Searing, stabbing mucositis?

I wish I knew something that would help. I will say that I see you listed Prilosec which is for acid reflux. I have this [GURD] fairly bad but don't have heartburn so I didn't know I had it. I had to go to Rx as nothing over the counter will help. I, well the doctor, tried many and we did find one that will work "for me". I have to take Dexilant 60mg, which is for once a day. I have to take it twice, once in the morning and again at night. Doctor had to argue with insurance to get it oked for twice. It is on the insurance list as "you pay a lot" for it. I have great insurances and my cost was $100 each month. Dexilant sent me a coupon where my out of pocket is $20.00 max. [you can go online and get the discount from them.] I now get a three month supply and I pay $20.00 and have been on it for over a year. Now with acid reflex there is some foods that will make your body produce more acid to digest them. Google it, but here is some, Milk and all dary products, ice cream and cheese too. Coffee, Cola like Pepsi and Coke, also Mt Due because of caffeine, black pepper also. That is just a few. Now I still eat them, and I know they will produce more acid so I do have to watch them. Oh, almost for got Butter and I cook a lot with it.

Now on to the pain killers. He is in one heck of alot of pain, and i'm very sorry. When I see Fentanyl I know thats pain to the extream..[ My son is on that from a really bad acident going on 7 years] With having to take pain killers [which you can't do without] will also mean you will get constipation with it. Most likely need softeners daily and Laxitive about every three to four, I do.

Just a precaution, if he does have to take an antibiotic for colds or flu or infection, remember to eat Yogurt or Probiotics at least 3 billion count because the antibiontic will kill the good bacitera we need. It just kills all bacteria not just the bad.

I am not a doctor, but you seem to have all that I could think of. It is very hard on the caregiver/ loved one. You see the pain and it hurts you, because you can't make it stop. All you can do is what you are doing, be there for him with some understanding. He might even get a little sharp at times, but believe me he does not mean it. Sometimes it is harder on the caregiver than the person going through this. I do wish you my best, and will also add to remember to get the reas YOU need, and set some time each day aside for you.

You both will be in my thoughts and prayers. I do understand, so remember just take one day at a time, and we are always open 24/7.

Almost forgot, with acid reflux, only lay on your left side because on your right side the acid will drain to your throat because of gravity as it puts your stomach high up and it will drain down to yoyr throar.

Bill

I think I know what your husband is describing. Occasionally that pain presents itself in one area of the inside of my lower jaw. It feels very dry and like something must surely be tearing, but there is nothing there. My treatment ended eleven months ago, so it is possibly nerve pain. Sometimes just pressing my tongue or finger over the area helps. With this cancer treatment, it seems every day brings a new symptom. Be patient. Most of them are temporary, although miserable. I will add my prayers to your list, too.

barb, i don't have any answers but want to say i am praying for him to feel better.  talk to the docs, they have to have something that can help aliviate the pain.  i'm so sorry he's in so much pain.  i am praying for all of you.

God bless you,

dj