Votrient working wonders in only 2 months

I am sooooooo HAPPY for YOU!!!

Time2luv, your results appear to be like mine. I'm on 400mg after starting on 800mg. White hair, upset belly. diarrhea, fatigue, decreased taste. Scans are in a couple weeks but they will be very acceptable because when I started with votrient in february, I was on my death bed. Today I will ride my Harley an hour to a Dr. appt. Yesterday walked 18 holes of golf. Blood pressure is high but we are watching it carefully. I hate the upset belly and sometimes the diarrhea is too much. Some days not an issue but when it is, I can work around it. I had spinal tumors that damaged my arms and legs but with the votrient and radiation, my improvements are unbelievable. I am very independent and functional thanks to votrient. I'll deal with the side effects and am very thankful to be alive. I've lost a lot of skin pigment and burn very easily. I'm glad sunscreen works. The side effects are pretty consistant and I don't think they will get worse. How I hope to be one of those people who get years of benefit from the drug. I'm also thankful that I am getting the drug for free. I hope that doesn't change.

It is fantastic to hear that Votrient is working great for you, Fox and my mom.  

Here is an old link posted by an old friend who has passed.  Helps with Votrient information on side affects etc. 

Keep up the great progress!  OOXX

mrou50 said:

Great

 I am glad Votrient is working for you I have been on it for 7 months now and it has been working.  As for diarrhea I get that alot I am on a prescription medication for it, as well as Immidium it works most of the time for me but there are days that even the pills don't stop the diarrhea.   I take 600 mgs a day my hair is white from head to toe, I have serious fatigue issues, as well as shortness of breath, most of the main side effects on their paperwork I have and just recently my skin on my hands and toes have started peeling.  My biggest advice to you is drink lots of water and gatorade the gatorade helps with cramping, Votrient sucks the electrolytes out of you.  I hope things keep going well for you.

 

Mark

 

 

Mark, my mom is the one using Votrient. I am the caregiver.  She is on 200 mgs a day as she is 82+ and that is all she can tolerate. So, if 600 mgs is a lot for you, just know that a lower dose can work too.  Just a couple of things to keep in mind. The shortness of breath. Have they been checking to make sure you wbc are good? I am assuming they are.  Also, if you got high blood pressure as a result of the meds they may have put you on certain pressure meds, these meds might be the culprit for the shortness of breath.  Ask your doctor if you think this is the case. It was with my mom. She had to change her med.  I am trying to remember the name of the pill she was on and had to get off.  Was it amolpodine? If someone on here remembers, please post it. My brain isn't working right now.

She takes her pill at night, two hours after dinner and doesn't eat for another hour after.  People have said taking it at night is more affective because the cancer is more active at night. It has made a difference for her.

Thanks for the information.  Find out about the gatorade also.  With one kidney she was told it would be too much for her other kidney to process.  Sometimes she drinks pedialite too if necessary to avoid dehydradtion.  XXOO

2 ½ years on Votrient 800 mg a day. Hair went white color came back after a bout a year. Had stomach issues Pantoprazole takes care of that. Diarrhea issues Lomotal takes care of that. Certain foods really make the diarrhea worse. 10 mg Lisinopril a day keeps BP in check. Every blood test for the 2 ½ years shows normal liver function. 3 times in the past 2 1/2 years I stopped for 3-5 days. My body re sets and kept the side effects in check. Doctor said that will help my body cope with the Votrient. My wife can hear my voice change when it’s time to stop. Guess they call it Chemo voice. That’s when I take the pause. I did get much better results when I switched to taking the Votrient when I wake up. Better scan results and lessened the side effects. I seem to get sun burns easier than before. I fish 15-20 tournaments year. So I wear UV long sleeve shirts wear a hat and use sun screen. I also bowl 3 nights a week in the fall and bowl 10-12 tournaments a year. Work 40 hours a week. I do dehydrate easier than before. Whether fishing or bowling if I don’t drink water or Gator aid. I won’t say that my life is 100% being on the Votrient but 90% is a good number. I will never give up I will never give in. I am living my life to its fullest each day. The little problems in life don’t bother me as much as they used to. I don’t dwell on having cancer. I did when I was first diagnosed. There is a lot of doom and gloom on the internet. CSN Cancer SURVIVORS Network is a great site. I enjoy reading success stories and cry when I read the sad ones. Someday soon they will find a cure. Every day they are getting closer and closer. I pray that we are all her to se it.