New to the board please help me

bigal88
bigal88 Member Posts: 14
in Colorectal Cancer #1

Going to see oncologist tomorrow had colon resection on May the 13 and needl biopsy of lymph node in the neck. Both came back as cancer adeno carcinoma it have multiple nodules on both lungs doctor said it doesn't look typical because it looks like both lungs were shot with bb's plus my liver is completely clear I know I will have to have chemo for sure, any one have anything similar to this I'm curious about how long chemo would last for and how often I know it can be different with any case but I would really like to hear any information that relates to my situation at all thank you

Comments

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #2
    Sorry

    Sorry you had to join our group but you can find a lot of answers and support here.  I'm not familiar with your situation but there are others on here that have had lung and lymph involvement.  Treatment a lot is dependent on your doctor and how they want to treat it.  Different cocktails for different involvement.  Mine was oxy and folfox and was one day infusion and then went home with a pump for 48 hours.  If you have any questions don't hesitate to ask and welcome.  We are here to help.

    Kim

  • John23
    John23 Member Posts: 2,122 Member
    #3
    Let me be the first to tell you......

    Let me be the first to tell you......

    Get other opinions from colorectal surgeons that are not of the same group or association before beginning this life changing event;  You need second and third opinions!

    Surgeons are generally more objective than the average Oncologist, and if it’s possible to use surgery to remove the cancer, that route is usually the best. An experienced surgeon will be able to give you his/her assessment regarding your specific situation. If chemo will do better, they will tell you so, while the average Oncologist will tend to go chemo or radiation only.

    I can’t stress it more: Get other opinions prior to beginning any treatment!

    I wish you well !!

    John

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #4
    John 23 has given you some

    John 23 has given you some very sound advice.

  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #5
    John23 said:

    Let me be the first to tell you......

    Let me be the first to tell you......

    Get other opinions from colorectal surgeons that are not of the same group or association before beginning this life changing event;  You need second and third opinions!

    Surgeons are generally more objective than the average Oncologist, and if it’s possible to use surgery to remove the cancer, that route is usually the best. An experienced surgeon will be able to give you his/her assessment regarding your specific situation. If chemo will do better, they will tell you so, while the average Oncologist will tend to go chemo or radiation only.

    I can’t stress it more: Get other opinions prior to beginning any treatment!

    I wish you well !!

    John

    Great Advice

    imageimage

  • Easyflip
    Easyflip Member Posts: 588 Member
    #6
    Hello

    I agree with getting a second opinion but it sounds like there are too many little mets in your lungs to get all of them surgically. Having said that I know there is a clinic in Germany that specializes in surgical removal of lung mets. I'm an advocate of cutting out as much cancer as possible. You can find them on line. No liver involvement is good, but it's in your lymph so chemo for sure. Folfox wasn't that bad for me. I'm stage 4 out 2 years and 3 months, keep the faith it can be beat! Now a little humor,  bigal88 are you Big Al or Bi Gal? It does make a difference! : )

     

    Easyflip/Richard

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #7
    Easyflip said:

    Hello

    I agree with getting a second opinion but it sounds like there are too many little mets in your lungs to get all of them surgically. Having said that I know there is a clinic in Germany that specializes in surgical removal of lung mets. I'm an advocate of cutting out as much cancer as possible. You can find them on line. No liver involvement is good, but it's in your lymph so chemo for sure. Folfox wasn't that bad for me. I'm stage 4 out 2 years and 3 months, keep the faith it can be beat! Now a little humor,  bigal88 are you Big Al or Bi Gal? It does make a difference! : )

     

    Easyflip/Richard

    I can't think of the name of the procedure

    but there is a new one for lungs that can involve the removal of up to one hundred mets.  I'm not sure if that is only offered in Germany or if it is done here in the States as well.  OP, can you meet with a lung surgeon?  In my experience, getting someone who specializes in a particular organ can be very helpful.

     I would suggest also checking out the Colon Club forum.  I believe that is where I first read about the lung treatment.  There are also a number of folks there dealing with distant lymph node involvement.

    Hang in there, and keep us posted on how you're doing.  We have members here who have lived for years with stage 4 colon cancer, so try to stay hopeful.

    Big hugs~AA

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