Recurring Uterine Cancer found on Peritoneum

Ed-Husband
Ed-Husband Member Posts: 4
in Uterine/Endometrial Cancer #1

My wife (59yo) had a radical hysterectomy last year because of stage 4 Uterine cancer. Toxlin-Carboplatin followed by radiation.   Her CA125 showed no cancer for about 6 months after Radiation was completed.  Then it went up.  CT Scan showed small cluster of spots on Peritoneum, near Liver.  Started Doxil today.  They actually missed them in the CT scan until MD went back and said CA125 is too high for something not to be there.  MD is all gloom and doom and no one else we have talked to seems to know why?  Seems like we caught it early, right? 

Comments

  • AWK
    AWK Member Posts: 364 Member
    #2
    I have had progression since frontline

    Hi Ed, how lucky is your wife to have you!  My mets were found within 90 days of finishing frontline treatments including carbo/taxol, radiation and brachytherapy.  Doctors jump all over anything found shortly after the frontline and take it extremely seriously.  From what I have read the longer between treatment and recurrence the better the likelihood of overcoming the recurrence.  My mets are adjacent to the heart inside the pericardial sac, on the left kidney, diaphragm, right kidney and somewhere in the middle.  All are inoperable.  I had three rounds of Doxil which works well for many.  Then I moved on to Avastin (11 rounds) and am now looking at clinical trials.  I am living fully, riding horses and working full time.  

    In my initial pre surgery ct scan the radiologist missed two lymph nodes.  My surgeon wasn't happy but it didn't change the outcome per se.  Sometimes we forget our care team is human too.  I was Dx stage IIIC UPSC or IVB in a second opinion.  If you have any questions just ask away.  We are all here for you both!  

    Keeping you both in my prayers.  Anne

  • mamamoody
    mamamoody Member Posts: 28
    #3
    Also recurrent

    Hi Ed,

    I am also 59 and battling recurrent uterine cancer to both my lungs.  My recurrent cancer was caught early, before any symptoms, through a routine CT scan.  I've found out since, that recurring cancer isn't that uncommon and also isn't necessarily a death sentence.  After my initial cancer was "cured" (in my mind at least) I wanted my chemo port taken out and my gyn/onc wouldn't do it "just in case".  I didn't like hearing those words at all!   So here I am again, but I can tell you that it's a gift from God that the mets was caught early in your wife.    I thank God often for my own husband who has gone beyond and back taking care of me through all this. Being the caregiver can be the toughest job of all.  God bless you both.

  • Ed-Husband
    Ed-Husband Member Posts: 4
    #4
    mamamoody said:

    Also recurrent

    Hi Ed,

    I am also 59 and battling recurrent uterine cancer to both my lungs.  My recurrent cancer was caught early, before any symptoms, through a routine CT scan.  I've found out since, that recurring cancer isn't that uncommon and also isn't necessarily a death sentence.  After my initial cancer was "cured" (in my mind at least) I wanted my chemo port taken out and my gyn/onc wouldn't do it "just in case".  I didn't like hearing those words at all!   So here I am again, but I can tell you that it's a gift from God that the mets was caught early in your wife.    I thank God often for my own husband who has gone beyond and back taking care of me through all this. Being the caregiver can be the toughest job of all.  God bless you both.

    Thank you both!!!

    Thank you both! Your stories are very very helpful.  We are staying in contact with all our friends and family, staying active and enjoying each day together.

    She is on so many prayer lists I have lost count.  She's a fighter an I am in for the long haul.  Thank you again and God Bless you both!

  • mamamoody
    mamamoody Member Posts: 28
    #5
    I believe in prayer!

    I believe in prayer!

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,488 Member
    #6
    mamamoody said:

    I believe in prayer!

    I believe in prayer!

    Amen, sister!

    Amen, sister!

  • AWK
    AWK Member Posts: 364 Member
    #7
    NoTimeForCancer said:

    Amen, sister!

    Amen, sister!

    Storming Heaven is what we call it when sending prayers

    I am a big believer in the power of prayer.  Anne

  • molimoli
    molimoli Member Posts: 514
    #8
    Gust of wind

    Hi Ed, Sorry you have to be here but hang with us , you will be comforted and encouraged.You will also learn a thing or  two.

    Your statement that you will be " in for the long haul " speaks volume about you . That commitment will give her the gust of wind she needs beneath her wings . With the new reality she no doubt feels battered and worn, with your reassurance she will no doubt find her footing again.

    I and  the women on this board  Salute you  Mr Real Man. May your creator keep you strong for her and you, It's heavy lifting but with that kind of love and caring, the friends and family and the support of the women here you won't falter.

    To your wife I wish NED in just a little while.  Showers of blessings.

                                                                       Moli

  • molimoli
    molimoli Member Posts: 514
    #9
    molimoli said:

    Gust of wind

    Hi Ed, Sorry you have to be here but hang with us , you will be comforted and encouraged.You will also learn a thing or  two.

    Your statement that you will be " in for the long haul " speaks volume about you . That commitment will give her the gust of wind she needs beneath her wings . With the new reality she no doubt feels battered and worn, with your reassurance she will no doubt find her footing again.

    I and  the women on this board  Salute you  Mr Real Man. May your creator keep you strong for her and you, It's heavy lifting but with that kind of love and caring, the friends and family and the support of the women here you won't falter.

    To your wife I wish NED in just a little while.  Showers of blessings.

                                                                       Moli

    This is a shout out to all the wonderful dedicated  'for the long haul" men who are in the background comforting, caring and loving. we women on this board  (those  with one of you and those without ) Salute you ,appreciate you ,and pray for your continued strength and sanity.

    Remember,  women with pained and broken bodies  don't always make good company. Therefore, if you find that counting to ten not doing it then count to 15,     over and over and over again. You've been warned.

    Thanks to the Creator for you.,Stay Resolved it looks good on you Real Men.

  • mamamoody
    mamamoody Member Posts: 28
    #10
    molimoli said:

    This is a shout out to all the wonderful dedicated  'for the long haul" men who are in the background comforting, caring and loving. we women on this board  (those  with one of you and those without ) Salute you ,appreciate you ,and pray for your continued strength and sanity.

    Remember,  women with pained and broken bodies  don't always make good company. Therefore, if you find that counting to ten not doing it then count to 15,     over and over and over again. You've been warned.

    Thanks to the Creator for you.,Stay Resolved it looks good on you Real Men.

    To have a good husband is uncommon now days, but to have a great husband who sticks with you throughout this mess is a rare thing indeed.  I've got one of those and I'm so thankful for him.  I really didn't know how well he would deal with me being "out of commission", but he's really been a rock. Yes, he does get tired of it (it's been about 3 years since my diagnosis) but for the most part he's been helpful, supportive, and protective (sometimes too much).  My hope is that each of us has someone in our life to help us get through this and gives us the love and support we need. Caregivers have a tough job ... God bless all of them! 

  • Ed-Husband
    Ed-Husband Member Posts: 4
    #11
    AWK said:

    I have had progression since frontline

    Hi Ed, how lucky is your wife to have you!  My mets were found within 90 days of finishing frontline treatments including carbo/taxol, radiation and brachytherapy.  Doctors jump all over anything found shortly after the frontline and take it extremely seriously.  From what I have read the longer between treatment and recurrence the better the likelihood of overcoming the recurrence.  My mets are adjacent to the heart inside the pericardial sac, on the left kidney, diaphragm, right kidney and somewhere in the middle.  All are inoperable.  I had three rounds of Doxil which works well for many.  Then I moved on to Avastin (11 rounds) and am now looking at clinical trials.  I am living fully, riding horses and working full time.  

    In my initial pre surgery ct scan the radiologist missed two lymph nodes.  My surgeon wasn't happy but it didn't change the outcome per se.  Sometimes we forget our care team is human too.  I was Dx stage IIIC UPSC or IVB in a second opinion.  If you have any questions just ask away.  We are all here for you both!  

    Keeping you both in my prayers.  Anne

    Sorry to be out of touch

    Well we went through 3 treatments of Doxil and the scan got worse even though the CA125 seemed to be dropping steadly.  So its off to MD Anderson in Houston to see what our options are.

    Still no Organs involved and lymph nodes look normal. All on the abdominal wall.  No one has mentioned Avastin yet.  My wife is on the phone with MD Anderson now.  More later.

     

    Ok we have an appointment for Tuesday 9/15/15 at MD Anderson. 

  • AWK
    AWK Member Posts: 364 Member
    #12
    Ed-Husband said:

    Sorry to be out of touch

    Well we went through 3 treatments of Doxil and the scan got worse even though the CA125 seemed to be dropping steadly.  So its off to MD Anderson in Houston to see what our options are.

    Still no Organs involved and lymph nodes look normal. All on the abdominal wall.  No one has mentioned Avastin yet.  My wife is on the phone with MD Anderson now.  More later.

     

    Ok we have an appointment for Tuesday 9/15/15 at MD Anderson. 

    Please keep us posted

    Keeping you both in my prayers.  Still storming heaven!  

    They are doing good things and there is a lot of information out there.  If you feel up to it, share what you find out treatment wise.  Hugs - Anne

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