Clinical trial update

I am glad that your tumors are at least stable.  That is something.  I hope that the other turns out to be the simplest of things .  I have had several spots that they called lesions show up on the CT scan. They were always in places where there had been a tumor that had disappeared.  I also have 3 dark spots that show up but are nothing.  Praying for the best for you as you go forward wi this trial.  Hugs and prayers, Lou Ann

Anne, great to hear your tumors are stable.   I just had a PET scan and found mine to be stable also!    Still a dilemma but stable.   

I will be meeting with the urologist and my gyne onc in Novembet to discuss my upcoming surgery.  They aren't removing the mass. I am getting a ureter re implant surgery and at that time my gyne onc will take a biopsy of the mass 

sending you hugs Anne.  It is hard to be in between stuff.   Lol about the abs!   I haven't found mine!

my best to you

Kathy

molimoli said:

Our love is not conditional on you pulling off fast miracles

Anne my darling brave warrior , to whom we are thankful for all the guts you continue to show ,Remember this is a journey you/we are on ,there will be winding roads ,up hills, valleys  4 way stops and also fuelling stations when we are out of strength and courage. We know that you are not doing this for self only dear, we got that from the beginning and will remember your contribution to our hopes of understanding and conquering this lurking alligator for the rest of our days.

 This is a tiny set back, I am confident you will get your mojo back in no time, the wonderful side of the coin we see  is that you dared and continue to dare and continue to keep picking fights with UPSC.If the doctors learn something new from your boxing rounds, its a win win for us or the generations to come.Brave doesn't quite describe you for putting your body through the rigor Thanks to the Creator for you and the likes of you.

Remember  Helen said we will be doing the whack-a mole,we are.

Nuff said today, coming straight from my scardy cat heart. Moli.

I wish the news was a bit stronger, but so glad you are stable. And, that you can continue in the trial.

I think about you every day. I'm grateful for your strength, attitude and fortitude (to name a few!).

Thank you for updating us. I'll continue to pray that this round of stuff works!

Love and Hugs.

Cindi

Editgrl said:

I agree with Helen.  Stable

I agree with Helen.  Stable is good.  And the fact that you can continue with your trial is better.  Hoping for even better news in the future.

and prayers for a good outcome. Stable is definitely positive and I am hoping with continued participation in the trial that you kick cancer's butt. I am your cheerleader rooting for you, praying for you each step on your journey. You have been an inspiration for me, my friend! 

Warmly,

Cathy

So happy to hear the good news that you are stable.  Hopefully the one issue will not be an issue at all. While I do not have UPSC cancer I have the sister of it MMMT and any help on new drugs will one day help others.  I have started thinking about donating my body to UTSW Cancer center when I die but have not made the final determination yet.  They could possibly use it to do more testing and research but hopefully that is a long way off.  Congratulations again.  You, along with all the ladies, are in my prayers. trish

AWK said:

The latest is I am moving on to a different trial

My biopsy of the new met showed abnormal cells with the type of malignancy undetermined.  Ugh!  And scans from Monday revealed my mets are starting to grow again.  So I am out of the trial and now moving into a different trial targeting one of my more prominent genomic mutations.  I am mentally up for the change and grateful to work with a team who looks for plan b without needing to.  

My anemia has been very challenging to manage. i had two transfusions last week.  All of my counts dove including white blood cells.  Hopefully my break in treatment will help me rebuild a bit.  And gain some weight back.  Lately it has been melting off.  And while I am happy to be down a couple of sizes I miss having energy!

i will continue to keep you girls posted!  Still Thriving!  Anne

Thanks for showing us what being a warrior means. Yes stable is good news, as with this alligator we have to be thankful for small mercies.

I agree a  change of treatment and approach may be the best thing at this point.Nothing try ,nothing gets done. For us and generations to come you have given so much of you .We admire and thank you.

I am sorry beyond descriptive words that things did not quite go as hoped but it could be that a breakthrough is around the bend, stay strong my sister, and yes resolve to thrive amidst the raging waters.

Please relay our thanks and admiration to your husband for staying in the ring watching your back as you battle this beast , may the creator grant him a fresh dose of strength on every breath he takes. and reward him with you by his side for many years to come .For this I pray ,Hope,and Wish.

I am humbled by your grace Anne. Plenty love. Moli.

AWK said:

The latest is I am moving on to a different trial

My biopsy of the new met showed abnormal cells with the type of malignancy undetermined.  Ugh!  And scans from Monday revealed my mets are starting to grow again.  So I am out of the trial and now moving into a different trial targeting one of my more prominent genomic mutations.  I am mentally up for the change and grateful to work with a team who looks for plan b without needing to.  

My anemia has been very challenging to manage. i had two transfusions last week.  All of my counts dove including white blood cells.  Hopefully my break in treatment will help me rebuild a bit.  And gain some weight back.  Lately it has been melting off.  And while I am happy to be down a couple of sizes I miss having energy!

i will continue to keep you girls posted!  Still Thriving!  Anne

I am sorry to hear your clinicial trial did not work out but hopefully, moving into a different one will work.  I too battle anemia and the lack of energy makes it tough to just get everyday things done.  You are in my thoughts, Anne.  

Take care,

Eldri

AWK said:

The latest is I am moving on to a different trial

My biopsy of the new met showed abnormal cells with the type of malignancy undetermined.  Ugh!  And scans from Monday revealed my mets are starting to grow again.  So I am out of the trial and now moving into a different trial targeting one of my more prominent genomic mutations.  I am mentally up for the change and grateful to work with a team who looks for plan b without needing to.  

My anemia has been very challenging to manage. i had two transfusions last week.  All of my counts dove including white blood cells.  Hopefully my break in treatment will help me rebuild a bit.  And gain some weight back.  Lately it has been melting off.  And while I am happy to be down a couple of sizes I miss having energy!

i will continue to keep you girls posted!  Still Thriving!  Anne

Like all of us, I was hoping for better results for you, but as you say, you have a great team that you are working with and there are options.  You have my utmost admiration in how you are battling this disease and are an example of grace and strength.  I am so grateful for women like you who participate in these trials, to be so giving of yourself.  May your battle-worn body bounce back during this break and move on to the next trial with renewed strength and resolve.

You are in my thoughts always,

Chris

DrienneB said:

Different Trial, Still Thriving Anne!

Anne,

So glad you are being guided by such an on-the-ball team of phsicians and you've got your fighting spirit. Thin, but thriving! Will pray that your immune system gets bolstered by the iron, that your counts go up, that you can gain some energy back and that the next trial will be well-handled and successful. Inspired by you and praying for you.

-jane

and I was hoping the trial would continue to work for you-but with no adverse side effects. You are blessed with an incredible team of doctors who are forward thinking. With much needed rest, you will be stronger and better able to handle another clinical trial targeting your genome mutation. Wishing you well!

With Hugs and Warm Wishes,

Cathy