Third day after first chemo

Cucu me
Cucu me Member Posts: 213 Member
in Uterine/Endometrial Cancer #1

such a great pain in the bones between the knees and the ankles.

Tylenol does not help at all.

The rest of the side effects are minor.

Do you know anything that could relieve me and how long it'll last that pain?

Comments

  • debrajo
    debrajo Member Posts: 1,095 Member
    #2
    Pain

    Just happened to see your post.  Can't remember if you re on Taxol/Carboplatin.  I was and from the second day after chemo to about the fifth day, the pain from my hips/back,legs and down hit me so hrd and so quickly that it litertily brought me to my knees on the ground.  The thing I found that helped was to take  hydrocordone on the first day after chemo and at the next dousage to take Motrin.  Keep altering til day five or so.  I got the perscription for the hydrocodene from my regular PCP.  It will make the pain tolerable.  Don't wait to start hurting to take the meds.  Start early to get a handle on it.  Hope this helps!  Best, Debrajo

  • Cucu me
    Cucu me Member Posts: 213 Member
    #3
    debrajo said:

    Pain

    Just happened to see your post.  Can't remember if you re on Taxol/Carboplatin.  I was and from the second day after chemo to about the fifth day, the pain from my hips/back,legs and down hit me so hrd and so quickly that it litertily brought me to my knees on the ground.  The thing I found that helped was to take  hydrocordone on the first day after chemo and at the next dousage to take Motrin.  Keep altering til day five or so.  I got the perscription for the hydrocodene from my regular PCP.  It will make the pain tolerable.  Don't wait to start hurting to take the meds.  Start early to get a handle on it.  Hope this helps!  Best, Debrajo

    Thanks Debajo

    Yes, Taxol/Carboplatin.

    The Oncologist told me Tylenol, but I'll ask.

    Til day five, omg.....

    Thanks for your responce.

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    #4
    When I was on Taxol I had

    When I was on Taxol I had severe bone pain starting on day 3 and lasting for 3-4 days.  I took Hydrocodone at night for about 3 days.  My pain came from the Taxol and not the Nuelasta shot I got the day after chemo.  The hydrocodone helped alot.  I am sorry you have to go through this. It is miserable,  Praying you get relief.  Lou Ann

  • Hopeful162
    Hopeful162 Member Posts: 82
    #5
    Chemo Bone Pain

    Yes, I remember that bone pain from the carbo/taxol chemo starting like clockwork on the third day. I had severe pain from my hips to my knees. My oncologist warned me that I might have flu symptoms for a couple days, but this was not like any flu I've ever had! I called his office and was told I could take 600mg ibuprofen every six hours as I had post surgery. I could also take hydrocodone, but I ended up not taking that as I was afraid of nausea. One good thing, with the other medicines the day of and after infusion, I never had any nausea!

    The ibuprofen worked pretty well for mel and fortunately the pain was only bad for about 3-4 days each time. Then I would get respite for about two weeks before the next time. That first time especially I could not eat or sleep comfortably and lost 8 pounds in three days, which really surprised me. So hang in there. Eventually it will only be a memory of a difficult time.

  • Cucu me
    Cucu me Member Posts: 213 Member
    #6
    Hopeful162 said:

    Chemo Bone Pain

    Yes, I remember that bone pain from the carbo/taxol chemo starting like clockwork on the third day. I had severe pain from my hips to my knees. My oncologist warned me that I might have flu symptoms for a couple days, but this was not like any flu I've ever had! I called his office and was told I could take 600mg ibuprofen every six hours as I had post surgery. I could also take hydrocodone, but I ended up not taking that as I was afraid of nausea. One good thing, with the other medicines the day of and after infusion, I never had any nausea!

    The ibuprofen worked pretty well for mel and fortunately the pain was only bad for about 3-4 days each time. Then I would get respite for about two weeks before the next time. That first time especially I could not eat or sleep comfortably and lost 8 pounds in three days, which really surprised me. So hang in there. Eventually it will only be a memory of a difficult time.

    It hurts, omg

    I left message,but it's weekend, so they would call me tomorrow, I guess.

    They said no to Ibuprofen, ok for tylenol. I'll ask for something else.

    Thanks for the responce. Started on the third day, as you say.

  • Tikvah
    Tikvah Member Posts: 24
    #7
    Cucu me said:

    It hurts, omg

    I left message,but it's weekend, so they would call me tomorrow, I guess.

    They said no to Ibuprofen, ok for tylenol. I'll ask for something else.

    Thanks for the responce. Started on the third day, as you say.

    try dialudid pain killer --

    try dialudid pain killer -- ask the oncologist or the nurse.  

  • Cucu me
    Cucu me Member Posts: 213 Member
    #8
    Tikvah said:

    try dialudid pain killer --

    try dialudid pain killer -- ask the oncologist or the nurse.  

    Glutamine?

    Also I read about Glutamine in a post from few years ago, I saw it accidentally,

    have you heard, have you tried?

    Thanks to all responces

  • DebiR
    DebiR Member Posts: 38 Member
    #9
    I had the same problem.  

    My pain was so bad they ended up adding oxycodone as 600mg Tylenol just wasn't helping.  I took it every 6 hours I think during those worst days and then once a day before bed as needed for the remaining couple of weeks.  I couldn't have managed the pain with out it.  

    Debi

  • Cucu me
    Cucu me Member Posts: 213 Member
    #10
    DebiR said:

    I had the same problem.  

    My pain was so bad they ended up adding oxycodone as 600mg Tylenol just wasn't helping.  I took it every 6 hours I think during those worst days and then once a day before bed as needed for the remaining couple of weeks.  I couldn't have managed the pain with out it.  

    Debi

    I can take Hydrocodon next time

    The nurse called me and said that

    So, good to know

    I feel much better today, but still taking Tylenol.

    Have a good day Ladies, you are such a support,thank you

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,516 Member
    #11
    Yep, like the other ladies

    Yep, like the other ladies who have commented, mine kicked in about 4-5 days later.  It hurt to just lie still on the sofa.  I asked my sister to help find something to help as I didn't think glucosamine would help.  She found, and I tried, EGGSHELL MEMBRANE.  Yep, you can buy pure eggshell membrane capsules.  I found them at the Vitamine Shoppe.  $25 for a 30 day count.  I found relief within DAYS.

    Just a suggestion.  The first round of chemo was the worst for me.  I think my body reacted, "Just WHAT THE HECK???!!!"  :)

    Hope something helps.

  • Cucu me
    Cucu me Member Posts: 213 Member
    #12
    NoTimeForCancer said:

    Yep, like the other ladies

    Yep, like the other ladies who have commented, mine kicked in about 4-5 days later.  It hurt to just lie still on the sofa.  I asked my sister to help find something to help as I didn't think glucosamine would help.  She found, and I tried, EGGSHELL MEMBRANE.  Yep, you can buy pure eggshell membrane capsules.  I found them at the Vitamine Shoppe.  $25 for a 30 day count.  I found relief within DAYS.

    Just a suggestion.  The first round of chemo was the worst for me.  I think my body reacted, "Just WHAT THE HECK???!!!"  :)

    Hope something helps.

    sure, helps

    Thanks so much.

    Is the first chemo the worst, or is getting worse later?

  • Tikvah
    Tikvah Member Posts: 24
    #13
    Cucu me said:

    sure, helps

    Thanks so much.

    Is the first chemo the worst, or is getting worse later?

    For me, the pain got worse with each treatment, BUT

    I didn't ask for pain killers -- I just sucked it up.

     

    I think if you get an effective pain killer, and take it at the first sign of pain (always easier to stop it when it is mild), you might be able to help control it.  I probably made a mistake not taking anything. 

     

    What did matter though is that my neutrophils dropped to .2 -- really low with huge chance of infection, and because of the pain, my oncologist did not give me the shots to raise the neutrophils.  I ended up with zero infections -- didn't even get the flu ( I was really careful )

     

    But nip this pain in the bud.

    good luck.  It's different with everyone.  

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,516 Member
    #14
    Cucu me said:

    sure, helps

    Thanks so much.

    Is the first chemo the worst, or is getting worse later?

    I was terrified it would

    I was terrified it would always be as bad as the first time and it wasn't.  We are all different.  Hang in there!!

     

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    #15
    NoTimeForCancer said:

    I was terrified it would

    I was terrified it would always be as bad as the first time and it wasn't.  We are all different.  Hang in there!!

     

    My experience

    Was the same as NTFC.  let's hope it works that way for you 

  • Sandy3185
    Sandy3185 Member Posts: 229 Member
    #16
    Third day

    like many others, my pain would begin on the second or third day after chemo, pain in legs, knees and ankles along with flu like symptoms, fatigue and loss of appetite. Unfortunately, my reaction seemed to get worse with each treatment, adding peripheral neuropathy in feet and hands, plus the reaction lasted longer and longer each time. After my third treatment, my Dr had to change the Taxol to Taxotere(? Spelling) because of the increased neuropathy.  I did take pain killers at night(oxycodone) but, in general, I felt pretty  lousy for about two weeks after treatment. I think that my reaction was more severe than most people's. I can't tell you how relieved I was to ring that bell after my 6th, and last, treatment! I know this is not what you want to hear, but it passes and you will feel normal again! It has been one year since I completed all treatment. I'm feeling great, have a full head of hair and I am one year NED!

    Sandy

  • Cucu me
    Cucu me Member Posts: 213 Member
    #17
    Sandy3185 said:

    Third day

    like many others, my pain would begin on the second or third day after chemo, pain in legs, knees and ankles along with flu like symptoms, fatigue and loss of appetite. Unfortunately, my reaction seemed to get worse with each treatment, adding peripheral neuropathy in feet and hands, plus the reaction lasted longer and longer each time. After my third treatment, my Dr had to change the Taxol to Taxotere(? Spelling) because of the increased neuropathy.  I did take pain killers at night(oxycodone) but, in general, I felt pretty  lousy for about two weeks after treatment. I think that my reaction was more severe than most people's. I can't tell you how relieved I was to ring that bell after my 6th, and last, treatment! I know this is not what you want to hear, but it passes and you will feel normal again! It has been one year since I completed all treatment. I'm feeling great, have a full head of hair and I am one year NED!

    Sandy

    thank you for all responces

    I feel better now, but still taking Tylenol.

    For next time  I'll get prepared with more pills and supplements after I ask the doctors.

  • mamamoody
    mamamoody Member Posts: 28
    #18
    chemo

    Everybody's different.  For me, each treatment got worse.  Also, my second round of chemo was worse than my first.  The first time, I started losing my hair right after the third treatment.  The second time around, I started losing my hair after the first treatment.   My biggest complaint with the carboplatin/taxol was the neuropathy in my feet.  I already had it (diabetic) before starting the treatments.  Each treatment made it worse.  The first week was always the worse.  About halfway through treatments, I started using R-Lipoic Acid to help my neuropathy along with some DoTerra oils on my feet before going to bed.

  • Cucu me
    Cucu me Member Posts: 213 Member
    #19
    mamamoody said:

    chemo

    Everybody's different.  For me, each treatment got worse.  Also, my second round of chemo was worse than my first.  The first time, I started losing my hair right after the third treatment.  The second time around, I started losing my hair after the first treatment.   My biggest complaint with the carboplatin/taxol was the neuropathy in my feet.  I already had it (diabetic) before starting the treatments.  Each treatment made it worse.  The first week was always the worse.  About halfway through treatments, I started using R-Lipoic Acid to help my neuropathy along with some DoTerra oils on my feet before going to bed.

    thanks mamamoody

    I'll have in mind what you say.

    OMG,good luck to us

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