Just diagnosed with stage 1

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Comments

  • DYAN172
    DYAN172 Member Posts: 20
    medic1971 said:

    Hope all is going for you!

    Hope all is going for you!  i know your big day is coming up so please let me know how it goes so I have an idea what i'm in for :)  

     

     

    I sure will. I had preop yesterday. Surgery 10/8 around 7:30 am.

  • foxhd
    foxhd Member Posts: 3,181 Member
    DYAN172 said:

    I sure will. I had preop yesterday. Surgery 10/8 around 7:30 am.

    I say

    that all you need to do is trust your health care team. They are the ones who know how to prepare for your surgery and recovery. So, sit back and watch the pros at work. They have done this many times. There should be no pressure on you.

  • medic1971
    medic1971 Member Posts: 225 Member
    DYAN172 said:

    I sure will. I had preop yesterday. Surgery 10/8 around 7:30 am.

    Hey, I hope everything went

    Hey, I hope everything went well for you and you are resting comfortably back home.  

  • DYAN172
    DYAN172 Member Posts: 20
    medic1971 said:

    Hey, I hope everything went

    Hey, I hope everything went well for you and you are resting comfortably back home.  

    Hello

    I came home yesterday. Amazing they only kept me one night. I will not lie its very uncomfortable. I slept my first night in a chair. I made it to my bed tonight. Lots of ice packs as suggested here has been a life saver. I am only using extra strength Tylenol I couldn't stand the way I felt on onxycodene. I don't have path back but based on preliminary reports it looks good.

     

    Please feel free to reach out to me I'll tell you as much as I can. Prayers for you

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    DYAN172 said:

    Hello

    I came home yesterday. Amazing they only kept me one night. I will not lie its very uncomfortable. I slept my first night in a chair. I made it to my bed tonight. Lots of ice packs as suggested here has been a life saver. I am only using extra strength Tylenol I couldn't stand the way I felt on onxycodene. I don't have path back but based on preliminary reports it looks good.

     

    Please feel free to reach out to me I'll tell you as much as I can. Prayers for you

    normal

    Dyan,

     

    You sound pretty normal to me right after a neph.

     

    Icemantoo

  • foroughsh
    foroughsh Member Posts: 779 Member
    DYAN172 said:

    Hello

    I came home yesterday. Amazing they only kept me one night. I will not lie its very uncomfortable. I slept my first night in a chair. I made it to my bed tonight. Lots of ice packs as suggested here has been a life saver. I am only using extra strength Tylenol I couldn't stand the way I felt on onxycodene. I don't have path back but based on preliminary reports it looks good.

     

    Please feel free to reach out to me I'll tell you as much as I can. Prayers for you

    I'm happy it's done

    I'm happy it's done successfully, wishing you an uneventful speed recovery.

    Forough

     

  • APny
    APny Member Posts: 1,995 Member
    foroughsh said:

    I'm happy it's done

    I'm happy it's done successfully, wishing you an uneventful speed recovery.

    Forough

     

    So glad it's over and you're

    So glad it's over and you're able to post. It also sounds like you're handling the pain issue pretty well. Make sure you walk a lot (at least 5 minutes every hour) to keep your lungs clear and get your body back to its usual state. Also drink lots of water. Hoping for the best path report! Mine took a week to get.

  • suzymcdo
    suzymcdo Member Posts: 20
    DYAN172 said:

    Hello

    I came home yesterday. Amazing they only kept me one night. I will not lie its very uncomfortable. I slept my first night in a chair. I made it to my bed tonight. Lots of ice packs as suggested here has been a life saver. I am only using extra strength Tylenol I couldn't stand the way I felt on onxycodene. I don't have path back but based on preliminary reports it looks good.

     

    Please feel free to reach out to me I'll tell you as much as I can. Prayers for you

    Glad to hear you are home.

    Glad to hear you are home. Wishing you a speedy recovery.

  • DYAN172
    DYAN172 Member Posts: 20
    medic1971 said:

    Hope all is going for you!

    Hope all is going for you!  i know your big day is coming up so please let me know how it goes so I have an idea what i'm in for :)  

     

     

    Day 4

    Pain wise its much better today getting around becomes easier. Warning don't over do no matter how well you feel. Pace yourself. Prayers coming your way. Please let me hear from you!

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    DYAN172 said:

    Day 4

    Pain wise its much better today getting around becomes easier. Warning don't over do no matter how well you feel. Pace yourself. Prayers coming your way. Please let me hear from you!

    Day by Day

    It is, and will continue to get better. Dont fret mate, you've had pretty major sugery. It will hurt a bit and get better

  • DYAN172
    DYAN172 Member Posts: 20

    Stage 1 lowest grade RCC

    X-rays to follow up. No treatments.

     

    If not for you all here I think I would have lost my mind I thank you all from the bottom of my heart!!!

  • Texasgranny38
    Texasgranny38 Member Posts: 24
    medic1971 said:

    Me too

    Hello DYAN172,

    I'm in the same e boat as you.  I recently had a CT scan done and I was found to have a 2.1cm lesion on my right kidney.  I'm going to have the same surgery at MD Anderson on Oct 23rd.  I know what you are going through.  My scan was done at the end of July so I've had time to process this a little longer than you.  I've also research the sh%t out of this subject too.  Here are a few things to keep in mind that might help you like it  did with me.

    1. MD Anderson told me that there is a 70-80% chance I have cancer, but that means there's a 20-30% chance I don't have cancer.  There's no way to tell for sure without a pathology report.  There are a few benign lesions that look very much like rcc.

    2. The survival rates you most commonly see online are not accurate. Those numbers come from the National Cancer Data Base and are based on patients whose cancer was found in the years 2001 and 2002.  Wow, a whole year?  You guys really went all out there, NOT!.  I'd put our survival rate at greater than 98%.

    3. Here is a great video that really gave me a lot of comfort.  https://www.youtube.com/watch?v=Er7gmP3N-mY

    4. If you don't already start taking care of yourself eat right, exercise, and get plenty of rest.  

    5. If you are having issue with anxiety talk to your doctor and get on something.  I am currently taking 0.5mg of Xanax mainly at night because that's when my mind won't shut off.

    Good luck and please keep us informed.  

     

    Jason

     

     

    Thanks so much for that youtube link!

    Jason,

    I really appreciate your sharing the link on kidney cancer.  I got to watch two of Dr. Christopher Wood's lectures.  He was my kidney surgeon at MD Anderson.  I kept it in my favorites and intend to browse through other interesting info.

    I wish you well on your upcoming surgery on the 23rd.

    Take care,

    TexGran

  • DYAN172
    DYAN172 Member Posts: 20
    Jojo61 said:

    Dyan and Jason

    Welcome!

    You must be feeliing quite scared. That is normal. You already know that you have an excellent prognosis.

    The best that you can do for yourself right now is prepare ahead of time....have a comfy place to recuperate, get all your laundry done ahead of time, groceries - even make and freeze a few meals so that you can be ready. When you are home you will likely need some medication. But if you can, ice packs are good suggestion. Hopefully Jan will chime in here to advise exactly how she did it. The surgery isn't comfortable, but really not that bad. It's come a long way!

    It will be behind you before you know it. But try not to overdo it...the insides take a long time to heal. And you don't want to risk getting a hernia.

    Keep us posted on how you are doing!

    Hugs

    Jojo

    Ice Packs

    The ice packs were a great suggestion. They are and have helped GREATLY!

     

    Thanks!!