Stage1 Grade1 Recurrence Treatment with Vaginal Radiation - You want to put that where???

First off, I thought the same thing when I heard "internal". 

Can I ask why your doctor thinks you are having a recurrence?  What kind of tests has he done?  Maybe some of the other women are more familiar and I think we all ask "what does a recurrence 'look' like?"

I had internal radiation.  What they insert looks like a large tampon.  You don't feel anything.  Bracytherapy does cause the vagina to shrink, so you should be given a dialator to use, they will say 3 times a week, others will say daily, if you do not have a sexual partner. 

It is not terrible, and it is very doable.  Some women have had intestinal issues as a result of it, and I know they will help out here.

Again, I think I would be curious WHY he thinks this?  Grade 1, Stage 1 is very low but anything is possible. 

I had 3   HDR (High Dose Radiation) brachytherapy treatments.   The treatment itself is quick (or at least mine was), but the initial part of it can be kind of embarrassing when they are fitting the dilator.   But after that, when you go back for your treatment, it is pretty quick.   After you are done with treatment, they want you to use a dilator to prevent scarring (or be sexually active at least 3x a week).   There is a post somewhere recently about this.

For me, it was easier than the chemo, just a tad bit embarrassing at first.

My best to you.

Kathy

PS   I didn't use the dilator and I didn't do the 3x a week thingy either - lol

debrajo said:

Where

I thought internal radiation was the easiest part and the lest painful.  Breezed right through.  My night mare didn't start till later.  They did an extended radical hysterectomy on me, meaning they took the cervix and one inch of the vagina.  The next inch was used to make the cuff.  At one checkup they had to "debreed" the chared skin in the cuff area and what was left of my vagina, about two inches.  The dialator didn't do any good, having sex with my husband didn't do any good.  No amount of creams, lotions, lubes, made a change.  There is only burn scar tissue, non streaching muscle, and no moisture.  So my sex live, per se, is over.  It has cost me my marriage of over 45 years.  I cannot make him understand.  He thinks I'm well, cancer gone, spent enough money that I'm all better.  Got his feelings hurt, won't work with me.  We are less than strangers.  If I had to do it again, I would because I want to live.  But there would be a lot more education for me and him.  Don't want to scare you.  Radiation is the gift that keeps on giving, or in my case it took too much.  Best, Debrajo

oh debrajo, in the end I would agree with you, "I would because I want to live".  To have an opportunity to help others, be an advocate (as many of the ladies here are)....the trade off doesn't even compare.  

debrajo said:

Where

I thought internal radiation was the easiest part and the lest painful.  Breezed right through.  My night mare didn't start till later.  They did an extended radical hysterectomy on me, meaning they took the cervix and one inch of the vagina.  The next inch was used to make the cuff.  At one checkup they had to "debreed" the chared skin in the cuff area and what was left of my vagina, about two inches.  The dialator didn't do any good, having sex with my husband didn't do any good.  No amount of creams, lotions, lubes, made a change.  There is only burn scar tissue, non streaching muscle, and no moisture.  So my sex live, per se, is over.  It has cost me my marriage of over 45 years.  I cannot make him understand.  He thinks I'm well, cancer gone, spent enough money that I'm all better.  Got his feelings hurt, won't work with me.  We are less than strangers.  If I had to do it again, I would because I want to live.  But there would be a lot more education for me and him.  Don't want to scare you.  Radiation is the gift that keeps on giving, or in my case it took too much.  Best, Debrajo

Yes Debrajo:

So sorry to hear about your marriage.  It is hard enough to deal with cancer, but to have someone not understand.  ((Hugs))

With the gift that keeps on giving, I know what you mean.   After my brachytherapy, the long term effect for me was a blockage in my left ureter by my bladder which my urologist said was the direct result of radiation.  So now I have to have a stent placed every three months.  Like you say, the gift that keeps giving.

Kathy

I am 62 years old and never thought I'd ever be speechless, well,now that I got my suspended breath back,can someone please tell me this , how does one measure their own  'thingy' (Kathy )apparatus.'   Is it done east to west ,north to south or heavens forbid front to back. and with WHAAAAT ?

I LOL then LOL then CHOKED then LOST my Breath

You ladies cracked  me up ,I am imagining you all here where I am  and we are laughing , having fun and defying cancer. What a beautiful thought I am thinking. What a gift to my burdened heart today to actually laugh out loud ,if only for a while.

                                                                            Plenty Plenty love, (thats what nuff nuff means)    Moli

PS. the bunch of you are crazy,

molimoli said:

Gasp! Gasp ! Gasp !

I am 62 years old and never thought I'd ever be speechless, well,now that I got my suspended breath back,can someone please tell me this , how does one measure their own  'thingy' (Kathy )apparatus.'   Is it done east to west ,north to south or heavens forbid front to back. and with WHAAAAT ?

I LOL then LOL then CHOKED then LOST my Breath

You ladies cracked  me up ,I am imagining you all here where I am  and we are laughing , having fun and defying cancer. What a beautiful thought I am thinking. What a gift to my burdened heart today to actually laugh out loud ,if only for a while.

                                                                            Plenty Plenty love, (thats what nuff nuff means)    Moli

PS. the bunch of you are crazy,

This thread is almost worth the price of admission lol.  And here I always thought concern about size was a "guy" thing.  Who knew?!

Double Whammy said:

I often count my blessings

That I too had Stage 1, Grade 1 endometrial cancer and did not need adjuvunct treatment.  But that's why you get checked - there is that small chance of recurrence.   I did my follow-ups and I did it because it is important.   I know our docs look for and feel for things, but I had never heard anyome mention "granulation".  Did they biopsy the area? Do a smear?   Before commiting to raadiation, I hope you have a frank discussion with your gyn oncologist about being sure that this is indeed a recurrence and/or if you can check it again in a couple of months to see if anything has changed before you commit to radiation if this is a just in case.  If you need it, I'm sure you will do it, but if you don't . . .   Yes, there is only a 5%  rare of recurrence.  The problem is they don't know if you're in the 95% of the women who don't recur, or the 5% who do.  And that's why you have followup exams. 

Age also effects the ViJayJay and its relationship with husbands or lovers.  Lack of lubrication.  Lack of interest.  And, for me, I've also had estrogen receptor positive breast cancer and no one is going to ever give me estrogen.  Talk about lack of interest in sex!  I thnk I now understand why old men seek younger women!   Argggggh!

It's been 5 years for me and I have been dismised from the gyn/oncologist.  He did his due diligence about telling me to have yearly exams by a gynocologist.  I have made the decision not to do it.  But it's been 5 years for me and that 5% is probably now .000000005% and I'm willing to take that chance.  I will, of course, show up if I have any symptoms.

Good luck to you. Happy to make you laugh, Molimoli.  Having cancer below the belt has a number of issues with life in general that the general public doesn't understand.  And there are many issues with lilfe after breast cancer that the general public  doesn't understanad.   The general public thinks you do all your front line treatmen and then life should be fine.  No one knows the fallout - you're alive, but life changes.

Suzanne

Suzanne - beautifully said on so many fronts.  

I googled (a dangerous thing!) granulation and from what I read doctors usually take a sample, put silver nitrate on the area and send it off to be tested.  Prissy, maybe you can ask about that? 

As for, "No one knows the fallout - you're alive, but live changes" I say: AMEN TO THAT SISTER!

Double Whammy said:

I often count my blessings

That I too had Stage 1, Grade 1 endometrial cancer and did not need adjuvunct treatment.  But that's why you get checked - there is that small chance of recurrence.   I did my follow-ups and I did it because it is important.   I know our docs look for and feel for things, but I had never heard anyome mention "granulation".  Did they biopsy the area? Do a smear?   Before commiting to raadiation, I hope you have a frank discussion with your gyn oncologist about being sure that this is indeed a recurrence and/or if you can check it again in a couple of months to see if anything has changed before you commit to radiation if this is a just in case.  If you need it, I'm sure you will do it, but if you don't . . .   Yes, there is only a 5%  rare of recurrence.  The problem is they don't know if you're in the 95% of the women who don't recur, or the 5% who do.  And that's why you have followup exams. 

Age also effects the ViJayJay and its relationship with husbands or lovers.  Lack of lubrication.  Lack of interest.  And, for me, I've also had estrogen receptor positive breast cancer and no one is going to ever give me estrogen.  Talk about lack of interest in sex!  I thnk I now understand why old men seek younger women!   Argggggh!

It's been 5 years for me and I have been dismised from the gyn/oncologist.  He did his due diligence about telling me to have yearly exams by a gynocologist.  I have made the decision not to do it.  But it's been 5 years for me and that 5% is probably now .000000005% and I'm willing to take that chance.  I will, of course, show up if I have any symptoms.

Good luck to you. Happy to make you laugh, Molimoli.  Having cancer below the belt has a number of issues with life in general that the general public doesn't understand.  And there are many issues with lilfe after breast cancer that the general public  doesn't understanad.   The general public thinks you do all your front line treatmen and then life should be fine.  No one knows the fallout - you're alive, but life changes.

Suzanne

Suzanne you are too bright, well said in a teaching motherly way,Thanks

molimoli said:

Shaking my head ,eyes rolling,mouth smiling, brain imagining

Cindi ,  Hits bottom ?  Hurray for those of us who have had enough ' thingy'  to last the rest of our days. Any thoughts I have had ,'and yes I have pondered 'will be thrown out the window pronto.

ouch!!

Moli! I am rolling on the ground in spirit.  Hits bottom... let's just say 2" deep just won't "accommodate" the given length expected to be "received"!!!!!  OMG OMG OMG

Chris - you are hilarious! Couldn't have said it better about size being a guy thing.

tee hee

TeddyandBears_Mom said:

OK, this is going the wrong way!

Moli! I am rolling on the ground in spirit.  Hits bottom... let's just say 2" deep just won't "accommodate" the given length expected to be "received"!!!!!  OMG OMG OMG

Chris - you are hilarious! Couldn't have said it better about size being a guy thing.

tee hee

Good thing this isn't a fish story about how big!   although I think 2 inches is a "minnow"  - lol

You girls are making me laugh!  And why am I starting to get a visual?   

Kathy

P.S.  Cindi, I thought Orajel was for your mouth/teeth?