ladies thanks for sharing and for those newly diagnosed, the treatment is very doable and there is life afterwards even if with a slightly altered perspective.

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    trinoz said:

    Stupid UPSC

    Hi there ladies. Don't remember the last time I shared...a while I'm guessing. I had my surgery Nov 12. UPSC 3A.  The tumour had almost gone through the uterine wall. Turned out I had a small tumour on my ovary as well and positive washings. Luckily that meant I had access to the ovarian cancer drugs that otherwise i would have had to pay a lot for here in Australia.

    My surgery left me with pretty bad nerve damage to my left leg meaning I've been dependant on pain meds ever since. Not sure what part neuropathy plays in that. The top of my thighs and groin have been numb ever since and I get lots of shooting pains all over the place. Anyhow, I've been NED for the past 3 years however a few months ago during a checkup the speculum thingy came out with blood on it. I was sent to a larger hospital for another investigation. Blood again. I may have a fistula. Evidently it can happen with the brachytherapy so it's been put in the "wait and see" department. I don't notice any discharge. Then, about 2 months ago I noticed some small lumps on my upper thigh. Then a few weeks later I noticed a hard lump in my inguinal lymph node. i have an ultrasound tomorrow. 

    Generally speaking I rarely think about the cancer. Lately however lumps and bumps have made me more vigilant than normal. That said, if indeed this is a recurrence, I take heart from the stories of all you other brave women who have been through recurrences, more surgery and treatment and are still here. 

    Down here in Australia I've never come across anyone else with this cancer although my oncologist says she has had other patients. So ladies thanks for sharing and for those newly diagnosed, the treatment is very doable and there is life afterwards even if with a slightly altered perspective.

    trinoz

    Nice to meet you.  I'm hopeful that all of this checks out to be something other than cancer for you!

    Thanks for your post.  It's nice to hear from all of the ladies that have been there done that and are still thriving.

    Please come back and let us know your prognosis.

    Love and Hugs,

    Cindi

  • Deidre297
    Deidre297 Member Posts: 4
    Brooklyn Member

    I was diagnosed April, 2014 with stage 2 and did a total hysterectomy, three radiation sessions, and five chemo treatments. Six months later, there are nodules in my left lung. I'm again doing chemo and have recently been fitted with a PleurX system. I'm being treated at Sloan Kettering and am 66. Thank you for posting all your reassuring stories and especially those involving foods that help. 

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    Deidre297 said:

    Brooklyn Member

    I was diagnosed April, 2014 with stage 2 and did a total hysterectomy, three radiation sessions, and five chemo treatments. Six months later, there are nodules in my left lung. I'm again doing chemo and have recently been fitted with a PleurX system. I'm being treated at Sloan Kettering and am 66. Thank you for posting all your reassuring stories and especially those involving foods that help. 

    Oh gosh, Deidre297! So sorry

    Oh gosh, Deidre297! So sorry for the recurrence. I'm glad you found us. We are all here for each other.

    Please let us know how you are doing as you join those of us in chemo and those that have been there done that.

    Take care,

    Cindi

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    Deidre297 said:

    Brooklyn Member

    I was diagnosed April, 2014 with stage 2 and did a total hysterectomy, three radiation sessions, and five chemo treatments. Six months later, there are nodules in my left lung. I'm again doing chemo and have recently been fitted with a PleurX system. I'm being treated at Sloan Kettering and am 66. Thank you for posting all your reassuring stories and especially those involving foods that help. 

    Did you have CT scans

    Did you have clean CT scans of your lungs after surgery?  I also have Stage II UPSC and my doctor told me they will watch my lungs very carefully since that's often the first place it spreads.  I had my first chemo on October 27th and have had two CT scans of my lungs.

    Take care,

    Eldri

  • Deidre297
    Deidre297 Member Posts: 4

    Did you have CT scans

    Did you have clean CT scans of your lungs after surgery?  I also have Stage II UPSC and my doctor told me they will watch my lungs very carefully since that's often the first place it spreads.  I had my first chemo on October 27th and have had two CT scans of my lungs.

    Take care,

    Eldri

    Thank You

    Thank you for your encouraging postings. The second treatment went well, but I had nausea for a few minutes for three days. I did have a CT Scan done before the Pleurx was put in and will have an Xray done because the fluid amounts have been less than 100cc. I am breathing normally and hope the fluid amounts continue to decrease. I'll continue to visit the site, as reading the various posts help me to better cope with the minor discomfort that I encounter. I also want to read some of the  dietary changes that other members have made and the recipes that they have shared. I find that sitting during treatments and staying awake help me get through them easily. Drinking plenty of fluids is easy, but getting it out afterward is always challenging. I've started to include celery at lunch, and this sometimes helps. I've always had a problem with retention unless I sit for long periods with my legs elevated. I'd like to find other foods that actually increase outflow whether or not I'm on my feet for extended periods. 

  • pinky104
    pinky104 Member Posts: 574 Member
    Deidre297 said:

    Thank You

    Thank you for your encouraging postings. The second treatment went well, but I had nausea for a few minutes for three days. I did have a CT Scan done before the Pleurx was put in and will have an Xray done because the fluid amounts have been less than 100cc. I am breathing normally and hope the fluid amounts continue to decrease. I'll continue to visit the site, as reading the various posts help me to better cope with the minor discomfort that I encounter. I also want to read some of the  dietary changes that other members have made and the recipes that they have shared. I find that sitting during treatments and staying awake help me get through them easily. Drinking plenty of fluids is easy, but getting it out afterward is always challenging. I've started to include celery at lunch, and this sometimes helps. I've always had a problem with retention unless I sit for long periods with my legs elevated. I'd like to find other foods that actually increase outflow whether or not I'm on my feet for extended periods. 

    Nausea

    I was given a prescription for Emend which I had to take two days before each new round of chemo and continue it on the first day of chemo.  It was supposed to prevent nausea and vomiting, and that's exactly what it did.  I never had any problems.  It was a little scary one time when my pharmacy ran out of it, as I'd waited until the last moment to fill it, but another pharmacy across town had it.  Maybe you can ask your oncologist for a script.

  • libby.sparks
    libby.sparks Member Posts: 12
    USPC

    Hi DebraJo

    Debra, Vidor, Texas, 57.6 years at dx.,UPSC 1a/b, grade c, treatment at M D Anderson in Houston, six rounds Taxol/Carboplatin, five rounds of internal radiation. As of May 14th, CA125 is 15.8, NED 4 years.   Just UPSC ladies for now.  

    Libby Sparks

    Age at Dx: 58 yrs

    Stage IVB; No lymph node involvement. No myometrial involvement. But mets to bladder, bowel, omentum, diaphragms. All cancers were resected and left with "clear" margins. Interestingly, one of my maternal aunts died from Leiomyosarcoma; and three maternal great aunts died from uterine cancer. My mother had a hysterectomy at age 40. I wonder if she would have also been affected with endometrial cancer. 

    Radical surgery/debulking Johns Hopkins Baltimore MD

    Chemo in progress. Completed 4/6 cycles

    CA125 prior to surgery/chemo 1218; CA125 was 9 on 12/7/15 (just prior to chemo cycle 4)

     

    The recurrence risk with USPC is 50-80%. So, I'm thinking about what will be available if/when there is recurrence. I have been struck by a shift in cancer treatment to immune-mediated therapy (Herceptin, Opdivo, HIV and poliovirus to treat blood cancers).

    I came across a research paper published by the GYN Onc team at Yale (Dr. Alessandro Santin) using a monoclonal antibody (MAB) that modifies EpCAM (epithelial cellular adhesion molecule). Apparently EpCAM activity unravels in several epithelial cancers. Dr. Santin's research used metastatic peritoneal tissues from women with USPC. Clinical trials have not been done humans yet. This MAB is called Solitomab. I found another study using IMMU-132 in humans, currently clinical research phase 1 and 2 (safety efficacy). 

    I contacted Dr. Santin to offer my tissues for their studies. He offered me a second opinion consultation. I am seeing him on Feb 12. I'm excited to learn about Solitomab. I pray that we can all survive long enough to be offered an effective MAB. My understanding is that immunotherapies such as MAB therapy modifies the body's natural immune activity, that is they stimulate natural killer T cells activity that target cancer cells, but do not kill normal cells. Pretty encouraging.

    Anyway i welcome the results of your survey about the women with USPC. We are rarer and have a much poorer prognosis than type I uterine cancer patients. We have to stick together. 

     

    Take good care, Debra

    Libby

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member

    USPC

    Hi DebraJo

    Debra, Vidor, Texas, 57.6 years at dx.,UPSC 1a/b, grade c, treatment at M D Anderson in Houston, six rounds Taxol/Carboplatin, five rounds of internal radiation. As of May 14th, CA125 is 15.8, NED 4 years.   Just UPSC ladies for now.  

    Libby Sparks

    Age at Dx: 58 yrs

    Stage IVB; No lymph node involvement. No myometrial involvement. But mets to bladder, bowel, omentum, diaphragms. All cancers were resected and left with "clear" margins. Interestingly, one of my maternal aunts died from Leiomyosarcoma; and three maternal great aunts died from uterine cancer. My mother had a hysterectomy at age 40. I wonder if she would have also been affected with endometrial cancer. 

    Radical surgery/debulking Johns Hopkins Baltimore MD

    Chemo in progress. Completed 4/6 cycles

    CA125 prior to surgery/chemo 1218; CA125 was 9 on 12/7/15 (just prior to chemo cycle 4)

     

    The recurrence risk with USPC is 50-80%. So, I'm thinking about what will be available if/when there is recurrence. I have been struck by a shift in cancer treatment to immune-mediated therapy (Herceptin, Opdivo, HIV and poliovirus to treat blood cancers).

    I came across a research paper published by the GYN Onc team at Yale (Dr. Alessandro Santin) using a monoclonal antibody (MAB) that modifies EpCAM (epithelial cellular adhesion molecule). Apparently EpCAM activity unravels in several epithelial cancers. Dr. Santin's research used metastatic peritoneal tissues from women with USPC. Clinical trials have not been done humans yet. This MAB is called Solitomab. I found another study using IMMU-132 in humans, currently clinical research phase 1 and 2 (safety efficacy). 

    I contacted Dr. Santin to offer my tissues for their studies. He offered me a second opinion consultation. I am seeing him on Feb 12. I'm excited to learn about Solitomab. I pray that we can all survive long enough to be offered an effective MAB. My understanding is that immunotherapies such as MAB therapy modifies the body's natural immune activity, that is they stimulate natural killer T cells activity that target cancer cells, but do not kill normal cells. Pretty encouraging.

    Anyway i welcome the results of your survey about the women with USPC. We are rarer and have a much poorer prognosis than type I uterine cancer patients. We have to stick together. 

     

    Take good care, Debra

    Libby

    Libby

    So glad you joined the group. I hope your treatments continue to keep your CA125 numbers low! AND cancer free!

    Please continue to share your information. That truly is exciting!  And, you are right... not enough of us out there yet to get the big research.

    Love and Hugs,

    Cindi

  • Deidre297
    Deidre297 Member Posts: 4
    pinky104 said:

    Nausea

    I was given a prescription for Emend which I had to take two days before each new round of chemo and continue it on the first day of chemo.  It was supposed to prevent nausea and vomiting, and that's exactly what it did.  I never had any problems.  It was a little scary one time when my pharmacy ran out of it, as I'd waited until the last moment to fill it, but another pharmacy across town had it.  Maybe you can ask your oncologist for a script.

    Thank You...

    Thanks for your suggestion Pinky104. I'll check this with my oncologist as I had nausea for a week after the third treatment. I'm due to have the fourth next Wednesday. Last month, I felt better when I drank a half hour after I ate, but that led to constipation. Next I tried taking one generic GasX pill and that worked well for a couple of days. Finally, I decided to eat something every time I felt nauseous, and I was fine. An X-ray showed that the fluid had cleared from my lung, so the PleurX catheter was removed a month ago. It was great being able to shower without having to be extra careful. I hope everyone remembers to savor their happy moments.

  • Delia1969
    Delia1969 Member Posts: 13
    Deidre297 said:

    Thank You

    Thank you for your encouraging postings. The second treatment went well, but I had nausea for a few minutes for three days. I did have a CT Scan done before the Pleurx was put in and will have an Xray done because the fluid amounts have been less than 100cc. I am breathing normally and hope the fluid amounts continue to decrease. I'll continue to visit the site, as reading the various posts help me to better cope with the minor discomfort that I encounter. I also want to read some of the  dietary changes that other members have made and the recipes that they have shared. I find that sitting during treatments and staying awake help me get through them easily. Drinking plenty of fluids is easy, but getting it out afterward is always challenging. I've started to include celery at lunch, and this sometimes helps. I've always had a problem with retention unless I sit for long periods with my legs elevated. I'd like to find other foods that actually increase outflow whether or not I'm on my feet for extended periods. 

    Hi Deirdre ❤️

    Hi Deirdre,

     

    ive just read of your recurrence, and I wanted to tell you I'm sorry for what you're going through, and ask how you are doing. Are you still in treatment?

    what kind of chemo did they give you this time? Carbotaxil again? 

    i took cannabis (edibles & vaping) during my chemo, & never had nausea. Fortunate to be in California. Maybe you can get some where you are?

    I hope the treatment has been effective. My heart goes out to you, and I wish you strength and healing.

    ❤️ 

    Delia

     

  • Delia1969
    Delia1969 Member Posts: 13

    USPC

    Hi DebraJo

    Debra, Vidor, Texas, 57.6 years at dx.,UPSC 1a/b, grade c, treatment at M D Anderson in Houston, six rounds Taxol/Carboplatin, five rounds of internal radiation. As of May 14th, CA125 is 15.8, NED 4 years.   Just UPSC ladies for now.  

    Libby Sparks

    Age at Dx: 58 yrs

    Stage IVB; No lymph node involvement. No myometrial involvement. But mets to bladder, bowel, omentum, diaphragms. All cancers were resected and left with "clear" margins. Interestingly, one of my maternal aunts died from Leiomyosarcoma; and three maternal great aunts died from uterine cancer. My mother had a hysterectomy at age 40. I wonder if she would have also been affected with endometrial cancer. 

    Radical surgery/debulking Johns Hopkins Baltimore MD

    Chemo in progress. Completed 4/6 cycles

    CA125 prior to surgery/chemo 1218; CA125 was 9 on 12/7/15 (just prior to chemo cycle 4)

     

    The recurrence risk with USPC is 50-80%. So, I'm thinking about what will be available if/when there is recurrence. I have been struck by a shift in cancer treatment to immune-mediated therapy (Herceptin, Opdivo, HIV and poliovirus to treat blood cancers).

    I came across a research paper published by the GYN Onc team at Yale (Dr. Alessandro Santin) using a monoclonal antibody (MAB) that modifies EpCAM (epithelial cellular adhesion molecule). Apparently EpCAM activity unravels in several epithelial cancers. Dr. Santin's research used metastatic peritoneal tissues from women with USPC. Clinical trials have not been done humans yet. This MAB is called Solitomab. I found another study using IMMU-132 in humans, currently clinical research phase 1 and 2 (safety efficacy). 

    I contacted Dr. Santin to offer my tissues for their studies. He offered me a second opinion consultation. I am seeing him on Feb 12. I'm excited to learn about Solitomab. I pray that we can all survive long enough to be offered an effective MAB. My understanding is that immunotherapies such as MAB therapy modifies the body's natural immune activity, that is they stimulate natural killer T cells activity that target cancer cells, but do not kill normal cells. Pretty encouraging.

    Anyway i welcome the results of your survey about the women with USPC. We are rarer and have a much poorer prognosis than type I uterine cancer patients. We have to stick together. 

     

    Take good care, Debra

    Libby

    Hi Libby

    Hi Libby,

    im jus checking in to see how you are doing. Did you finish your treatment? 

    Sending strength and fortitude.

    love, Delia

  • Delia1969
    Delia1969 Member Posts: 13
    trinoz said:

    Stupid UPSC

    Hi there ladies. Don't remember the last time I shared...a while I'm guessing. I had my surgery Nov 12. UPSC 3A.  The tumour had almost gone through the uterine wall. Turned out I had a small tumour on my ovary as well and positive washings. Luckily that meant I had access to the ovarian cancer drugs that otherwise i would have had to pay a lot for here in Australia.

    My surgery left me with pretty bad nerve damage to my left leg meaning I've been dependant on pain meds ever since. Not sure what part neuropathy plays in that. The top of my thighs and groin have been numb ever since and I get lots of shooting pains all over the place. Anyhow, I've been NED for the past 3 years however a few months ago during a checkup the speculum thingy came out with blood on it. I was sent to a larger hospital for another investigation. Blood again. I may have a fistula. Evidently it can happen with the brachytherapy so it's been put in the "wait and see" department. I don't notice any discharge. Then, about 2 months ago I noticed some small lumps on my upper thigh. Then a few weeks later I noticed a hard lump in my inguinal lymph node. i have an ultrasound tomorrow. 

    Generally speaking I rarely think about the cancer. Lately however lumps and bumps have made me more vigilant than normal. That said, if indeed this is a recurrence, I take heart from the stories of all you other brave women who have been through recurrences, more surgery and treatment and are still here. 

    Down here in Australia I've never come across anyone else with this cancer although my oncologist says she has had other patients. So ladies thanks for sharing and for those newly diagnosed, the treatment is very doable and there is life afterwards even if with a slightly altered perspective.

    Hi Trinoz

    hi Trinoz,

    how are you doing? What were the results of your checkup of the lumps ?

    i hope you're doing well!

    love,

    delia

  • Delia1969
    Delia1969 Member Posts: 13
    Port39 said:

    Upsc stage 3c

    I am currently UPSC stage 3c at the age of 39. I was diagnosed 02/27/2015 and had a robot hysterectomy. My ca125 started in the 200's and with the chemo (taxol/carbo) my numbers seem to drop but the second I miss a week of treatment the ca125 doubles. What is a good way to help my immune system not take such a dive? Sneaky cancer that UPSC is got past my dr during surgery and is in lymph nodes at my left hip and slows me down.

    Hi Port 39. How are you now?

    Hi,

    i haven't been on this site in a while, so I'm just seeing your post from last year. How are you doing? I really hope your treatment did its job & you are flourishing. 

    I was diagnosed Stage 3B1 about a month before your dx. I had six rounds carbotaxol & 28 rounds external pelvic rad after my full hysterectomy. Age 45 at time of my dx. 

    i finished treaatment in Sept 2015 & so far so good. I pray the same is true for you!

    love, delia

  • Delia1969
    Delia1969 Member Posts: 13
    deanna14 said:

    Diagnosed September 2008 at

    Diagnosed September 2008 at 39 years old with Stage IIIC mixed serous papillary and endometriod. 25 external pelvic rad, 3 brachy rad, 6 Taxol\Carbo chemo. I am still NED.

    How are you Deanna?

    Hi Deanna,

    i hope you're doing well. Still NED I hope?

    i was diagnosed Jan 2015 Stage IIIB1, age 45. 

    Full hyst, 6 rounds carbotaxol, 28 external pelvic rad. Am NED now. Unfortunately my surgeon failed to test my CA 125 before my hysterectomy, so I have nothing to compare my currents numbers to, but they're in normal range.

    I'd love to hear how you're doing now!

     

    best wishes, 

    delia

  • libby.sparks
    libby.sparks Member Posts: 12
    Good morning DebraJo.

    Good morning DebraJo. Responding to the USPC roll call. 

    Libby

  • libby.sparks
    libby.sparks Member Posts: 12
    artist49 said:

    UPSC

    I am  65 now and live in NJ.

    I was diagnosed at Sloan Kettering with UPSC at age 61 in September. 2010. My stage was

    4B, grade 3 and cancer was found all over pelvic area  and in all 40 lymph nodes tested. I

    had a hysterectomy which was optimal and then entered a clinical trial at Sloan. 4 months

    of carbo. ixabepilone  and avastin  and then continued with avastin for maintenance till

    October 2013, I have been NED since Feb. 2011.   My ca125 was 53 at diagnosis and is

    currently 1.

    Now for the rest of the story -   In may 2012 I was tested and found to be BRCA 2 positive.

    ! was told  by  the genetics counselor at Sloan that being BRCA  positive can result in longer

    remissions - esp. BRCA 2.

    But, I'm not taking any chances with a horrific diagnosis like mine. I flew to Chicago  to learn about

    diet from Dr. Block. I flew to Durango, Colorado  to become the patient of  the famed naturopath there.

    She counsels me on the phone by monitoring my lab tests. She also OKs my diet.

    I feel great but every CT scan brings on monumental anxiety.  I have a normal life back and

    fear I will lose it again.

    If anyone is interested, I will post my super anti cancer AM smoothie.

     

    diet and naturopath

    Good morning 

    I was also diagnosed with USPC stage 4B (August 2015). Hysterectomy debulking and 6 cycles carbo/taxol. Initial CA125 1218. CA125 fell to 26 after the first chemo; CA125 prior to the 6th chemo cycle is 7. Like you, I am petrified about the results of my post chemo CT (this Wednesday morning).

    I am trying to do everything in my power to reduce recurrence risk (not sure that's even possible). I've visiting "The Truth about Cancer", and am becoming obsessive about diet...clean, no sugar, avoiding chemicals for cleaning/dry cleaning. There aren't as many women with stage 4B to consult. 

    I'd love to get to know you, and am happy to discuss my experience. 

    Have a great day!

    Libby

     

     

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member

    Good morning DebraJo.

    Good morning DebraJo. Responding to the USPC roll call. 

    Libby

    Hi Libby - Did you learn

    Hi Libby - Did you learn anything new when you went to your consultation earlier this month?

    Looking forward to hearing from you!

    Love and Hugs,

    Cindi

  • libby.sparks
    libby.sparks Member Posts: 12

    Hi Libby - Did you learn

    Hi Libby - Did you learn anything new when you went to your consultation earlier this month?

    Looking forward to hearing from you!

    Love and Hugs,

    Cindi

    the visit at Yale was

    the visit at Yale was helpful. I learned about tumor genetic characterization, personalized circulating tumor DNA (ctDNA), whereby a blood test is developed for the individual person based on the DNA shed from the tumor. The rise in ctDNA precedes a rise in CA125 by 6 months; and CT evidence of tumor recurrence by 7 months. Furthermore, personalized treatment plan is constructed based on the individual patient's tumor genetics. The genetic survey looks at every protein encoding segment of 312 known oncogenes for genetic mutations. Each person's tumor has it's own unique "signature". My tumor genetic results are pending. I will go back for a visit with Dr Santin at 3 month intervals for now.  

    I was disappointed that we did not discuss diet, fasting, exercise. As I understand from recent reading, maintaining low blood sugar "starves" the cancer and helps keep it in check. Sweating has also been reported as helpful; 30 minutes of moderate exercise daily should be good. I have read that fasting is. The fasting regimen could be flexible, for example 16-18 hours (no food from 6 PM to 8 or 10 AM) or restricting caloric intake every other day to 500 calories. 

    There is so much new information to take in and process, eh? I suspect that most of us with USPC would grab onto any strategy that could avoid recurrence.