Trials and how to choose

are you sure your hospital said METs. There is a rare tumour/tumours called Neuroendocrine, NETs it can affect several organs of the body including lungs. Some are very slow growing and don't show up in regular scans. I don't know about trials for this. I have neuroendocrines in my small bowel. They are small and grow to the lining. I had one grow over time to block my bowel. I had surgery to remove it but they said I had three more very tiny ones. I have since had neuclear scans and they aren't showing up. Whether they've disappeared or are too small to show I won't know. They are very slow growing and I could have them the rest of my life not knowing unless like this one thats just been removed gives me trouble. They are just leaving it to nature with six month check ups. They are very rare. what symptoms have you they can affect the hormonal balance. It's best you ask your doc what exactly is this type of cancer. I'm probably barking up the wrong tree in your case hope you find some trials

Sorry I really don't know about trials. I did check on some for COPD but never qualified. I thought it might help me and the study could help others. 

I wish there was a data base that you could look up trials for this illness. NGU and we are always for support and ptayers.

Bill

Katie,

i have no info but wanted to say hi and wish you the best. You will be in my prayers tonight. 

I don’t have any personal experience with clinical trials, but from what I’ve seen, there are a few Immunotherapy Phase I studies recruiting. These are targeting various receptors implicated in immune response, like PD1, CTL4, OX40 or their ligands. Ideally a combined therapy (like PD1 and CTL4 or OX40), because the response is much stronger in terms of activating the immune response against tumor cells. The downside is that these are phase I studies, meaning that it depends what part of the study is enrolling (like escalation, or expansion). During escalation, they are trying to figure out the maximum tolerated dose, so you might end up with a sub-optimal dose. During expansion there is usually a requirement for mandatory biopsies, but the optimal dose is already known. In general Immunotherapy is well tolerated (better than classical chemo anyway); if unlucky you have some adverse events caused by flaring up inflammation. You should see if any of the above are available in your area.