symtoms

wmc said:

Not sure what it is...

With the flurd being clear it is not lymph fluid. It almost sounds like a small infection. Does not sound like cancer. That is a lot of liquid as it sounds like 3ml to 5ml which is sonething that yould concern me as well. I hope his doctor has some answers.

Thanks for your reply, yes it just seems wierd that this has devolped recently so perhaps it will heal before he see the Dr next week, anyway thoughts keep running thru my head and waiting is really hard when you care about the person. So just want to think positive thoughts!    gravelroad

wmc said:

It is always better to be over cautious.......

Once you hear that word cancer from a doctor it seems to always be stuck in the back of your mind. Mine was hust above my vocal cords. To make a long story short, they had to remove my larynx which got all the cancer and anything around it. Did a modified radial neck dissection on both sides, as a precaution and if it ever did come back it can't spread there. They removed 86 total and did leval 2~5. So when I woke up all the cancer was gone, nothing to worry about. 

But you see a spot on your tounge or your neck feels stiff or a knot or bump and that is the first thing in your mind. Is it back? Now I know my odds are really very slim it could come back, but it is always in your mind. I have a TEP Prosthesis in my neck so I can talk and sometimes it will leak and need to be changed. When it leaks liquid it's leaking down my stoma [trachea] and in my lungs and you cough so hard you turn red and see stars. So every time I am going to swallow any liquid, I have to think about it each time. It has been 22 months and I still take a sip and just hold it in my mouth and think about swallowing it. I really do not that will ever go away. It is just me 2.0 [The New Me].

Yes I do understand your worries and feelings. I am the patient, but I am also a caregiver for my wife to some extent. She has just entered stage 4 kidney failer. Her numbers are low and they need to stay or go up. She will not do dialysis as she has some other problems too. She was disabled five years after we were married and we just had our 40th anniversary. She is much better than it sounds as she walks everyday and gets around really well. I have seen illness from both sides. I could not have made it without her, but she felt my pain and that hurts.

Be stroung and remember to take care of YOU. You're no good if you don't get the rest and some time each day for you. You both will be in my thoughts and prayers, always.  It has got to the point in the last two years, I just look up and say Lord you know the list right. Just take one day at a time, and on bad ones hour by hour. Keep the faith and just know he will be fine.

Bill

Thank you so much for your positive thoughts , sounds like you have been thru alot yourself , worry never helps but we all seem to worry anyway, thanks for the prayers as well , prayers help us fine peace . and its comforting to know that we need to leave are cares with someone ( GOD) who can really make a difference! So keeping positive thoughts !!!