New Diagnosis of Invasive Ductal Carcinoma

debv
debv Member Posts: 1
edited June 2015 in Breast Cancer #1

I was diagnosed with IDC 2 weeks ago..I'm waiting for gentic testing results and Oncotype results. I have to decide what  I want to have lumpectomy with radiation and possibly chemo and take a chance on it coming back in a few years...or go with the double mastectomy and not have either  I'm mentally struggling with the decision for mastectomy  I don't think reconstruction I will work with  I'm so confused I need help in making this decision. Your help is so needed. 

Comments

  • yamster34
    yamster34 Member Posts: 75
    My mom is a breast cancer

    My mom is a breast cancer survivor. She had a double mastectomy without reconstruction. She was 69 years old at the time. She often talks about her breasts like she wishes she either did not have them both removed or wishes she had gotten reconstruction. I was her caregiver at the time and saw how difficult everything was on her. I am 44 years old and was diagnosed with terminal ovarian cancer that spread to my speen and liver. The doctor seemed to think I was going to die almost immediately. It was 9 month ago yesterday since I was diagnosed. I figured that if the doctor had already written me off, I would trust my life in the Lord's hands. I was on a vegan diet for a couple months. I have not had surgery, chemo, or radiation.  I am using a lot of prayer and have hospice coming in. This may not work for everyone. Quite a few people I know said that I look much better now than I did during my diagnosis. I know I feel better than I have in a long time. I realized that doctors don't know when any of us will die for sure. Don't be too concerned with the statistics you read or what doctors tell you as they don't tend to tell the complete story.

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    I don't have much as far as

    I don't have much as far as an opinon. I had two lumpectomies (same said and very small breasted)

     

    I am sure others will have great advice.

     

    Thinking of you..

    Denise

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    yamster34 said:

    My mom is a breast cancer

    My mom is a breast cancer survivor. She had a double mastectomy without reconstruction. She was 69 years old at the time. She often talks about her breasts like she wishes she either did not have them both removed or wishes she had gotten reconstruction. I was her caregiver at the time and saw how difficult everything was on her. I am 44 years old and was diagnosed with terminal ovarian cancer that spread to my speen and liver. The doctor seemed to think I was going to die almost immediately. It was 9 month ago yesterday since I was diagnosed. I figured that if the doctor had already written me off, I would trust my life in the Lord's hands. I was on a vegan diet for a couple months. I have not had surgery, chemo, or radiation.  I am using a lot of prayer and have hospice coming in. This may not work for everyone. Quite a few people I know said that I look much better now than I did during my diagnosis. I know I feel better than I have in a long time. I realized that doctors don't know when any of us will die for sure. Don't be too concerned with the statistics you read or what doctors tell you as they don't tend to tell the complete story.

    Yamster

    Laughing

  • eihtak
    eihtak Member Posts: 1,473 Member
    debv.....

    Hi

    I am sorry for the situation you find yourself in. A little over 3 yrs ago I was diagnosed with Secretory Carcinoma of the breast (a rare bc accounting for <1% of all breast cancers). Treatment was a mastectomy and I chose to have a double.

    For me reconstruction was not an option as this came just a year after being treated for Stage 3b anal cancer and I was healing from chemo/rad as well as had ostomy surgery.

    I can't say for sure what I would have done regarding reconstruction had my situation been different, but have been completely comfortable with out. These decisions are so personal and each individual has to make their own. Whats best for one is not necessarily what feels right for another. I will tell you that I have a smaller build and like the feeling of symmetry in having had a double mastectomy. There have been a few times (mostly only involving dresses) that fitting is a problem, as many have darts and are cut to fit breasts! I occasionally wear a lightly padded sports type bra just to add some shape and easier fit, but also go without. (Much cooler and more comfortable in warm weather)

    Scarfs are another great way to feel balanced as well.

    Since I deal with long term issues related to my initial anal cancer and was recently treated for a recurrance in my lung, I am thankful to have a little less worry of recurrance of the breast cancer. While there are never any guarantees in these matters I have no regrets in having had the mastectomies.

    I will keep you in my thoughts and prayers that you come to a decision that feels right for you and wishing you health and peace as you move forward.

    katheryn

  • Lilly9
    Lilly9 Member Posts: 155
    eihtak said:

    debv.....

    Hi

    I am sorry for the situation you find yourself in. A little over 3 yrs ago I was diagnosed with Secretory Carcinoma of the breast (a rare bc accounting for <1% of all breast cancers). Treatment was a mastectomy and I chose to have a double.

    For me reconstruction was not an option as this came just a year after being treated for Stage 3b anal cancer and I was healing from chemo/rad as well as had ostomy surgery.

    I can't say for sure what I would have done regarding reconstruction had my situation been different, but have been completely comfortable with out. These decisions are so personal and each individual has to make their own. Whats best for one is not necessarily what feels right for another. I will tell you that I have a smaller build and like the feeling of symmetry in having had a double mastectomy. There have been a few times (mostly only involving dresses) that fitting is a problem, as many have darts and are cut to fit breasts! I occasionally wear a lightly padded sports type bra just to add some shape and easier fit, but also go without. (Much cooler and more comfortable in warm weather)

    Scarfs are another great way to feel balanced as well.

    Since I deal with long term issues related to my initial anal cancer and was recently treated for a recurrance in my lung, I am thankful to have a little less worry of recurrance of the breast cancer. While there are never any guarantees in these matters I have no regrets in having had the mastectomies.

    I will keep you in my thoughts and prayers that you come to a decision that feels right for you and wishing you health and peace as you move forward.

    katheryn

    I was also diangosed with

    I was also diangosed with IDC.   I had a double mastectomy, lymph nodes on the right removed.   Expanders were placed at the time of my surgery.   I have since had my implants put in.  I don't regret a minute of my decision.   I didn't want to take a chance of the cancer coming back in my left breast so the double mastectomy seemed like the only right decision for me.  You have to do what is right for you - not anyone else.   

  • new4daisy
    new4daisy Member Posts: 6
    Hi debv,  
    I am so sorry you

    Hi debv,  

    I am so sorry you are having to make these decisions.  It is extremely overwhelming when you are diagnosed and face so many choices ahead.  I was diagnosed last June  with Invasive Ductal Carcinoma.  My surgeon suggested a lumpectomy (and I trusted his opinion).  I had the lumpectomy in July.  They did not get clean margins at the time of the first surgery (which happens, I found out after getting pretty upset about it). So, I went back into surgery 2 weeks later to get clean margins. My oncotype took about 6 wks to get results (with insurance approval and all), that was very hard to wait for those results.  It came back that I had a score of 18 which is the lower end of the medium range.  My oncologist (which I also trust) suggested chemo. Her advice was that I want to do everything we possibly can to keep this cancer from recurring.  I did chemo (6 rounds), which I started in Sept. and finished in Jan.  I went on to have 33 radiation treatments and finished that in March.  

    The only advice I can give is trust those doctors that are caring for you, if you feel they deserve your trust and follow what you and only you feel to be best for your body.  You are so smart to reach out to this website!  I wish I would have turned to it a year ago for support.  I'm sending hugs and prayers your way for peace and strength in your journey ahead.  Blessings to you

     

  • ballerina06
    ballerina06 Member Posts: 57
    I'm sorry you have to go through this

    I was diagnosed with dcis and had lumpectomy and radiation. A year later, had reoccurence and mastectomy. I had a bilateral mastectomy with reconstruction. My breasts look wonderful. I am 54 and my breast look 23, per husband and friends. I'm not bashful. However, if you do reconstruction make sure you have a great surgeon do lots of research. Best of luck to you.