Anyone else diagnosed with stage 3B uterine cancer?

mets close to bladder and rectum, plus trace acites, but negative lymph nodes.

Surgery and now chemo.

Not the same boat, but still similar situation.

Tikvah said:

AWK
 
hmm my uterous was the

AWK

 

hmm my uterous was the size of 3 month pregnancy.  so happy to read you are thriving!!!!!!!!

 

= Karen

Just had first chemo on Wednesday. No other side effects, but this pain in my bones under the knees.

I wrote already about it. I have to wait few more days and I'll keep you posted.

Endometrial adenocarcinoma IIIC. Two large tumors in endometrium spread into cervix and vaginal ceiling, one lymph node.  Diagnosed early Summer of 2012.  Radical hysterectomy in Aug 2012, then basically same treatments as you had.  Found out late 2013, same cancer had spread to both lungs.  More chemo, now on estrogen-inhibitor. Still have it, but lung nodules greatly reduced in number and size.  Doing well, but the Femara (letrozole) can make life miserable sometimes.  Overall, I'm doing great considering and God is good.

Tikvah said:

mamamoody

I'm so happy for you that the lung nodules are reduced in number and size -- that treatment is working.  

I don't know what Femara is...  Your timeframe is just a few months before mine.  I wonder why we are all not on estrogen-iibitors -- is that the Femara?  I hope the nodules completely vanish and you go into full and permanent remission.  Keep me posted.

I had never heard of the estrogen-inhibitors either (there's three different ones) since my onc suggested it since I couldn't have anymore chemo for awhile.  I now know that it is usually used in breast cancer treatments for estrogen based cancers, which mine is.  It really makes me hurt, but they are talking long term use - 5 to 10 years after the cancer is gone (which it isn't quite yet).  Each CT SCAN has shown reduction in size and numbers since being on it EXCEPT this last scan in March.  Everything was stable, still just two little nodules (one in each lung),  and no new nodules anywhere.  Next scan in Sept.  Where are you at in treatment?

mamamoody said:

where are you?

Anybody else here from Texas?  Actually, can we share what state we are in?  Totally at your discretion.  Just curious

Being treated at the Leavey Cancer Center in Northridge which is affiliated with UCLA.  I had consults and opinions at The City of Hope, USC Norris and Ceders Sinai.  Due to my UPSC, unusual spreading and genome make up my tema now consists of doctors from those hospitals, researchers plus Dana Farber, Sloan Kettering and MD Anderson.  

mamamoody said:

where are you?

Anybody else here from Texas?  Actually, can we share what state we are in?  Totally at your discretion.  Just curious

Originally from Missouri, the St. Louis area, we moved to Montana 36 years ago.  I started treatment in Butte, Mt because it is closer. When I had a recurrence 7 months after treamnet ended. I changed to the Bozeman Cancer Center in Bozeman, MT.   I recieve excellent care there.  Lou An

mamamoody said:

Endometrial adenocarcinoma

Endometrial adenocarcinoma IIIC. Two large tumors in endometrium spread into cervix and vaginal ceiling, one lymph node.  Diagnosed early Summer of 2012.  Radical hysterectomy in Aug 2012, then basically same treatments as you had.  Found out late 2013, same cancer had spread to both lungs.  More chemo, now on estrogen-inhibitor. Still have it, but lung nodules greatly reduced in number and size.  Doing well, but the Femara (letrozole) can make life miserable sometimes.  Overall, I'm doing great considering and God is good.

Hi again.  we just got through first Doxil treatment on recurrant Adenocarcinoma.  Her CA125 had been down around 9 for about 6 months.  Then it jumped to 52 and Doc did a CT scan.  It was read as negative.  So repeated the CA125 two weeks later and it was 120.  Rescanned still negative.  Doc made radiology go back and re-read scan.  Found two measurabloe nodes.  Largest 1.2cm.  All on the Peritineum.  Did a biopsy to confirm same cancer.  Took another CA125 10 days later and started Chemo.  Benchmark CA125 is 262.  Checking next week to see if that has changed.  I don't know much about CA125 to know if this is alarming other than the obvious?  Doc says not to get hung up on the numbers.  Will rescan Mid August.

Oh and Lafayette, Louisiana

Ed-Husband said:

CA125

Hi again.  we just got through first Doxil treatment on recurrant Adenocarcinoma.  Her CA125 had been down around 9 for about 6 months.  Then it jumped to 52 and Doc did a CT scan.  It was read as negative.  So repeated the CA125 two weeks later and it was 120.  Rescanned still negative.  Doc made radiology go back and re-read scan.  Found two measurabloe nodes.  Largest 1.2cm.  All on the Peritineum.  Did a biopsy to confirm same cancer.  Took another CA125 10 days later and started Chemo.  Benchmark CA125 is 262.  Checking next week to see if that has changed.  I don't know much about CA125 to know if this is alarming other than the obvious?  Doc says not to get hung up on the numbers.  Will rescan Mid August.

 

Oh and Lafayette, Louisiana

My numbers bounce around as described by my doctors.  They test for it as well as Ca 19-9.  They follow ovarian protocols closely including the ca 125 which he thinks isn't a great marker for me as a stand alone.  Ct scans really seem to drive everything.