uterine papillary serous carcinoma

nempark said:

So sorry Jennie!!!

I know how you feel Jennie I have been through this and when I was just recovering my daughter was diagnosed so I definitely know how you feel.  I can only tell you to hang in there and let's hope for the best.  I always remember what Maya Angelo said "however bad it seems today, life goes on and it does get better tomorrow. Love mom, give  all you can, give her big hugs and tell her how much you love her.  I remember when my daughter was diagnosed the first thing I did was to tell her that I was sorry and I apologize for anything that I said or did that hurt her.  So talk to mom, love her and discuss everything under the sun.  None of us know how things will turn out, so the best thing for us is to just love love and love mom.  Please let me know how she is doing and don't forget to take care of yourself. 

thank you.  sorry it took so long to respond. i am not so tech saavy, and it took me awhile to figure out how to  find this discussion again. thank you for your input. i hope all is going well with your daughter.  my mom just finished her 5 chemo.  she is scheduled for 6, and if all goes well, she will do one every 21 days- a lesser dose. glad there is a plan; but hate that it is chemo every 21 days. hate what chemo does to the healthy cells. 

NoTimeForCancer said:

Jennie, thank you for

Jennie, thank you for posting.  Please know many of us could not make it through all the diagnosis, surgery, and treatment without the love and support of our family. There is nothing like your family who knows how you like your food prepared or house cleaned, or anything like that. 

You, your mother, and your family are in my prayers.

hi, thank you for your input. i have read a lot of your posts. i don't post a lot; but i read alot. these discussion boards are so helpful. it feels awkward being a family member posting, i guess that is why i don't respond, or post; but with my moms diagnosis~ i find these posts on the discussion boards, specifically the upsc boards really hopeful, and helpful. thank you

Jeannemae said:

UPSC IIIc

Wife was diagnosed with the above August 2013. After six round of Carbo and Cisplatin went to two other drugs for three more treatments then brachytherapy . Has matasticized to sitz bone, femur and brain with five lesions. We have traveled extensively through out this journey to Europe, scandanavia and Russia but I fear things are coming to a halt. Wife walking with noticeable limp, is now in radiation for brain and I am near tears every day. Has anyone survived with metasticized brain tumor? Hoping for tomorrow becoming increasingly hard to do. Have been married for 48 years and would be so greatful to make 50.

God bless you both..

Lou Ann M said:

Treatments

I had chemo #20 on Tuesday, the 3rd of Doxil.  So far each time the side effects have been very different so I am still not sure what to expect.  After the next Doxil. I will have a Cscan and and an echocardiogram.  Hopefull they will show some progress.  i am so blessed with a wonderfull family as i know our mother is.  Prayers and hugs to both of you.  Lou Ann

hi , i was just wondering how the doxil went? how are you?

Jeannemae said:

UPSC IIIc

Wife was diagnosed with the above August 2013. After six round of Carbo and Cisplatin went to two other drugs for three more treatments then brachytherapy . Has matasticized to sitz bone, femur and brain with five lesions. We have traveled extensively through out this journey to Europe, scandanavia and Russia but I fear things are coming to a halt. Wife walking with noticeable limp, is now in radiation for brain and I am near tears every day. Has anyone survived with metasticized brain tumor? Hoping for tomorrow becoming increasingly hard to do. Have been married for 48 years and would be so greatful to make 50.

how are you both? i don't know if this helps you at all; but we have my mom on suppleents, as drs have released her bascially, saying see you~ but there are so many supplements out there. worht a try. how are you?

AWK said:

You are such a great source of support to her

How are all of you doing with this?  Is your mom a candidate for clinical trials or even interested in going that route?  I just started one last week.  We will know by early September if it is working or not.  Sending hugs.  Anne

hi awk/ anne,

very much looking forward to hearing how you are doing with your clinical trial. i wish you prayers. please let  us know when you know anything.

 we did go to a clinical trial onc. a few days ago. she recommended an immuno/chemo trial for my mother, that my mom is applying for. seems there are not a lot of trials for upsc, as there are not a lot of people with it, as we all knnow..  i was  trying to find a clinical trial with the viro therapy at penn, or mayo etc. but as perhaps  guessed, so liitle of this group, not enough to clinical trial. basically when i spoke to them they said they clinical trial cancers they feel will benefit the maximum amount of people. i get it. it makes sense; but hard reality to hear.

   the doxil seems not to work on my mom, her tumors are growing, so she is now taking simpson oil, dca, and avemar.. as well as liquid chlorophyll , b-12, milk thissle, and a few other homeopathics, in hopes this will slow it down a bit. ( we looked into rigvir, and gcmaf, and a few other things~ anyone have experience with that?)

chemo dr pretty much said, doxil isn't working. i'm not God, so i can not say for sure; but judging by your tumor growth, and multiplication~  you have somewhere between 3-6, 11 months.  i feel perhaps, you may not make it passed the end of this year.  please enjoy the time you have with your children, and  consider, not wasting time looking for cures that do not exist.  i suppose it's an odd thing; but honest to say~. i do believe she is in my moms corner and has my moms back~ but i also believe onc, and mds only know a certain aspect of cancer fighting.  i believe there is so much out there to consider in ways to help heal from cancer. especially at this time with viro therapies in clinical trial at penn, and mayo, and other research hospitals-and immuno-therapies, we are at a game changing time with new, and hopeful therapies being developed.

for my family, we for sure, are not ready to give up on my mothers life yet. we know the possible reality facing us, but all of us have been researching on line, therapies i am sure all of you have been reading about, and/or trying as well.

  how disgusting that some humans would try to take advantage of others, scam people  at this point in their lives, with false cures, and treatments ~ just to make money.

weeding through the nonsense takes up such valuable time in finding hopefully, some things that might work~  anyway, that is where we are at with our journey~hoping for a miracle, as i am sure, we all are in each of our individual, and as a group~ journies~ how wonderful it would be  to be able to stay around long enough, with some sort of slowing therapy, until who knows, maybe the virotherapy gets properly tested, and approved, and everyone is still here to get that therapy~.

so here we are for today. in this surreal adventure.

i am sitting at the dining room table, i can hear my mother talking on the phone in the family room. i hold on to this moment. i cherish it, and i pray it multiplies beyond my expectations.

she's off the phone ow, so i am going to go in.

 thank you all for being on this site.  not having to keep a stiff upper lip, knowing you completely understand this ... no judgement, has been  a blessing. i mentioned before, sometimes i just come on and read, no commenting or signing in because i forget my password. so helps to read, and relate to all of you.  so thank you again, until next time.

blessings, jennie