Shocking news
Comments
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Time to recurrence - I really don't knowayostacey said:Thank you HellieC, do you
Thank you HellieC, do you think that becuase hers came back so quickly that it may be more of a challenge than if it had come back years later? When she went to the Dr's with the CT from the ER (the same Dr that told her 99.9 percent its not coming back) she was in a daze when he said its cancer again. She didnt ask too many questions! So my mother called the next day and asked more questions to the nurse. She basically said they can get it to go "away" but its a lifelong battle since it will most likely keep coming back. My sister is now going to seek a second opinion to see what her treatment options are. She is young and has two teenage boys and is willing to do anything that will give her better chances of long term survival.
I really don't know whether it's time to recurrence that has any bearing on how much of a challenge it is, or whether it is more related to the grade of the original cancer (higher grade - tends to be more aggressive). It sounds like a second opinion is a good way for your sister to get as much information as possible about her treatment options, so she can choose the path that's best for her. But please don't lose hope - there are treatments out there!
Kindest wishes
Helen xx0 -
Cucu me said:
Great news artist49
Can you share more about your diet,please. Also did you have chemo or radiation after surgery?
I'm on diet too, but I'm not sure is it the right one.
Thanks
I had chemo but no radiation after surgery. My diet is a mishmash of cancer
fighting foods - black raspberries, whole lemon, flaxseed, shallots, garlic, turmeric,
tomato paste, carrots, variety of nuts, sesame, pumpkin and sunflower seeds,
wild salmon, organic chicken and eggs, wild rice, granny smith apples,
1 date and fig a day, mushrooms, kale, collards, beet greens, spinach, purple
potatoes, all colorful veg, all cruciferous veg, green tea, avocado, sweet potato.
You probably get the idea. I include a little of almost everything every day.
If you have any questions, just ask.
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Thanks for the replayartist49 said:I had chemo but no radiation after surgery. My diet is a mishmash of cancer
fighting foods - black raspberries, whole lemon, flaxseed, shallots, garlic, turmeric,
tomato paste, carrots, variety of nuts, sesame, pumpkin and sunflower seeds,
wild salmon, organic chicken and eggs, wild rice, granny smith apples,
1 date and fig a day, mushrooms, kale, collards, beet greens, spinach, purple
potatoes, all colorful veg, all cruciferous veg, green tea, avocado, sweet potato.
You probably get the idea. I include a little of almost everything every day.
If you have any questions, just ask.
Good and healthy one. Dairy?
I'm eating no diary, no meet, exept fresh chicken, no sugar, etc.
Dry fruit yes and more than one per day, also I eat nuts, honey.
Organic when posssible.
It's hard, omg, especially after chemo, but I'm trying.
Recently no turmeric, can not make myself to take it.
Otherwise I'll drink it with almond milk with a bit of olive oil and black peper.
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dietCucu me said:Thanks for the replay
Good and healthy one. Dairy?
I'm eating no diary, no meet, exept fresh chicken, no sugar, etc.
Dry fruit yes and more than one per day, also I eat nuts, honey.
Organic when posssible.
It's hard, omg, especially after chemo, but I'm trying.
Recently no turmeric, can not make myself to take it.
Otherwise I'll drink it with almond milk with a bit of olive oil and black peper.
No dairy, sugar, only rarely a little pasture fed beef,
1 dried date a day, and I forgot to mention hempseed-
I sautee shallot, garlic and greens in a little coconut oil,
then sprinkle on turmeric and black pepper , add tomato paste
sauce (enhanced with liquid stevia and nutritional yeast and
a spice like oregano etc, Then I add 2 tbs. hempseed for
protein and some seasalt. This is part of breakfast. 1st part
is my black raspberry lemon etc. smoothie. Ask me anything.
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Thanks so muchartist49 said:diet
No dairy, sugar, only rarely a little pasture fed beef,
1 dried date a day, and I forgot to mention hempseed-
I sautee shallot, garlic and greens in a little coconut oil,
then sprinkle on turmeric and black pepper , add tomato paste
sauce (enhanced with liquid stevia and nutritional yeast and
a spice like oregano etc, Then I add 2 tbs. hempseed for
protein and some seasalt. This is part of breakfast. 1st part
is my black raspberry lemon etc. smoothie. Ask me anything.
Yeah, pretty strict.
But if you are in good health, it's worth it.
Thanks, I may send you a private message or we can start a new topic about strict diets and their results,
so everybody can read and know.
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Great information, thank youartist49 said:diet
No dairy, sugar, only rarely a little pasture fed beef,
1 dried date a day, and I forgot to mention hempseed-
I sautee shallot, garlic and greens in a little coconut oil,
then sprinkle on turmeric and black pepper , add tomato paste
sauce (enhanced with liquid stevia and nutritional yeast and
a spice like oregano etc, Then I add 2 tbs. hempseed for
protein and some seasalt. This is part of breakfast. 1st part
is my black raspberry lemon etc. smoothie. Ask me anything.
Great information, thank you for sharing!
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Pinky, you're the best!pinky104 said:ayostacey
Nothing in this life is certain. I was found to have a big uterine polyp, which my GYN assured me would most likely be benign. It wasn't. Instead of the robotic surgery I was supposed to have at another hospital, the GYN/onc my GYN referred me to came in to the room where I was getting prepped for surgery and told me he couldn't do the surgery robotically after all. He finally had looked at my CT scan done in another hospital where I was working at the time, and he saw how extensive my cancer was. It had spread from the uterus to both ovaries and the small intestine. I was told ten days later than I had stage IVb, the highest possible stage, of UPSC, a very aggressive cancer. I read a few months ago in a society of gynecological oncologist's report that in that stage, I had a 9% chance for five year survival. At the time my oncologist told me that he didn't like to discuss odds of survival because if your cancer had a 90% survival rate and you were in the other 10%, what good would that 90% chance be to you? I started preparing myself for living a lot shorter life than I had previously expected. I was sure the cancer would kill me. I know my little brother thought that. While I was in the middle of chemo, he was the one who dropped dead, of a heart attack at age 57. He hadn't been to a doctor in years and was a strong guy who nobody ever thought would die young. My mother, my father, and my maternal grandmother had all survived cancer. My mother had breast cancer twice, ten years apart. She died of pneumonia at 90 in spite of having a number of other very serious medical conditions throughout her life.
Here I am today, 5 years out, almost 67 years old (next month) still alive and with no evidence of disease. I have a mass in my peritoneum, but I've had CT scans 3 times and a PET scan once, and the mass hasn't grown. My GYN/Onc wasn't sure what it was at first, but he no longer feels there's any chance it might be cancer. A nurse in his office told me it could be a fluid collection from having had my lymph nodes removed. My GYN/onc isn't going to do any more scans unless there are new symptoms.
My feelings are that if you expect the worst, things will either be what you expect, or, if not, will only turn out better. On the other hand, look at what happened to me. I had a 91% chance of dying, and here I am in spite of the odds. Nothing in this life is for certain.
What a great post!! I'm stage IVbUPSC as well, and I'm two years out. Should have one foot in the grave according to statistics, but I'm basically asymptomatic and my day to day life is just fine. One day, one step at a time. Things are not always what they seem. Good for you for reminding us!!
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So just an update, my sister
So just an update, my sister went to get a 2nd opinion from a Dr recommended by her boss who has been in a lot of cancer research. He looked over her initial Dr's recommondations, and agreed that the type of chemo they want to give her (not sure which one , will get the name shortly) is the same one that he'd give. He said it is tried and true. He also said to stay away from clinical trials. He told her, that he doesnt really tell patients that but "off the record" he is telling her that clinical trials help people in the future, but wouldnt be of any help to her. So chemo it is ! She went for her needle biopsy today and will meet with her Dr next week to discuss the plan of action. I'm hoping that when the Dr said it's "Tried and true"...that he fully expects her to go into remission......for a long time!!
I read someone's post today where they said that she was told once that the longer the reoccurance happens after initial treatment, the better your chances are of it staying gone again. That worries me since my sister's was back just a few months after surgery and radiation.
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