Question about positioning for radiation therapy
I went yesterday for the simulation in preparation to receiving radiation therapy. We did this earlier, in May, with me in a prone position in prep for neoadjuvant chemoradiation to treat a low rectal tumor, but then found out via PET scan that I was stage 4 with a 1.5 cm lesion in the liver, and we went with 8 rounds of chemo, Folfox plus Avastin, instead. The treatment shrank the rectal tumor so that the last CT scan reported,"Previously identified rectal mass is not well seen on this exam and may reflect favorable treatment changes." The liver met had also shrunk from 1.5 to 1 cm. However, when I met with the colorectal surgeon a week or so ago, he did a digital exam and could still feel remnants of the rectal tumor. He and the medical and radiation oncologists met and suggested that we delay surgery and try to shrink the tumor futher via chemoradiation. So I'll be getting the radiation while wearing a portable 5FU pump 24/5 for 5 1/2 weeks.
The radiation oncologist asked yesterday if I had trouble lying in a prone position. Because of a rather pronounced case of scoliosis, the result of childhood polio, being in a prone position for more than a few seconds is doable, but extremely uncomfortable and the port doesn't help the situation. So we did the simulation in a supine position and will do the radiation in that position. From several medical journal reports I've read, the supine position, with a full bladder, is being used more frequently now, with no major problems of bladder or small bowel involvement/damage than happens in the prone position and is actually proving to have some benefit in that, the face -down position is hard for many patients to maintain for any length of time, and so is subject to being not consistently reproducible and prone to randon set-up errors.
I'm assuming that positoining will not have any effect on most of the possbile side effects resulting from damage to the bowel lining, etc.. However, I was all psyched up for having beams aimed at my rear and suffering "sunburn" in my seating area. Now I'm wondering just what effects having the beams aimed at my belly will have. Have any of you experienced this face-up positioning?
Grace
Comments
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Radiation position
I was laying on my back for radiation, aimed at a tattoo they had made during prep. Expierienced some bunn burn,
which was resolved with RADIA GEL. THE gel is available at Wallmart. I needed a resection anyhow. But here I am,over
5 years later and NED. Hard to beat those results!!! Good Luck to you !
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Prone for me
Sorry I can't help you, as I had my radiation in the prone position. The only problem I had was the pressure on my port, as that got a bit uncomfortable. They had a cut out area for my ponderous stomach, that was good idea for us rolly polly folks.
I just wanted to wish you luck, and pray that your side effects are mild.
Keep in touch. We miss hearing from you.
Sue - Trubrit
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It IS hard to beat those results!danker said:Radiation position
I was laying on my back for radiation, aimed at a tattoo they had made during prep. Expierienced some bunn burn,
which was resolved with RADIA GEL. THE gel is available at Wallmart. I needed a resection anyhow. But here I am,over
5 years later and NED. Hard to beat those results!!! Good Luck to you !
That's wonderful! I hope my results are as good :-) Was your tattoo a real tattoo with needles, Danker? They marked me with markers, put some tape over them and told me they should be OK as long as I don't scrub them, but I can't imagine they'll still be there when I start treatment in a week; the tape already came off and the marks are fading fast.
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Me.....againlizard44 said:It IS hard to beat those results!
That's wonderful! I hope my results are as good :-) Was your tattoo a real tattoo with needles, Danker? They marked me with markers, put some tape over them and told me they should be OK as long as I don't scrub them, but I can't imagine they'll still be there when I start treatment in a week; the tape already came off and the marks are fading fast.
I know you aimed your question at Dan, but I had to have my say (of course).
I had stickers and they worked fine for the six week treatment. A couple got replaced, but with regular (weekly) scans of my body, they knew just where to place them. I was careful with them, though. Still, I had many a bath, as that was sooooo soothing to my poor injured behind; and they still didn't fall off.
Good luck!
Sue - Trubrit
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They had the tableTrubrit said:Prone for me
Sorry I can't help you, as I had my radiation in the prone position. The only problem I had was the pressure on my port, as that got a bit uncomfortable. They had a cut out area for my ponderous stomach, that was good idea for us rolly polly folks.
I just wanted to wish you luck, and pray that your side effects are mild.
Keep in touch. We miss hearing from you.
Sue - Trubrit
set up with one of those belly boards when I had the simulation back in the spring when they had me in the prone position. The radiation therapist saw my skinny body and told me to ignore the hole- it was for something I didn't have. .
Thanks for the good wishes. I've read about the awful time you had on the radiation and hope I don't duplicate your experience! Maybe I can get through this round as well as I got through the first 8 rounds of the Folfox and Avastin. It wasn't exactly a breeze, but nowhere as bad as I'd thought it might be, either, thank goodness. Once more, I'll prepare for the worst and hope for the best.
Grace
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Two of my stickersTrubrit said:Me.....again
I know you aimed your question at Dan, but I had to have my say (of course).
I had stickers and they worked fine for the six week treatment. A couple got replaced, but with regular (weekly) scans of my body, they knew just where to place them. I was careful with them, though. Still, I had many a bath, as that was sooooo soothing to my poor injured behind; and they still didn't fall off.
Good luck!
Sue - Trubrit
fell off after only one shower, but I think it's because of where they are- close to my hipbones, so they're subject to rubbing whenever I pull my pants up or down. I'll have to call and ask if I should touch up with a marker or something where the marks have faded so badly, since they said it would be a week before they called me back in for treatment.
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