Surgery not doable to fix the problems I've been having with prolapse (ostomy related, not cancer re

ron50 said:

G'day mate

   I am sorry to hear of all the problems you are having. You know my history so I am not surprised that you are having problems. The serious nature of the cancer surgery , time and gravity have done a job on you. My brother who is now 70 has had a history of ulcerative colitis ahd proctitis since his late twenties. Last year he suffered a prolapse and they virtually had no choice but to build him a complete new fundamental orrifice. He was lucky being a male that he did not have extra plumbing sitting on top of everything to complicate matters. His surgery went 'very well'according to the surgeon BUT he is still not recovered simply because it was so invasive . He is still taking it easy . He wants to do some long trips with his 4x4 and van but so far has not felt up to it. What I am hinting at is perhaps they are right and surgery may be the worst outcome for you. Over the years I have noticed that you are a pretty tough cookie and that you have endured a lot of physical and stress related pain. Fom my expierience I would strongly advise against going on any of the opiates for pain. I am just into my second week of the taper to with drawer from oxycodone . I was on 80mg a day for over 18 months . My neph said I was either suffering hyper algesia or had become immune to the pain killing effect of the oxy. Either way I am looking at 32 weeks to get off them at 5mg a day a fortnight. The withdrawel is not so bad but just changing the dose slightly seems to have put me into a cycle of dihorreah and constipation. The former I can deal with the latter causes me a lot of trouble. If you can get thru with excercise and perhaps a pain management specialist it may be the best way to try. I know how depressing constant pain is on top of all the other crap in life. Sending you a big cyber hug and wishing you luck, Ron.

Hey Ron, Thanks for the compliment, I have a high tolerance for pain and most days it's just become a part of my day as background "noise".  Someone will say something and I'll say "oh yeah it does hurt, I didn't notice".  Two things working against me, I have an addictive personality so oxycodone use is out.  I realized I was getting addicted after the last surgery.  Luckily I recognized it.  And morphine does nothing for me unless it's in pill form.  Percocet does nothing at all in any form.  And the plumbing is a definite pain in the neck!  That's the biggest problem in all of this, radiation plays a role in that.  Thanks for the hug! I'm just looking for some kind of normal that doesn't involve thinking every time I'm going to sit somewhere and dealing with the consequences if I didn't think hard enough.  Also this stupid job is killer even though we have ergonomic seats.  There has to be a way, I can't imagine this is going to be my life for 30 more years.  I went to the physical therapist today and they want me to try various things and they were right, it seriously hurts!!!!!!!!!  lol  Holy carp (that's for your pictures) Ouch!!! That's all. PS you're still always my hero.  The one good thing about the ostomy, no constipation.  You know you're desperate when your biggest caveat is that you no longer get constipated but poop through a hole in your abs.