On the way to chemo town...

I am so sorry you are going through this and we are all here for you.  I had Carbo/taxol every three weeks for six treatments.  Staying hydrated is really important and keep walking and moving that stuff around.  i too went wig shopping prior to starting treatment.  Two of my stepdaughters, my MIL and I went.  Seeing my ultra conservative MIL in long blue hair was the best.  We laughed so hard.  I got a great wig, my stepdaughter who is a stylist - trimmed it and I was happy to have that ready and waiting.  In the end, I went au natural pretty much all of the time or maybe with a hat on and was very comfortable.  my stepdaugter also shaved my head when it was time, after my second chemo.  my scalp hurt quite a bit prior and then it came out in clumps one day.  She dropped everything and came over.  First she shaved it into a mullet.  Then a Cindy Lauper,  a Mohawk and then totally bald.  We laughed so hard that day and shed some tears too.  It remains one of the many amazing experiences I have had because of my cancer. Same as the wig shopping girlie day and countless others.  

Heading into it I stocked up on things such as Immodium and Colace (my body tends to go both ways).  Food wise my doctors recommended potassium sources such as bananas and potatoes which were easy.  Soups, and I ate a lot of chicken.  Recently we are back on the old diet and my husband was joking about how much chicken vcan a person eat in one week.  

Everything that happens is temporary.  I had my infusion nurses write out a schedule of medicine taking for me which made it really easy to avoid nausea and manage and related pain.  I always seemed to bounce back after a few days, the first day after the chemo I felt pretty good thanks to the steroid "bounce".  My husband and I made plans especially for the weekend prior to the next chemo to celebrate each one and to give us things to look forward to.  I had such amazing experiences because of my cancer; I think because I remained open to the whole experience and came across innumerable Angels along the way.  

Be gentle with yourself and know that you will get through this.  Take it one day at a time.  Hugs and prayers.  Anne

AWK said:

You are officially a Chemosabe and in good company.

I am so sorry you are going through this and we are all here for you.  I had Carbo/taxol every three weeks for six treatments.  Staying hydrated is really important and keep walking and moving that stuff around.  i too went wig shopping prior to starting treatment.  Two of my stepdaughters, my MIL and I went.  Seeing my ultra conservative MIL in long blue hair was the best.  We laughed so hard.  I got a great wig, my stepdaughter who is a stylist - trimmed it and I was happy to have that ready and waiting.  In the end, I went au natural pretty much all of the time or maybe with a hat on and was very comfortable.  my stepdaugter also shaved my head when it was time, after my second chemo.  my scalp hurt quite a bit prior and then it came out in clumps one day.  She dropped everything and came over.  First she shaved it into a mullet.  Then a Cindy Lauper,  a Mohawk and then totally bald.  We laughed so hard that day and shed some tears too.  It remains one of the many amazing experiences I have had because of my cancer. Same as the wig shopping girlie day and countless others.  

Heading into it I stocked up on things such as Immodium and Colace (my body tends to go both ways).  Food wise my doctors recommended potassium sources such as bananas and potatoes which were easy.  Soups, and I ate a lot of chicken.  Recently we are back on the old diet and my husband was joking about how much chicken vcan a person eat in one week.  

Everything that happens is temporary.  I had my infusion nurses write out a schedule of medicine taking for me which made it really easy to avoid nausea and manage and related pain.  I always seemed to bounce back after a few days, the first day after the chemo I felt pretty good thanks to the steroid "bounce".  My husband and I made plans especially for the weekend prior to the next chemo to celebrate each one and to give us things to look forward to.  I had such amazing experiences because of my cancer; I think because I remained open to the whole experience and came across innumerable Angels along the way.  

Be gentle with yourself and know that you will get through this.  Take it one day at a time.  Hugs and prayers.  Anne

Anne, Loved reading your post.  Thanks for sharing. I had already asked my husband if he would shave my head when the time came. I want him to participate in this to help him in the acceptance as well. He is doing well so far with all of this. And, we are a team so I'm incredibly fortunate. I continue to try to picture myself bald. Going to be very strange. But, not the end of the world for sure. Plus. my hair is stick straight so I'm curious to see if it comes back curly like others have indicated.

Since everyone that I have read posts on so far had the one week on / three weeks off, I'm not sure what my energy level or impacts will be.  I'll share that along the way so that anyone coming behind me has a point of reference for weekly treatments.  Cindi

Lou Ann M said:

Go for the ice cream

My husband often stopped at Dairy Queen and got me a Blizzard On the drive home from chemo.  It tasted good and felt good in my tummy.  Oddly Pizza was one thing I could eat when nothing else tasted good.  I could not taste salt so I often over salted things I cooked during the chemo with carbo.  I use Omeprazole, Immodium, and Myralax almost every treatment, plus Ondanstron.  It seems like they have a pill for almost every side effect.  My biggest (problem) when I was on Taxol/Carbo was the fatigue and bone pain.. I took one Hydrocodone for two nights and that took care of the pain pretty good.  Don't be afraid to ask for pain meds.

My husband cut my hair when it statred to fall out at about day 14.  I did get a wig, but wore it twice, tried scaves, didn't like them, but i did like hats.  They make so many cute ones, and you can match them to your clothes.

I was scared to dearth the 1st time, but soon learned it was not as bad as i had thought.  Some bad days, but many more good days. If I can do it , I figure any body can.  Hugs and prayers, Lou Ann

Lou Ann, I still have most of my Oxycodone left from my surgery. Only took a few pills for a couple of days. I'll ask if it is OK to use them if I need them. Appreciate the tips on eating ice cream after the chemo treatments. I don't need much of an excuse .... It has to be my favorite food!  (Are you listening, Chris?) lol

I normally eat Edy's Slow Churn because it is lower in fat. And it has a nice smooth texture and really good flavor.  I do have that splurge time for Wendy's Chocolate Frosties too. YUM!

Either Ann or Moli posted about eating popsicles to help with the metal taste and nausea. I plan to do that as well.  And, I'm sure if I run into issues, someone here will have suggestions. I'll say it again, I'm so thankful for all of you ladies.  Cindi

pam0422 said:

Eating to maintain weight

I have been taking care of my mother who has a recurrence of endometrial adenocarcinoma on&in her colon, 6 years after her original occurence. She has never been a fan of big meals and prefers to eat smaller amounts throughout the day, this has actually been helpful while undergoing chemo. I make smoothies out of anything that sounds good to her and add a scoop of organic frozen yogurt to them. I also add a couple of spoonfuls of nonfrozen yougurt to soups. I make a banana pb smoothie, top with whipped cream and sprinkle with dark choc shavings (the "Elvis is in the house") sounds decadent, but all the ingredients are actually good for you. Fruit soups are a delicious and easy way to get nutrition in and perfect for summer. You can add ginger to all of these for a little zip&zing and to help with nausea. I am a nurse for pediatric home health and have patients I have to coax to eat. I have found you can use any of the nutrient beverages (Ensure,etc) to replace the milk in puddings to make the Ensure more palatable (or use it in a milkshake).  A few rules I follow: all dairy and meat must be organic (hormone free). I'm a huge proponet of organic dairy and meat. I don't believe the female body was meant to have more estrogen pumped into it (don't think the chickens and cows appreciate it much either). All dairy and honey should be pasteurized in deference to a decreased immune system. I also have my mom doing Breathwork for anxiety relief and positive energy. I am putting links to some of the recipes I use and a description of the Breathwork program. I'm not endorsing any of these sites in particular, they are just the ones I found and choose to use. All my best wishes and prayers to you.

http://topics.nytimes.com/top/news/health/series/recipes_for_health/fruit_soups/index.html

http://www.stonyfield.com//recipes/watermelon-smoothie

http://www.chiquitabananas.com/Banana-Recipes/Creamy-Peanut-Butter-Banana-Smoothie-recipe.aspx

http://thejoyfullifeproject.com/breathwork-heals/

I'm sorry to hear about your mom's recurrence! I pray that she recovers quickly.

Just wanted to say THANKS for taking the time to join and post this information for us.

Much appreciated!

Cindi

I asked about weekly doses of Carbo/Taxol instead of the tri-weekly plan, but wish that I had pushed harder.  I got a wollup of unnexpected nerve damage from the chemo. Two years post, and I am still having a lot of pain. You definitely should ask about it. I read a study that was done in 2013 re: Carbo/Taxol treatments done on breast cancer patients that suggested that efficacy was the same for both groups (weekly and tri-weekly) but there were fewer who suffered side effects like neuropathy in the lower dosage group. I also have 2 friends, one ovarian cancer patient who has just finished weekly courses of carbo/taxol and one currently doing weekly doses of Taxol for recurrent breast cancer, and they are faring better than I have - as far as how they feel!

Also, you might want to ask about having your B12 level checked before you begin. Mine was dangerously low after chemo, and might have been low going in.

It was suggested by the nurses that I take glutamine to help with the nerve problems while I was getting chemo, but one of my doctors pooh-poohed it as not being scientifically proven as a help. I did not take it, but now I wish I had!!

As everyone here can attest, we're all different, and respond differently to chemo, but I would take every precaution that is not deemed excessive or unhealthy, even if its efficacy is just antecdotally expressed. I did not have a naturopath, but probably could have used one.

As far as food goes: I had avoided anything with processed sugar for many years prior to diagnosis, but developed a gelato habit during my chemo that I have still not broken! (I iive within walking distance of 3 gelato stands.) I did walk a lot too. Watermelon really helped with the constipation problems I had from the anti-nausea meds. I learned to stock up on it. A friend kept me supplied with homemade bone marrow broth, and I also ate a lot of chicken, salmon and mashed potatoes. Malto-meal every morning as well!

Hope this helps,

j

There were a couple of things around my counts that had to be dealt with.  After all of that he went through my chart again and said - I am giving you permission to eat whatever you want between now and next week.  I want you to work on gaining five pounds.  Use your judgment but I won't be upset if you eat ice cream as part of your diet.

Totally made me think of you girls!  stay strong and thrive or SS and T as my friends and I say!  Anne

TeddyandBears_Mom said:

Hair cutting day

Anne, Loved reading your post.  Thanks for sharing. I had already asked my husband if he would shave my head when the time came. I want him to participate in this to help him in the acceptance as well. He is doing well so far with all of this. And, we are a team so I'm incredibly fortunate. I continue to try to picture myself bald. Going to be very strange. But, not the end of the world for sure. Plus. my hair is stick straight so I'm curious to see if it comes back curly like others have indicated.

Since everyone that I have read posts on so far had the one week on / three weeks off, I'm not sure what my energy level or impacts will be.  I'll share that along the way so that anyone coming behind me has a point of reference for weekly treatments.  Cindi

Now it is out of control thick like a rug and I can't even describe the crazy curl in it.  My husband said every morning is a big surprise in terms of my bed head.  It started growing back three weeks after my last carbo/taxol and within eight weeks I had a cute soft pixie.    

I haven't lost any during Doxil nor Avastin treatments and we will see what happens with this newest thing.  I am good either way.

hugs and prayers - Anne

AWK said:

So funny, I had a doctor's appointment today

There were a couple of things around my counts that had to be dealt with.  After all of that he went through my chart again and said - I am giving you permission to eat whatever you want between now and next week.  I want you to work on gaining five pounds.  Use your judgment but I won't be upset if you eat ice cream as part of your diet.

Totally made me think of you girls!  stay strong and thrive or SS and T as my friends and I say!  Anne

 

 

YAY!!! Please keep us posted on your next procedures, Anne, when you're feeling up to it!

-j