Dark days. Need Hope

Everyone has a fighting chance while they still have fight in them. 

We do have several here, who have fought hard over many years. They will post, but not always every day, so be patient and they will come and share thier story, and give you hope. 

It breaks my heart to read your pain in this post. It is not an easy task, being the caregiver to someone you love so dearly. Indeed, I think it is harder than the patient with the Cancer. Harder emotionally, especially. 

I send my soul with all the good vibes and prayers it can muster. 

Stay strong. 

Sue - Trubrit

A brief comment...

I took a totally different route. You can click on my name and read my profile and the "blog" section for more info.

There are no guarantees with any treatment, but what makes on sick isn't necessarily the best choice; there are other options.

Crohn's and Colitis are both immune system problems, and the immune system is built in the digestive tract. Harsh chemicals take a toll on our digestive tract and play hell with our immune system.

Your partner would do better by doing two things:
1. Get other opinions from colorectal surgeons that are not part of the same group or organization as your present physicians. You require other professional opinions regarding care and treatment. There can be an entire world of difference in what course life takes, depending on the physicians involved. Do that now, while there's still time.

2. Find "other ways" to build the immune system back up. My "blog" can provide some insight. There are other modalities to make use of that can be of great benefit,m in spite of the damage any harsh treatments may be doing.

I hate to see people suffer; it takes a chunk of my heart out just reading on the forum how much one can suffer. So many try to reason that one has to suffer and fight the treatments to get well.....

Please help your partner get other professional opinions as soon as you can. It really is that important!

My best to you both,

John

janderson1964 said:

Read my post above "Surprisingly good scan results". In two months I will be a 10 year stage IV survivor and have faced pretty dire situations several times. Especially in the past 1 1/2 years but seem to keep bounching back. Ive been to Hell and back several times and looked the grim reaper in the eyes and refused to let him take me.

I hope these two stories help.

Last December I had a blood clot that went to my lung. I had five cardiac arrests as well as some other crap such as a stroke, kidney failure and a coma. I was later told my odds of survival were one in a thousand. The main ICU doctor discussed not reviving me with my husband and daughter but they insisted. And I made it. Two doctors in the ICU later told me I'd had a miracle and one said there was no medical reason for my survival. And my stage III cancer so far has not returned. It's just over a year for me but I'm still happy with that.

I've told this before on here but I'll tell it again in case it helps. My grandmother had colon cancer in the 1950's when she was in her fifties. Surgery only, no chemo as it wasn't available at that time. She lived until her early eighties and did not die of cancer.

Always try to be positive. Miracles happen every day and every cancer patient's journey is different so you can't look up stats or hear about someone with the same cancer and expect the same results. It's so scary but there is plenty of technology to help us and sometimes not using it is just as good. Our bodies can do incredible things.

Keep looking up!

Jan

MissMigi said:

Thank you so much for the

Thank you so much for the support. We saw the onclogist today and she is mentioning starting Folfiri plus wither Erbitux or Vectibix if he shows to have the KRAS mutation. If he has the BRAF mutation then it will be very grimm and pretty much hopeless. All our thoughts and faith are on that he will not test positive for BRAF mutation. 

His Chrons is pretty under control and his bloodwork looks close to normal. The CT scan showed that the cancer has progressed to the liver where there are now a couple of small spots. 

Did I mention we live in Canada? We are being treated at the biggest cancer centre here and one of the top 5 cancer research places in the world. Yet, America seems to be more advanzed on their treatment options. We are seriously considering getting a second mortage and spending it all at one of the cancer centres in America. I asked about a drug that is currently being used in Europe and tried in America that reverses peritoneal ascites regardless of how advanced the disease is. And our oncologist had NO IDEA what I was talking about. Its disheartening to say the least. 

I guess we just have to keep going. My love is so completely adamant that he will beat this that it gives me strenght. I feel selfish for even allowing myself to feel like this. It is he who needs all the support and reassurance, and yet here I am crying and popping xanax to try and get through the day. 

Also, has anyone had any experience with cannabis oil, vitamic c and fermented wheat germ?? We started seeing a naturopath and have just started all of the above. We will add PSP and PSK mushrooms later to the convo. 

MissMigi, by any chance are you going to the Tom Baker? I'm in Canada as well and that's where I go.

MissMigi said:

No, we are being treated at

No, we are being treated at Princess Margaret. Is Tom Baker out west?? 

Yes, we live near Calgary.

Helen321 said:

Keep looking up

There are people on here who have survived for close to two decades with stage IV.  As Phil said to me, cancer doesn't have to mean a death sentence.  I'm really surprised that the cancer was caught only 2 months ago.  How did it get missed all those years, with Chrons there must have been scans?  Sometimes life throws you a serious curve ball=(  You guys are in my thoughts.

If you come to America I would say MSK in New York and MD Anderson in Texas are our 2 top cancer centers. Just my opinion. I'm stage 4 and beating it now, it can be done.

Easyflip/Richard